Covid : just tested positive for the first time... - LUPUS UK

LUPUS UK

31,991 members28,310 posts

Covid

Dressgirl52 profile image
7 Replies

just tested positive for the first time .. do I need any extra medication these days via nhs due to lupus ?

Written by
Dressgirl52 profile image
Dressgirl52
To view profiles and participate in discussions please or .
Read more about...
7 Replies
CarolMcl profile image
CarolMcl

I was given the antivirals because I'm immunosuppressed 🌹

JLAR01 profile image
JLAR01

good morning Dressgirl52 🫶🏼

I was prescribed paxlovid due to being immunosuppressed and not going to lie; it saved my life!

I hope you’re not feeling too unwell, however we all know how nasty lupus can be. Best thing to do is definitely speak to your GP. You need to start antiviral medication within 5 days of symptom onset or positive test.

Drink plenty and as always; rest plenty and take care.

All the best x

CavendishCool profile image
CavendishCool

I wish you luck. It depends on your level of Lupus. In my region I wasn't "eligible" this time for the booster vaccine, whereas I qualified for all the previous ones. Being only on Hydroxychloroquine does not mean my Lupus (if it is that - pharmacists words, not mine) qualifies according to the pharmacist I booked in with; yet via the NHS app, I keep getting reminders that I am, but only the pharmacist who refused me is on the list closest to me for administering the booster. I simply can't afford (in terms of time) to try the next pharmacist 20 mile's away in case they won't give it to me either. I've had it twice, the second time completely knocked me off my feet and I was fatigued for so long afterwards too. I just resign myself to the fact that it's out there, I no longer qualify. Maybe the once a year booster is enough together with the flu vaccine. I hope you only have Covid mildly 🙏

Dressgirl52 profile image
Dressgirl52 in reply to CavendishCool

I have had all the vaccines and the boosters .. will ring gp

Olive12345 profile image
Olive12345

I had a message saying I was eligible but I didn’t have them the last few times I had Covid. I had it badly in 2020 and got long Covid so I could tell that it felt different and my body was managing. It was just like a cold so I decided I didn’t need them!

ks1966 profile image
ks1966 in reply to Olive12345

Hello. I was wondering if you don’t mind sharing with me how if sleeplessness is a symptom of long covid and do the symptoms progress right after infection or is it gradual. Struggling a bit here. Thanks.

Maddymay65 profile image
Maddymay65

morning

Sorry to hear that , hope you are not feeling too unwell . I was given anti virals after contacting my go surgery within 4 days of being positive. I am sure they helped

Good luck

Take care

M x

Not what you're looking for?

You may also like...

Hydroxychloroquine and Covid

all your posts. I was diagnosed with Discoid lupus years ago. I had two hip replacements before...

Hydroxychloroquine and covid

lupus flare or long Covid?

dizziness. Not sure I’ve ever had that with a Lupus flare. Anyone else experienced dizziness as a...

Covid vaccine caused flair

Hydroxychloroquine Covid trial stopped.

Hi. I have just heard on the News that the trial of Hydroxychloriquine has been halted. The...