Posts - LUPUS UK | HealthUnlocked

LUPUS UK

32,145 members • 28,486 posts

All posts for July 2024

Starting methotrexate tips

Hi I posted last week about decision to stop Mycophenolate after 12 months and switch to Azathioprine, unfortunately blood tests found I'm not suitable so now...

Hi I posted last week about decision to stop Mycophenolate after 12 months and s...

Beau2016

•3 months ago

23 Replies

mouth and genital sores/ulcers ?

please , anyone know if any meds help with mouth 👄 sores and the occasional genital sores / ulcers? I’ve had Lupus for five years now and this is the first...

please , anyone know if any meds help with mouth 👄 sores and the occasional gen...

Littleandperfect

•3 months ago

9 Replies

Diagnosis

Hi 👋 I've just stumbled across this site and thought I would put myself out there in the hope that some of you kind Lupus people could help. I have all the...

Hi 👋 I've just stumbled across this site and thought I would put myself out the...

Beaubeau-0

•3 months ago

3 Replies

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Any advice welcome

Hello. Does anyone have advice on the use of estriol cream for vaginal atrophy. Also whilst seeing the urologists they have advised that I should not worry...

Hello. Does anyone have advice on the use of estriol cream for vaginal atrophy. ...

littleeed

•3 months ago

11 Replies

Opthamology appointment re Hydroxychloroquine

Are any of you going to an Eye hospital for the yearly checks if taking hydroxychloroquine? I’m photosensitive under overhead lights and unfortunately it’s...

Are any of you going to an Eye hospital for the yearly checks if taking hydroxyc...

lizp28

•3 months ago

16 Replies

10 year old with red patches on her face

Hi all,Just tying to figure out what we're dealing with here using your experience. My daughter, which is 10, started what looks to be a case of impetigo...

Hi all,Just tying to figure out what we're dealing with here using your experien...

euxy103

•3 months ago

4 Replies

Nighttime pulse oxygen

hey amazing people This is bit out there but I know someone in the forum normally comes up trumps 🙂. Last week I had an overnight watch from hospital to...

hey amazing people This is bit out there but I know someone in the forum norma...

Tiggywoos

•3 months ago

16 Replies

trying to get a diagnoses

Hello, I was wondering if anyone can offer any advice or support. For years now Iv been having body pains being exhausted to the point I would fall asleep...

Hello, I was wondering if anyone can offer any advice or support. For years n...

Rubydax

•3 months ago

3 Replies

Biological Therapy - too soon?

Hey All I hope everyone is well. This is my first time posting and I’m really hopeful someone will be able to advise me. I was diagnosed with lupus in Feb...

Hey All I hope everyone is well. This is my first time posting and I’m really ho...

EeBeee

•3 months ago

22 Replies

Sarcoidosis

Hi I have Lupus and a few other auto diseases , just a quick question is Sarcoidosis any relation and do any of you have it , 💕

Hi I have Lupus and a few other auto diseases , just a quick question is Sarcoi...

whatsit

•3 months ago

Be the first to reply

Confused

Hey all again, sorry I seem to be non stop on here lately. Hope you guys are all as well a can be 💕 So if you have seen my previous posts you'll know these...

Hey all again, sorry I seem to be non stop on here lately. Hope you guys are all...

Haylz2109

•3 months ago

2 Replies

who also has fibromyalgia and then lupus?

I was diagnosed with fibromyalgia in 2009 and then lupus last year. I think it was harder to get the diagnosis because a lot of syptoms overlap.

I was diagnosed with fibromyalgia in 2009 and then lupus last year. I think it ...

Cazpurple

•3 months ago

9 Replies

Went to my doctor for bruises and now being accused of self harm

Hi sorry needed to vent somewhere and some advice on how to deal with this. So I have written to my rheumatology Dr via email regarding random bruising on my...

Hi sorry needed to vent somewhere and some advice on how to deal with this. So I...

Severancered9

•3 months ago

20 Replies

Potential Lupus diagnosis

Hello, I have just joined this site and would be very grateful for any advice given. Sorry this might be a bit long winded🤪 So… my ethnicity is of Asian...

Hello, I have just joined this site and would be very grateful for any advice gi...

Perfumeflower57

•3 months ago

4 Replies

Another amazing research 💪🏼

🧐Scientists discover a cause of lupus and a possible way to reverse it😯❗ I recommend listening to the podcast that appears in the article, which sums it up...

🧐Scientists discover a cause of lupus and a possible way to reverse it😯❗ I re...

Naladog

•3 months ago

4 Replies

stopping mycophenolate starting azathropine - any experience/ tips?

hi I’ve been taking my 2g mycophenolate for 12 months and 3g for 4 months, Drs have decided today it’s not working and I need to stop and try azathropine...

hi I’ve been taking my 2g mycophenolate for 12 months and 3g for 4 months, Drs h...

Beau2016

•3 months ago

2 Replies

Advice on appointment

I've just been referred to bath rheumatology. This is a final attempt to gey a diagnoses after first trying in 2006. I've asked them to see if I have...

