I recently posted asking if anyone had pancreatitis issues with lupus (just been diagnosed with cutaneous lupus) and I got some advise & help & support. I spoke to the hepatobillary clinic who removed my gallbladder & they agree it’s most likely the pancreatitis is being caused by an autoimmune issue that’s not showing up on tests, I asked them to recommend to my gp I get sent back to rheumatology and I had a specific guy in mind (recommended by the maxfax consultant I’m under for mucus membrane pemphigoid) so I’ve emailed the gp asking for a referral and that’s all going to be set in motion.
so a heartfelt thanks to you all. I feel like I’m finally getting somewhere! 🥰❤️
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Loobie72
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Missed yesterdays post but wanted to say that following my lupus diagnosis Addenbrookes ran numerous tests & I'm on Creon due to a "half white" pancreas. I'm certain this happened a long time before lupus (which I now think was triggered by intense UV during a Disneyworld holiday) - the children (veggies) weren't surprised & blamed it on excessive burgerish diet.
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