My rheumatologist said last week that if the methotrexate 20mg weekly, plaquinil 400mg daily and 60mg prednisone (taper attempt number 3 hopefully mid April ) doesn't work we may have to start thinking about infusions. Very scary and I had a horrible feeling similar to when he told me I had sle in the first place.
However looking online it seems it might be more of a positive thing - with even less side effects compared to the tablets. And that Infusions aren't given as a first call due to hassle, cost, reactions and approval opposing to them actually being less effective than tablets - which I didn't realise.
Would like to hear of anyone's experience or knowledge with infusions designed to help lupus. I've looked up benlysta but unsure if the NHS even offers this anymore? What other ones are generally offered first in the UK? Really really keen to hear about this so thanks for replying in advice! Xxxx
Edit: and actually I'm Ana negative, so don't know if I would qualify for an infusion like benlysta. Hmmmm, I'm maybe just confusing myself haha. I find it helpful to educate myself about things though especially if it was for a positive outcome eventually.