HRT with APS and Lupus

[Lupus1976]

I was wondering if anyone takes HRT that has APS and or Lupus.

I’m in blood thinners and on immune suppression drugs and also had a stroke so I’m not sure if this would be something I could take.

Experiencing very low moods and crying a lot so thinking I’m peri menopausal.

Thanks

[Bobbydoodle]

Hi

Yes I have APS and Lupus and have had a TIA.

I take warfarin, hydroxychloroquine, prescribed vitamin D tablets daily, B12 injections 3 monthly and I was allowed to start HRT patches too. The patches are apparently safer for us than tablets.

I have used the HRT patches now for about 3 years with no issue.

[Lupus1976 in reply to Bobbydoodle]

thank you. I think I’ll contact my doctor then and ask. Not sure if emotions and low mood are from the lupus etc but I’m peri menopause age so I think probably that. Thsnks

[Bobbydoodle in reply to Lupus1976]

I try and avoid taking another medication (if I can obviously) but there was no way I could cope with the mood of the perimenopause on top of being ill it was brutal.

I hope you get some support with it as it’s just awful having your moods controlled by hormones in such a drastic way.

[Lupus1976 in reply to Bobbydoodle]

Exactly. I thought I don’t want to take any more as I have basket full of meds but I’m struggling with moods just now. Great I’ll contact doctor

[FandNnan]

I am older, in my 70s, and take oestrogen only HRT (for a long time now) but also taking Apixaban twice daily and a cocktail of immune suppressants. No problems as far as I'm aware.

I did take Premarin but recently started using a rub on gel. Only problem is I keep forgetting to use it!! 😆

[dg70]

I use hrt gel but good to talk it over with cardiology or neurology if you're with them. Also your gp. I got two yes and one no from specialists so gp said it's up to me . I've been on hrt gel for 2 years and so far all OK. It has balanced my hormones more and hot flushes are nit so frequent. The gel is good as you can adjust your dose so easily and no rash or scrubbing off glue if you use patches. I have lost a kidney, brain hemorrhage and tia also high blood pressure. Anyway best to chat your specialists and see what is recommended or not. Xx

[Sherryb28]

I started HRT a year ago best thing I’ve done no more hot flushes. Tbh I still have terrible fatigue joint and muscle pains but that’s more to do with Lupus. I take Azathioprine Prednisone two different types of BP tablets to name a few. I’d definitely recommend HRT. I had to plead with my GP so she contacted my Prof all he insisted was to have patches not tablets 😊

[Dcruz]

Hello,

Sorry to hear you’re at such a low point, it is very upsetting and daring to feel like this isn’t it .

I am on HRT and I feel it really does help massively .

I have both lupus / MCTD and APS (on aspirin)

Please see your GP and ask for advice to start on HRT , I was prescribed Orstrogel which has worked for me for many years now . Here’s hoping you get some help swiftly and start to feel better sooner rather than later .