I have had lupus for 21 years having been diagnosed by Dr Bucknall at the Royal in Liverpool. He has been fantstic over the years and got me through some really bad times. He retired a couple of years ago and all his patients were taken over by Dr ****. I have only seen him a couple of times, usually get seen by Reg. but have been getting more and more disillusioned each time. Last visit got talking to fellow patient in the waiting room and was shocked to hear she was having a similar experience so I decided to confront Dr ****. It did not go well!!!!! He has now decided in his opinion he is stopping my mediction and will not see me any more. I haven't felt this ill in years and don't know where to turn, I need a new rheumy who knows about lupus. BTW my GP and Pain Management Consultant still say I do have lupus.
I have now found a forum full of comments about Dr **** stating similar probs. It really shocked me but don't feel quite so alone but don't know where to turn now for support