Ellie has just come home after having 3 days on steroids intravenously. Lupus now diagnosed , she has been put on Hydroxychloroquine..(took 5 before going in last week but she was terribly nauseaus so consultant said to stop taking them.)
Had the drip for 3 days bp dropped down to 82 at one point !! home yesterday & today she has awful pains down the sides of her neck & body ..from under her arms to her waist, he Lupus team in Newcastle have been superb & I shall ring them tomorrow, just wondering if this will be nerve pain..or something maybe brought on by the steroids? Anyone else had similar?