Posts - LUPUS UK | HealthUnlocked

LUPUS UK

32,146 members • 28,486 posts

All posts for April 2012

Benefits Information - ESA

Anyone who is in the Work Related Activity Group (WRAG) and has been on contribution-based ESA for 365 days anytime from 30th April onwards will have an...

Anyone who is in the Work Related Activity Group (WRAG) and has been on contribu...

kulie13

•12 years ago

2 Replies

water sample

Going to see my Rheumy next week this will be 4 years running, i have never been asked for a water sample in all the times that i have seen him. He once said...

Going to see my Rheumy next week this will be 4 years running, i have never been...

lornadoon

•12 years ago

15 Replies

been over 14 weeks esa claim still not heard,when will i here owt

pebbles221

•12 years ago

1 Reply

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Fatigue....

i have recently been diagnosed with Lupus after a few years of medical tests its great to finally know whats up! ive read information, watched a DVD and feel...

i have recently been diagnosed with Lupus after a few years of medical tests its...

lindsay81

•12 years ago

20 Replies

fed up lupy

hi just joined this site and love reading all the comments its great to know you are not alone with this infuriating illness!!!! just had esa withdrawn, also...

hi just joined this site and love reading all the comments its great to know you...

normajean

•12 years ago

8 Replies

has anyone else been affected by their mother's taking stilbesterol (DES)?

in 1953 my mother was prescribed the oestrogenic stolbesterol after 10 years of miscarriages, and told bed rest + this med for 9 months could help her carry a...

in 1953 my mother was prescribed the oestrogenic stolbesterol after 10 years of ...

Barnclown

•12 years ago

2 Replies

Need new consultant

I have had lupus for 21 years having been diagnosed by Dr Bucknall at the Royal in Liverpool. He has been fantstic over the years and got me through some...

I have had lupus for 21 years having been diagnosed by Dr Bucknall at the Royal ...

j7blupus

•12 years ago

12 Replies

just joined this site looking for help and advice from other lupys/fibros, just had esa stopped what the hell do i live on now ??

normajean

•12 years ago

4 Replies

Mrs Lupus 2

I am not Mrs Lupus but she has told me I can share,and as you like the other I thought i would post 1 each week Keep well my friends XX

I am not Mrs Lupus but she has told me I can share,and as you like the other I t...

janiceray

•12 years ago

4 Replies

luppy lou

its now 1 45am and the third nite i have been unable to sleep. gettin a bit hacked off with it now, as im, so tired, my cheeks are burning, and my head is...

its now 1 45am and the third nite i have been unable to sleep. gettin a bit hack...

angiebransom1

•12 years ago

8 Replies

Anyone else had Lupus Pneumonitis?

I had a very severe 'chest infection' and 'pleurisy' for 7 months... I finally got to see a lung specialist (at the end!) and they tell me it's Lupus mimicking...

I had a very severe 'chest infection' and 'pleurisy' for 7 months... I finally g...

Blueberry

•12 years ago

4 Replies

I need advise please

hello everyone I already have fibromyalgia since 2003 I am being test now for lupus Please can you advise me on the symptoms of lupus and what...

hello everyone I already have fibromyalgia since 2003 I am being test now f...

debstar

•12 years ago

3 Replies

Brassed off

Sorry but just need to whinge. Fed up! feeling really bad today, hands and wrist all swollen and sore, as is my left knee.... and i have fatigue that feels...

Sorry but just need to whinge. Fed up! feeling really bad today, hands and wrist...

jani4063

•12 years ago

6 Replies

Problems with pins and needles

Haven't written for a while, the past few days I have been suffering terrible pins and needles in my arms causing them to ache and yesterday at work I had a...

Haven't written for a while, the past few days I have been suffering terrible pi...

Lucy86

•12 years ago

5 Replies

Plaquenil or Quinoric

I was given plaquenil by my rhumy but my repeat prescription from my doctors is for quinoric. I find the plaqunil ok to take I've been taking it for a month,...

I was given plaquenil by my rhumy but my repeat prescription from my doctors is ...

moontreegoddess

•12 years ago

24 Replies

coating on my tongue diagnosed oral thrush many times no treatment working feeling sick every day any advice

mandiee

•12 years ago

19 Replies

lupus oldie

Hi just joined yesterday i have had lupus 4 years now, lots of problems with joint pain, keeping my balance,short term memory loss. Also stomach problems....

Hi just joined yesterday i have had lupus 4 years now, lots of problems with joi...

lornadoon

•12 years ago

30 Replies

Trying to deal with lupus

I was finally diagnosised with lupus this past october. The remutolgist put me on predisone a low dose 5 mg and she wanted me to get a eye exam so i could...

I was finally diagnosised with lupus this past october. The remutolgist put me o...

