Lupus and now possible BCell lymphoproliferative ... - LUPUS UK

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Lupus and now possible BCell lymphoproliferative Lymphoma-extranodal in lungs

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49 F, on cellcept and tacrolimus(for type 5 membanous nephropathy) around 7 years. May 1st had new onset wheezing, long story short--xrays, ct scan, lung biopsy-shows -suspicious for but not diagnostic of the above--extra nodal BCell Lymphoma. I want to know if anyone has had this and if getting off cellcept and/or tacrolimus reversed it?

They want a PET/CT and another bigger lung biopsy, however the interesting thing is that since I took myself off cellcept I no longer have wheezing, I mean how can you have something potentially malignant growing in your lungs but your bronch went from constricted(which caused the wheezing) to back to normal, nothing makes sense, I am meeting with the Lymphoma specialist/oncologist next week and hope to have some questions answered.

Does anyone have any personal experience?

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NewEngland3

bump-anyone dg with lymphoma? any remission stories from lowering immunosupressants?

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