Posts - LUPUS UK | HealthUnlocked

LUPUS UK

32,210 members•28,555 posts

All posts for December 2019

Healing cuts when you have lupus and are taking steroids

Hi there I have had lupus for 4 weeks and am on high dosage of steroids. I had minor surgery just before I was diagnosed and my small incisions are not...

Hi there I have had lupus for 4 weeks and am on high dosage of steroids. I had...

IshaTulloch-1984

•5 years ago

11 Replies

My friends ❤️ would you mind if I stayed a while

Been quite lately looking into other possibilities But nothing fits like lupus or uctd lupus like this is the only site where it all makes sense Would you...

Been quite lately looking into other possibilities But nothing fits like lupus ...

Buckley123

•5 years ago

37 Replies

The Sunflower scheme

The Sunflower Scheme is brilliant you get a free lanyard and the staff then know you might need help be it reaching a top shelf, packing bags. I had Transverse...

The Sunflower Scheme is brilliant you get a free lanyard and the staff then know...

Robin1974

•5 years ago

4 Replies

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Skin problems with Sle?

Hey, any of u getting sudden strong itching sensation on ur skin that is too hard to tolerate? If yes, how do you cope or control it? I am managing it somehow...

Hey, any of u getting sudden strong itching sensation on ur skin that is too har...

Putloo

•5 years ago

24 Replies

Who can I asked to be referred to (from rheumatologist) who would know about Lupus? I need a specialist! North Wales...

I am seeing rheumatologist next week to discuss numerous bloods that apparently showed nothing (!), obviously he wants to discharge me but I want to discuss...

I am seeing rheumatologist next week to discuss numerous bloods that apparently ...

RobinGoch

•5 years ago

7 Replies

Vitex and Myo inositol

Hi I have SLE over the past 9 years. I have PCOD and hormonal imbalance. I am trying to conceive for the past 3 years. But all the treatments failed. I tried...

Hi I have SLE over the past 9 years. I have PCOD and hormonal imbalance. I am tr...

Vinodha

•5 years ago

3 Replies

Have you used the Hidden Disabilities Sunflower Lanyard Scheme?

Hi everyone, I'm just finishing off an article about the Hidden Disabilities Sunflower Lanyard Scheme for the LUPUS UK website and magazine. If you don't yet...

Hi everyone, I'm just finishing off an article about the Hidden Disabilities Sun...

Paul_Howard

Partner•5 years ago

7 Replies

Initial appointment

Hi everyone I’m still awaiting my initial appointment with the consultant . What can I expect on my first visit ? I have a weird sensation in my chest area...

Hi everyone I’m still awaiting my initial appointment with the consultant . Wh...

Harry19

•5 years ago

2 Replies

Update leaky gut

Saw rheumy referred to gastro doesn't think its related to Lupus. Bloods done just wait and see now. Just want to thank everyone for all your advice. 😊

Saw rheumy referred to gastro doesn't think its related to Lupus. Bloods done ju...

Hidden

•5 years ago

2 Replies

Why I didn’t find my physio therapy sessions at all helpful and has anyone else had a similar issue.

Hi everyone I hope your all ok and keeping as well as you possibly can. Have just had my first physio therapy appointment with the physio therapist who was...

Hi everyone I hope your all ok and keeping as well as you possibly can. Have jus...

Hidden

•5 years ago

28 Replies

Swollen fingers

Just interested to know if other people have the same symptoms as me- I’ve had lupus and RA for 3 years now and ever since I’ve had severe swelling in all my...

Just interested to know if other people have the same symptoms as me- I’ve had l...

svfarmer

•5 years ago

23 Replies

Tooth ache, or something else?

Hi, for months I have been having intermittent tooth ache, and ache up the left side of my face, and ear. (No ear infection) Last week it was worse, I called...

Hi, for months I have been having intermittent tooth ache, and ache up the left ...

Pinky1go

•5 years ago

14 Replies

Leaky Gut

Hi me again has anyone had leaky gut due to lupus. My stomach is in a bad way got rheumy appt tomorrow. Thks x

Hi me again has anyone had leaky gut due to lupus. My stomach is in a bad way go...

Hidden

•5 years ago

8 Replies

Worried about my health

I take A lot of medication to keep healthy due to LSE and sticky blood I earn 1100 and month if prescription charges go up again I will not be able to...

I take A lot of medication to keep healthy due to LSE and sticky blood I e...

Lonely21

•5 years ago

8 Replies

Bone marrow biopsy for chronic low wbc

Hi all, been seeing rheumatologist for a while now due to suspected lupus. Not an official diagnosis yet. Referred to Haematologist for low wbc a while ago....

Hi all, been seeing rheumatologist for a while now due to suspected lupus. Not a...

Wardlow

•5 years ago

10 Replies

Dry skin or peeling hands.

My girlfriend has been dealing with lupus recently. she has had everything from the reoccurring Fevers to body aches. She is taking a good medication right...

My girlfriend has been dealing with lupus recently. she has had everything from ...