Diane48

•12 years ago

3 Replies

Blood in Urine

I had severe pain in my left kidney a few weeks ago. I visited my doctor but she said that it was probably muscular pain as my urine at that time was clear....

I had severe pain in my left kidney a few weeks ago. I visited my doctor but she...

Eleri

•12 years ago

5 Replies

Can anyone please help me. My 22yr old daughter and I are trying to get a diagnosis. Looking back her first flare up (isolated was age 3).

12 months ago her skin errupted, starting on her head and eventually covering her whole body. GP for weeks pumped her with antihystomines. Nothing helped and...

12 months ago her skin errupted, starting on her head and eventually covering he...

theboss

•12 years ago

13 Replies

Fact sheets or info for employers

I know its probably been asked loads of times, but can someone direct me to useful info for my employer? I am newly diagnosed and have had lots of time off...

I know its probably been asked loads of times, but can someone direct me to usef...

crusher

•12 years ago

6 Replies

Hi, I have been diagnosed with lupus and I keep having blood blisters on my tongue or in the cheeks of my mouth which can be very painful.

Maureenpearl

•12 years ago

7 Replies

history

for the past 10 years i have been living with do i have do i not have lupus, i have an excellent rheumatologist who started me on hydroxychloroquine, with good...

for the past 10 years i have been living with do i have do i not have lupus, i h...

medic1969

•12 years ago

2 Replies

Bone density

I have recently had a dexa scan and have been told i have osteopenia in my hips and lumbar spine, has any one else been diagnosed with this...my consultant...

I have recently had a dexa scan and have been told i have osteopenia in my hips ...

jani4063

•12 years ago

8 Replies

Medication

Hi. I was diagnosed with sle a few years ago and just put on warfarin to deal with my clotting problems. I suffer from extreme tiredness, often falling asleep...

Hi. I was diagnosed with sle a few years ago and just put on warfarin to deal wi...

Chantelle

•12 years ago

6 Replies

Good morning lupies!

Hi all, I hope you are doing well as can be expected. I am ok, I left my job in September last year due to ill health, I am much better, have had one flare in...

Hi all, I hope you are doing well as can be expected. I am ok, I left my job in ...

Pammy76

•12 years ago

3 Replies

Younger Sufferers?

Hi all, my 15 year old daughter has recently been diagnosed with RA, Lupus & Sjorgrens Syndrome, we aren`t really managing to `plan ahead` or help her , got...

Hi all, my 15 year old daughter has recently been diagnosed with RA, Lupus & Sjo...

Northerner123

•12 years ago

7 Replies

raising awareness

Hi all,sorry i,ve not been on here for a while,for those of you that don,t know i,m not a lupus sufferer but my mother was but after a long illness last year...

Hi all,sorry i,ve not been on here for a while,for those of you that don,t know ...

catb18

•12 years ago

5 Replies

Hello Lupus UK!

I'm so pleased to have found a UK Lupus site, joined 5 minutes ago, the US site I joined is far too detatched for my liking! x

I'm so pleased to have found a UK Lupus site, joined 5 minutes ago, the US site ...

Orangsrus

•12 years ago

3 Replies

A gastroenterologist nothing wrong so why have i been feeling sick everyday since August. He says its the Lupus. where to go from here Help.

I've been to see a surgical gastroenterologist and he did all the tests CT scan and endoscopy, Nothing physically wrong with me all organs looked normal. Good...

I've been to see a surgical gastroenterologist and he did all the tests CT scan ...

Lucylou31

•12 years ago

15 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for April 2012

Benefits Information - ESA

water sample

been over 14 weeks esa claim still not heard,when will i here owt

Fatigue....

fed up lupy

has anyone else been affected by their mother's taking stilbesterol (DES)?

Need new consultant

just joined this site looking for help and advice from other lupys/fibros, just had esa stopped what the hell do i live on now ??

Mrs Lupus 2

luppy lou

Anyone else had Lupus Pneumonitis?

I need advise please

Brassed off

Problems with pins and needles

Plaquenil or Quinoric

coating on my tongue diagnosed oral thrush many times no treatment working feeling sick every day any advice

lupus oldie

Trying to deal with lupus

Blood in Urine

Can anyone please help me. My 22yr old daughter and I are trying to get a diagnosis. Looking back her first flare up (isolated was age 3).

Fact sheets or info for employers

Hi, I have been diagnosed with lupus and I keep having blood blisters on my tongue or in the cheeks of my mouth which can be very painful.

history

Bone density

Medication

Good morning lupies!

Younger Sufferers?

raising awareness

Hello Lupus UK!

A gastroenterologist nothing wrong so why have i been feeling sick everyday since August. He says its the Lupus. where to go from here Help.

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