Muscles: I feel like I've had a couple rounds with... - LUPUS UK

LUPUS UK

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Muscles

letslaugh63 profile image
8 Replies

I feel like I've had a couple rounds with mike Tyson.don't have to move to feel pain either and my arms don't feel like they are part of my body.funny sensation in them and my legs not like my arms but really weak and don't belong to me either.please someone tell me what the hell is going on.x

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letslaugh63 profile image
letslaugh63
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8 Replies
Purpletop profile image
Purpletop

I get that when I've done too much and lupus rebels. I usually take a short course of steroids (4 days of 10mg) to stop it, it doesn't happen very often.

letslaugh63 profile image
letslaugh63 in reply to Purpletop

didn't fully explain im also going to physio for frozen shoulder all which started in oct but im just not sure bout anything now as muscle pain seemed to be getting better now back with a avengance.im watching my grandson and just scared the shit out of him as i lightly banged my arm and was screaming like someone had stabbed me and i can take pain x

letslaugh63 profile image
letslaugh63

i havn't been diagnosed bt i ave had this before when all this first started in october,thought i was starting to get better.so i can't take steroids anything else that might help please purpletop.x

Purpletop profile image
Purpletop

I don't know what to suggest, if it was muscular contraction to protect your neck (the reason for the frozen shoulder I suspect) then I understand but the symptoms you describe are more like arthralgia or myalgia, rather. Have you taken any antiinflammatories to check if they help?

letslaugh63 profile image
letslaugh63 in reply to Purpletop

no meant to get some but forgot will get them tomorrow.even resting i just get random flashes of pain x

brave profile image
brave

Totally with you letslaugh ,ice sufferd terrible muscle issues for years and very much the last 8months ,my muscles feels like there hanging on to the bones for dear life ,i get twitches galore ,random stabbing pains ,my back muscles burn constantly even sitting against them causes them to burn and twitch ,nobody answers my concerns they just chuck another pill to try .Your not alone, but for me i find heat from hot water bottles ,keeping warm and taking combination ibrofen and paracetamol or co-codamol,amyltriptaline if you can tolerate it?

letslaugh63 profile image
letslaugh63

I'm on amytripline and I get same as you twitches,stabbing pains mostly in my arms,sometimes my legs esp calves.I get heat too I melted an ice cube at work 3 secs on my arm.my back and bottocks and boobs heat up even tho out of last 3 I only get pain in boobs.I got app my 1 St one with rhuemy I will be asking about this.will let you know how I get on brave x

letslaugh63 profile image
letslaugh63

Can't take too many painkillers as I'm at work,plus don't like taking them but I sure wish I could today x

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