Robby36

•5 years ago

1 Reply

I am curious about a Lupus symptom

My girlfriend has been dealing with lupus recently. she has had everything from the reoccurring Fevers to body aches. She is taking a good medication right...

My girlfriend has been dealing with lupus recently. she has had everything from ...

Robby36

•5 years ago

14 Replies

Statins???

Hi I have a question I'm hoping some of you might have an opinion on. I have SLE autoimmune hepatitis and arthritis. My rheumatologist has written to me GP...

Hi I have a question I'm hoping some of you might have an opinion on. I have SL...

juneybells

•5 years ago

7 Replies

Screaming into my pillow.

I'm screaming loudly into my pillow a lot lately. Recovered from shingles then a virus only to be suffering with another now. Vomiting and diarrhoea and sore...

I'm screaming loudly into my pillow a lot lately. Recovered from shingles then ...

Bronn

•5 years ago

2 Replies

Microblading

Hi I have lupus & have been thinking of having microblading my lupus is controlled & I take aspirin & Hydroxychloroquine daily. Many Thanks

Hi I have lupus & have been thinking of having microblading my lupus is controll...

Sarah69

•5 years ago

6 Replies

Urinary contraction muscle and focal refraction muscle related

I've been noticing that my vision has become more and more blurry over the past few months. I also had been having trouble urinating with ease. (Basically, it...

I've been noticing that my vision has become more and more blurry over the past ...

Beautifulwoman

•5 years ago

8 Replies

hydroxychloroquine side effect

Has anyone experienced rashes all over the body with this mediciation?

Cherry14

•5 years ago

11 Replies

Still searching for answers

Hi, I posted here a few years ago about my symptoms and that I'd seen a rheumatologist who diagnosed me with hypermobility syndrome. I remain convinced I have...

Hi, I posted here a few years ago about my symptoms and that I'd seen a rheumato...

scscsc

•5 years ago

4 Replies

Aching all over 😔

Hi haven’t posted here much as spend most of my time in denial about lupus - I was officially diagnosed just over 2 years ago with mild SLE and hypertrophic...

Hi haven’t posted here much as spend most of my time in denial about lupus - I w...

Shazbog

•5 years ago

3 Replies

Advice ASAP! Doctors this morning?

Hi guys I’ve woken up this morning and on my right hand my fingertips have gone red and swollen and feel so painful and bruised! I can feel them pulsing and it...

Hi guys I’ve woken up this morning and on my right hand my fingertips have gone ...

Becky1995

•5 years ago

7 Replies

Not posted in ages. Currently going through a juggling 🤹🏼‍♀️ act

Thought I would check in with my wonderful support group 😘 I have so much going on right now and trying to find that happy medium with medication, easier said...

Thought I would check in with my wonderful support group 😘 I have so much going...

Lisalou19

•5 years ago

25 Replies

Hospitalised

Hi there, for those who have read my posts on going onto PD dialysis and getting my catheter fitted this is an update, on Wednesday of last week exactly one...

Hi there, for those who have read my posts on going onto PD dialysis and getting...

Hidden

•5 years ago

7 Replies

Dr Brooke goldner plant based diet

Has anyone had any experience with changing to a vegan diet? I’ve found Dr Brooke Goldner online who claims to have reversed her own lupus with vegan diet and...

Has anyone had any experience with changing to a vegan diet? I’ve found Dr Brook...

Jmcb123

•5 years ago

12 Replies

Why

My near neutrophils are down to 0.3 from 2.9 (highest ever). No signs of infection. Azathioprine stopped 2 weeks ago as it had dropped below 1.4,.Seeing Dr's...

My near neutrophils are down to 0.3 from 2.9 (highest ever). No signs of infecti...

luupysue

•5 years ago

7 Replies

Methotrexate advice please

Hi folks I've been on a bit of a roller coaster lately. I've been doing regular blood pressure checks n sending them into my GP..this is coz I'm on an...

Hi folks I've been on a bit of a roller coaster lately. I've been doing regular ...

Krazykat26

•5 years ago

46 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for December 2019

Healing cuts when you have lupus and are taking steroids

My friends ❤️ would you mind if I stayed a while

The Sunflower scheme

Skin problems with Sle?

Who can I asked to be referred to (from rheumatologist) who would know about Lupus? I need a specialist! North Wales...

Vitex and Myo inositol

Have you used the Hidden Disabilities Sunflower Lanyard Scheme?

Initial appointment

Update leaky gut

Why I didn’t find my physio therapy sessions at all helpful and has anyone else had a similar issue.

Swollen fingers

Tooth ache, or something else?

Leaky Gut

Worried about my health

Bone marrow biopsy for chronic low wbc

Dry skin or peeling hands.

I am curious about a Lupus symptom

Statins???

Screaming into my pillow.

Microblading

Urinary contraction muscle and focal refraction muscle related

hydroxychloroquine side effect

Still searching for answers

Aching all over 😔

Advice ASAP! Doctors this morning?

Not posted in ages. Currently going through a juggling 🤹🏼‍♀️ act

Hospitalised

Dr Brooke goldner plant based diet

Why

Methotrexate advice please

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