Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for July 2021

Positive covid test today

Hi I’m not new on here but haven’t written on here for a few years! I need to ask for advice! I moved to Spain from England last August. I have been sensible...

Hi I’m not new on here but haven’t written on here for a few years! I need to as...

Anniemack1

•3 years ago

22 Replies

Roses are red…..

But not this one, it’s sunshine yellow. Hope it gives you all a sunny smile 😎

Hidden

•3 years ago

4 Replies

Rash?

I saw a post with a rash similar to this one. Same spot. Was hoping the individual found out what it was and if they discovered if it was lupus. I cannot get...

I saw a post with a rash similar to this one. Same spot. Was hoping the individu...

CuriousLamb

•3 years ago

1 Reply

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Good ole derm venting

So I got this wonderfully demarcated rash last week. Started as blisters and small red circles. Quickly spread all over the elbow and then flattened to a red...

So I got this wonderfully demarcated rash last week. Started as blisters and sma...

Jmiller623

•3 years ago

22 Replies

10 year old got lupus can she go to school

Hi all I am new to this group and lupus my doughter recently diagnosed SLE, she is 10 year old started fever in Jun and later she got rash allover the body and...

Hi all I am new to this group and lupus my doughter recently diagnosed SLE, she ...

Radha2krishna

•3 years ago

36 Replies

Anybody had IM nail femur surgery and what recovery plan are you using uk only

Day 14 after IM Surgery femur and hip. I am still in pain and anxiety about moving around. My husband is being more than unhelpful in understanding my anxiety...

Day 14 after IM Surgery femur and hip. I am still in pain and anxiety about mov...

rafael

•3 years ago

1 Reply

ANXIETY

how are other handling Anxiery?

Goinglong10

•3 years ago

3 Replies

Green tomatoes

Our first tomato’s have arrived! Pity I can’t eat many as acidic foods makes my RA worse but these smell amazing, just like my grandpa’s greenhouse when I was...

Our first tomato’s have arrived! Pity I can’t eat many as acidic foods makes my ...

Hidden

•3 years ago

11 Replies

Terrible flares and really sore legs

Hi I’m really struggling between this pandemic and not able to see my rheumatologist but since I’ve had my second vaccine I feel if my lupus has flared and the...

Hi I’m really struggling between this pandemic and not able to see my rheumatolo...

Liz2468

•3 years ago

1 Reply

Need some employment advice...

I was signed off sick from work for 3 months at the end of 2020/early 2021 when I was diagnosed with SLE and Fibromyalgia. I returned to work in early Feb with...

I was signed off sick from work for 3 months at the end of 2020/early 2021 when ...

Dannimant

•3 years ago

6 Replies

What do you take for extreme nausea?

I'm on domperidone for gastroparesis(but that doesn't help the nausea). I used to take prochloroperazine but it stopped working so have been swapped to...

I'm on domperidone for gastroparesis(but that doesn't help the nausea). I used t...

Whitemagnum

•3 years ago

31 Replies

Eustachian tube disfunction and Sjogren's? Anyone have this and any useful tips on dealing with it?

Hello All, wondering if you can help me? I have SLE & Sjogren's. Have had the dry eyes for several years and now in the past few months developed a dry mouth...

Hello All, wondering if you can help me? I have SLE & Sjogren's. Have had the dr...

gemim

•3 years ago

4 Replies

Debilitating knee pain

Hi 🙂, I have SLE, Multi Connective, Sjogrens, Fibro, Arthritis. I have developed debilitating pain in the back of my left knee. Rheumy said mri showed...

Hi 🙂, I have SLE, Multi Connective, Sjogrens, Fibro, Arthritis. I have develop...

kareng74

•3 years ago

4 Replies

Prescription payments age

https://pharmaceutical-journal.com/article/news/government-proposes-raising-qualifying-age-for-free-nhs-prescriptions-to-66-years Interesting topic for...

https://pharmaceutical-journal.com/article/news/government-proposes-raising-qual...

Hidden

•3 years ago

10 Replies

Today’s offering

Reminds me of the Beauty snd the Beast fairy story

Hidden

•3 years ago

10 Replies

Study just out about tolerance of COVID-19 vaccines in patients with SLE

https://www.thelancet.com/journals/lanrhe/article/PIIS2665-9913(21)00221-6/fulltext Apparently 3% had a medically confirmed flare. Interesting to see...

https://www.thelancet.com/journals/lanrhe/article/PIIS2665-9913(21)00221-6/fullt...

Cathyan

•3 years ago

1 Reply

Sun rash. How do you cope?

