consultants with interest in lupus in Glasgow

[jptwechar]

hi

Im looking for advice. I had a relapse after a few years and had a consultation with a new consultant as all my old ones had retired. I was pretty much ignored when trying to describe my symptoms that I experience and how they affect me and how bad it is. I was previously on methotrexate and that had an amazing effect on my symptoms and life but the consultant was not convinced that a previous doctor should have proscribed it to me as I was not fully diagnosed. I have lost faith in gartnaval and am looking for a second opinion from a doctor from outside this hospital. does anyone know of any doctors with a real interest in lupus.

cheers

[CarolMcl]

Sorry to hear what you're going through. I see professor Munro at Monklands hospital. I've always found him to be very supportive and does genuinely listen to what you have to say. Hope this helps 🌹

[jptwechar in reply to CarolMcl]

thanks for that. will have a look

[CarolMcl in reply to jptwechar]

Good luck 🌹

[Gizmok9]

I left Gartnavel and changed to Paisley during Covid, felt I was in stale mate. I changed as got family there to stay with when down.

2 rheumatologists I’ve seen in paisley have been great but now found one to avoid very dismissive.

[glasgow-girl]

I attend Glasgow Royal Infirmary. My consultant is Dr Laura McGregor and I often see Dr McGhee as well. I find both consultants are very good. They took over from Max Fields and continue a similar ethos. Always test urine sample etc for SLE patients.

I do think that sometimes that you are listened to differently whether you have internal organ involvement or not. I think once my internal organ complaints were under control (many years ago), you are then left with symptoms that restrict and detract from your quality of life.

I would highly recommend Glasgow Royal and I do feel listened to there.

Good luck, it is so frustrating when you don’t feel heard and we need to be our own advocate.

[jptwechar in reply to glasgow-girl]

Thanks for the advice.

[Tigrislany29]

Sorry to hear that you are having difficulties. It's not a direct answer to your question, but have you tried going dairy/gluten-free? I don't receive any treatment (I used to be on high doses of immunosuppressants) and I'm managing SLE purely with my diet.