I’ve been advised by neurologist to take extra pregabalin ? With my balance issues I find the drug effects of Pregabalin too much , I don’t want to live in a drugged up state of affairs .. My Rhumatologist has written a couple of times to my practice doctor on prescribing meds for the above . But never contacted me ?
my question is ..
Has anybody found relief from any medication prescribed for irritable leg syndrome . How have the meds reacted with other meds ??
Do you feel better in general with how the meds work .?
How do they work ?
I’ve had irritable legs since been a teenager , so it’s been a long journey , it seems to travel to different parts of my lower legs , at the moment i suffer at the front of my ankles going up the front lower part of my legs .
I’ve still not been stated on biologics , due to still waiting for a heart monitor been fitted 20th August .
This treatment has been put down has urgent several months ago ????
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Willow1414
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Hi Willow, I find magnesium spray really helps with RLS, particularly at night. It can be a bit oily to apply, but it’s worth it. I hope you get some relief soon. 😘
my Ma uses the Better You sleep spray - though recent formulation change makes her sneeze and she now needs to top up with their ordinary magnesium spray. It can tingle your skin so I've not used it much. I might try again tho!
Hi WillowHave you had your B12 levels checked, too?
RLS is a horrible condition - I suffer too - and much underrated. I don't think the warm nights help either. My RLS was much worse during pregnancy and so I wonder if hormones play a role?
The oily magnesium spray didn't work for me, nor does my hefty daily dose of Gabapentin. Getting out of bed (😬) walking around for a while and cooling off, is the only thing that helps me.
You have my sympathy, I just wish I could suggest something more useful.
I think it may well be part of a circulatory problem too , it’s the mist annoying thing , when all you want to do is sleep or think nice thoughts or plans when trying to sleep . But all you can do is kick and jerk ..
Hi willow, I have had that problem for years until i was prescribed gabapentin at first was one or two 300mg capsules as required before bed as always found was worse time or long journeys in car. I am now on two 300mg capsules three times a day as part of pain management.I am on lot of medication for several conditions I don't find any problems and hardly ever bothered with legs now.
I stopped having restless legs when I stopped taking antidepressants, slowly got less and less. But probably not any help to you.People on another lupus support site are recommending Magnesium sleep lotion which you can get from pharmacies e.g. Boots or from Holland & Barrett. It has magnesium but lavender and chamomile in it too which are supposed to help you sleep.
Others suggested tonic water or lucozade sport which I’ve not heard of as helping before but at least not too expensive to try.
Hi Willow are you talking about restless legs? I've suffered with it since...I can't remember but started getting worse about 10 years ago to the point I thought I would lose my mind, I had to stand and walk because if I sat or layed down it would start a gradually get worse. I mentioned it to my neurologist and he prescribed carbadopa levodopa and it's made a difference in my life, I still get it and it can be quite miserable but I don't get it as often and at this point I'll take any relief that's available. I hope you get the help you need.
Yes I know what you mean by take anything , just to stop the horrendous sensations and kicking /jerking that you have to do , just fir it to start again as soon has I’ve jerked or kicked . I’ve started just constantly moving sometimes , just to get a head start .
I haven't had any side effects so I'm happy about that. I can't believe they don't know much about this misery to do something about it. I hope you get the help you need and can finally relax a bit.
Hi Willow. Have you tried supplementing with Iron? Even if your HB and Ferritin are high, your iron, transferrin saturation and one more that I can’t remember, might not be optimal. Iron is a significant cause of RLS. My RLS became particularly bad earlier this year and was, I felt , exacerbated by nerve pain starting in my hips and tracking into my shins etc. I found that Zapain (hi strength cocodamol) helped with the pain and made me drowsy enough to sleep at night. Hope I’ve been some help x
Hi willow - I use Olbas oil - and rub it on my knees and legs and even feet. Or try Biofreeze gel or spray. I too have had restless legs for decades, or I did, until using these remedies- they also ease off any joint pains I have from arthritis - good luck
Ps - had to see a neurologist and he advised me to avoid extra add on prescription meds as it is a never ending vicious circle and addle the brain. I have pared down to my original 2 drugs for the last 2 weeks and I feel so much better
I always get restless legs when I'm slightly iron deficient. Heat seems to be another factor, as is overtiredness. Hope you get it sorted as it's an absolute pain.
I will second Treetop. Before they found severe anemia, my legs were quite jumpy at night. After treatment it has disappeared. I found a strange but useful way to self-treat was a large dose of Vitamin E. I took 400 mg. If that didn't work, I'd go to 800 mg. Don't know why it worked.
I’ve just bought the magnesium spray from HB . Just going to apply , has I’m sat her in the sofa , feeling the early jitters of what might be a bad night .
Thank you for asking , I found the first night had soooo much relief , although I did buy the oil and well and truly applied it all over my lower legs and feet, steeped feet first in a warm bowl , second night applied not gas much , did not give as much relief as the previous night . I’ve now bought the cream and a bigger bottle of the oil , has I feel it needs to be quite a heavy application .
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