LUPUS UK
21,161 members16,758 posts

pains down the side?!

Ellie has just come home after having 3 days on steroids intravenously. Lupus now diagnosed , she has been put on Hydroxychloroquine..(took 5 before going in last week but she was terribly nauseaus so consultant said to stop taking them.)

Had the drip for 3 days bp dropped down to 82 at one point !! home yesterday & today she has awful pains down the sides of her neck & body ..from under her arms to her waist, he Lupus team in Newcastle have been superb & I shall ring them tomorrow, just wondering if this will be nerve pain..or something maybe brought on by the steroids? Anyone else had similar?

x

4 Replies
oldestnewest

i dont think its steriods make the call and get there advice hope ellie feels better soon

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Hope Ellie is improving. I live in South Tyneside and didn't know that there was a lupus team in Newcastle. Could you tell me more about it please

Reply

Hi Boldonganny,

The Lupus team is part of paediatrics at the new Great North Childrens Hospital..which is part of the RVI. I`m not sure how old you are!

x

Reply

Excellent Adult Lupus Team at Freeman Hospital Newcastle.

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