Hi, any tips on coping in the sun? My skin has not stopped itching since the sun has been out & tbf my GP is useless. Any recommendations on medication or...

Hi, any tips on coping in the sun? My skin has not stopped itching since the sun...

Simply_Kea

•3 years ago

3 Replies

Crazy 😳

Well I am gobsmacked. My hubby picked up my prescription today, sent to me by the Rheumatologist. He returned with three bag fulls? The Rheumatologist had...

Well I am gobsmacked. My hubby picked up my prescription today, sent to me by th...

CecilyParsley

•3 years ago

52 Replies

Lupus

Hello, Following on from my previous question in which I detailed my medication I have been taking - namely Ramipril being one of them. Since taking this...

Hello, Following on from my previous question in which I detailed my medication...

SamRigs

•3 years ago

4 Replies

Lupus

Hello, I have a general question please. Since being given the diagnosis of Lupus SLE back in May I have started taking mycophenolate, Prednisolone, Ramipril -...

Hello, I have a general question please. Since being given the diagnosis of Lupu...

SamRigs

•3 years ago

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Oral Thrush

I'm on Mycophenolate Mofetil 2g daily, steroids, warfarin and lots of other meds. Just recently had 3 bouts of oral thrush. Nystatin clears it up but it keeps...

I'm on Mycophenolate Mofetil 2g daily, steroids, warfarin and lots of other meds...

Whitemagnum

•3 years ago

9 Replies

Gigi's 2nd Birthday

Gigi celebrated her 2nd Birthday on Saturday! She is working to open one of her presents which by the way was a pink football that she loves. When we first...

Gigi celebrated her 2nd Birthday on Saturday! She is working to open one of her ...

Pumpkin2009

•3 years ago

15 Replies

The darling buds of May or should that be July

Look at this cluster of scented gorgeousness 😃

Hidden

•3 years ago

7 Replies

Feeling Lost

Hi everyone, I've been following this forum still but had to take a step back for a fair bit of time due to my heightening anxiety for my upcoming rheum...

Hi everyone, I've been following this forum still but had to take a step back f...

TeaandToast94

•3 years ago

11 Replies

Vaccinating children covid 19

Thoughts on vaccinating our children because we are immunosuppressed?

Harry19

•3 years ago

16 Replies

Head itching

Does anyone have issues with there head itching it’s been happening over a week or so I wash my hair every few days use dandruff shampoo although brush my hair...

Does anyone have issues with there head itching it’s been happening over a week ...

Mystik

•3 years ago

13 Replies

🐶 Mira is hot

Look where I’ve just found Mira, she’s not silly, she has her cooling jacket on which are marvellous and she has position herself amongst the lilies - hope...

Look where I’ve just found Mira, she’s not silly, she has her cooling jacket on ...

svfarmer

•3 years ago

35 Replies

Rashes some itch some don’t

Curious if anyones had these rashes and cold pale feet with blueish tips orno color at all or ideas on what it could be ill post my other ones down below

Curious if anyones had these rashes and cold pale feet with blueish tips orno co...

Baby_Snaer

•3 years ago

8 Replies

Brand name of Hydroxychoroquine

Hi could someone help me remember the two brands of hydroxychoroquine please. Some time ago a brand of hydroxy came out that was known to upset your stomach. I...

Hi could someone help me remember the two brands of hydroxychoroquine please. So...

Gillyg

•3 years ago

7 Replies

Abandoned Robin’s nest?

Hello fellow Lupies, I was extremely surprised to find a nest in our ornamental coconut bird feeder hanging outside our shed and I wanted to share my...

Hello fellow Lupies, I was extremely surprised to find a nest in our ornamental ...

Spotty-ewe

•3 years ago

46 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for July 2021

Positive covid test today

Roses are red…..

Rash?

Good ole derm venting

10 year old got lupus can she go to school

Anybody had IM nail femur surgery and what recovery plan are you using uk only

ANXIETY

Green tomatoes

Terrible flares and really sore legs

Need some employment advice...

What do you take for extreme nausea?

Eustachian tube disfunction and Sjogren's? Anyone have this and any useful tips on dealing with it?

Debilitating knee pain

Prescription payments age

Today’s offering

Study just out about tolerance of COVID-19 vaccines in patients with SLE

Sun rash. How do you cope?

Crazy 😳

Lupus

Lupus

Oral Thrush

Gigi's 2nd Birthday

The darling buds of May or should that be July

Feeling Lost

Vaccinating children covid 19

Head itching

🐶 Mira is hot

Rashes some itch some don’t

Brand name of Hydroxychoroquine

Abandoned Robin’s nest?

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