New to England with Partner having Lupus

[DLau]

Hi

We are new to England and expecting new lives here.

Meanwhile we are exploring what kind of supports, services, resources available here in NHS, Council, Living issue.

Hope to have the support from you all.

David

[Chris21]

welcome to England, dont expect too much and you wont be disappointed. getting help from local councils is ok if youre prepared to wait for many years and the same applies to NHS as they are simply over stretched but do there best to see patients. GP surgeries are full, hospital appointments can be anything from 6 months to 2 years.

sorry if it sounds negative but this is the stark truth. if you can afford it, its best to buy your own house and go private for medical issues.

[Tiggywoos in reply to Chris21]

Would prob also add a bit of postcode lottery regarding where you live and what level of treatment / follow up you get . Seems very different in most counties !

[lupime]

Hello Dlau. Welcome to the forum where there is both emotional and practical support from fellow members. Your first step will be to get a GP and for your partner to tell them about their lupus and what kind of difficulties they are having and about previous support and treatments hey have had and then to get a referral to rheumatology. Sadly these appointments take a long time to come through. In the meantime take a look on the Lupus UK website which is separate from here and scroll down to publications where there re lots of useful information leaflets. All the best to you and your partner.

[Poshcards]

join Lupusuk online x

[StriatedCaracara]

There are also local support groups.Mine meets online each month, and sometimes F2F.

Lupus UK can advise.