I've just been referred to bath rheumatology. This is a final attempt to gey a ...

catblue1865

•3 months ago

7 Replies

Lupus and mitral valve prolapse/regurgitation

Hello. I’ve been undergoing some cardiac tests over the past few months. In November I stopped taking propranolol after many years. I had taken it to prevent...

Hello. I’ve been undergoing some cardiac tests over the past few months. In Nove...

Justinealexx

•3 months ago

31 Replies

catching Covid worries

Hi Lupus people! I’m still petrified of catching Covid. I clean all my shopping when it arrives, I wash my hands a lot, I hardly have friends over and go out...

Hi Lupus people! I’m still petrified of catching Covid. I clean all my shopping...

LilyMistri2

•3 months ago

36 Replies

🐺New Lupus Research: Mechanism of lupus pathogenesis unveiled🦋

📚👩🏼‍🔬Professor Yoontae Lee’s team identifies target protein regulating autoimmune disease lupus:...

📚👩🏼‍🔬Professor Yoontae Lee’s team identifies target protein regulating autoi...

Naladog

•3 months ago

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Lupus travel insurance

Hi Not sure if allowed to post... I'm due to take my 1st holiday abroad since being diagnosed later in the year and really worried about having proper travel...

Hi Not sure if allowed to post... I'm due to take my 1st holiday abroad since b...

MOOG144

•3 months ago

5 Replies

Travel Insurance Recommendations!

Hello everyone 🌸 I’ve just booked a family holiday to Spain. Any recommendations on the best travel insurance companies to use for my lupus health issues?...

Hello everyone 🌸 I’ve just booked a family holiday to Spain. Any recommendati...

Shann07

•3 months ago

4 Replies

just diagnosed with lupus

hi I’ve just been diagnosed with lupus via positive ANA test ! Only symptoms are the sun burning my neck and chest and my glands swell !! No medication given...

hi I’ve just been diagnosed with lupus via positive ANA test ! Only symptoms ar...

Edm174

•3 months ago

14 Replies

eye problems

I’m having strange eye problems. My vision goes weird with what feels like muscle spasms around my eyes. I’m on hydroxychloroquine and methotrexate so...

I’m having strange eye problems. My vision goes weird with what feels like mus...

BK47

•3 months ago

8 Replies

Covid

just tested positive for the first time .. do I need any extra medication these days via nhs due to lupus ?

just tested positive for the first time .. do I need any extra medication these ...

Dressgirl52

•3 months ago

7 Replies

rheumatology appointment

thank you so much for the kind, helpful and supportive responses. I am sorry did not reply sooner but I recently lost my Mother and have been going through a...

thank you so much for the kind, helpful and supportive responses. I am sorry did...

EmChar

•3 months ago

6 Replies

HRT with APS and Lupus

I was wondering if anyone takes HRT that has APS and or Lupus. I’m in blood thinners and on immune suppression drugs and also had a stroke so I’m not sure if...

I was wondering if anyone takes HRT that has APS and or Lupus. I’m in blood thi...

Newlupus76

•3 months ago

8 Replies

access to blood test results

OK - so I have had my rheumatology appointment and gallons of blood has been taken. I have been offered Nifedipine for the winter. She told me about the...

OK - so I have had my rheumatology appointment and gallons of blood has been tak...

Brychni

•3 months ago

8 Replies

Lupus and now possible BCell lymphoproliferative Lymphoma-extranodal in lungs

49 F, on cellcept and tacrolimus(for type 5 membanous nephropathy) around 7 years. May 1st had new onset wheezing, long story short--xrays, ct scan, lung...

49 F, on cellcept and tacrolimus(for type 5 membanous nephropathy) around 7 year...

NewEngland3

•3 months ago

1 Reply

blackrock

anybody else having a problem getting Blackrock hydroxychloroquine again? Told by pharmacy in N Ireland this morning that it’s unavailable? Why is this...

anybody else having a problem getting Blackrock hydroxychloroquine again? Told ...

Marmorange

•3 months ago

8 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for July 2024

Starting methotrexate tips

mouth and genital sores/ulcers ?

Diagnosis

Any advice welcome

Opthamology appointment re Hydroxychloroquine

10 year old with red patches on her face

Nighttime pulse oxygen

trying to get a diagnoses

Biological Therapy - too soon?

Sarcoidosis

Confused

who also has fibromyalgia and then lupus?

Went to my doctor for bruises and now being accused of self harm

Potential Lupus diagnosis

Another amazing research 💪🏼

stopping mycophenolate starting azathropine - any experience/ tips?

Advice on appointment

Lupus and mitral valve prolapse/regurgitation

catching Covid worries

🐺New Lupus Research: Mechanism of lupus pathogenesis unveiled🦋

Lupus travel insurance

Travel Insurance Recommendations!

just diagnosed with lupus

eye problems

Covid

rheumatology appointment

HRT with APS and Lupus

access to blood test results

Lupus and now possible BCell lymphoproliferative Lymphoma-extranodal in lungs

blackrock

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