body v brain: body, oh body why have u denied me... - LUPUS UK

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body v brain

poncho profile image
4 Replies

body, oh body

why have u denied me,

my brain is strong but you

Body, u have defied me......

Written by
poncho profile image
poncho
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4 Replies
wrongtrousers profile image
wrongtrousers

Hi

are you on a high dose of steroids? For over twelve months, while on a high dose of steroids I really felt as if my body had taken over and wondered if it would ever be the same again. My brain felt as if it was too large for my head and would burst out....the pressure was awful.

Consequently the brain fog took my ability to even work out words to read which was a bitter blow when I have been a public speaker inmost o the world.

The good news is that it does pass and now that I am down to 6mg I am reading again although in speech I do forget, or say the odd word wrong..... which can be hilarious.

Be patient although it can be very frightening.

I trust that this time will pass quickly....all the best

Grace x

ijeasike profile image
ijeasike

hi

i also have a heavy feeling in my head. i have been on 60mg of steriod, then reduced to 40mg now it is 30mg. so my dear i know hw u feel and hope u get better

SLE15 profile image
SLE15

Short and to the point, I like your poem. I understand how frustrating it can be for your body not to be able to keep up.

I think it's great you can express your frustration.

Keep going and keep smiling!x

poncho profile image
poncho in reply to SLE15

Thank you, you get me!!!

Not many do!

Xxx

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