Has anyone had any experience with changing to a vegan diet? I’ve found Dr Brooke Goldner online who claims to have reversed her own lupus with vegan diet and her own hyper nourishment green smoothies, I’ve started doing it this week and am keen to hear from anyone else that’s tried it?
Thanks x
I am game. But can somebody other than the person getting money from the book see any benefits? Looks awfully quiet.
I have done the smoothies for 6 weeks then moved onto vegan non processed plus occasional smoothies. I have definitely noticed a difference in my inflammation.
She does free webinars which you can sign up to watch. They are really worth seeing.
She does say that self care, meditation and exercise are part of the healing too. You have to make time for them. She has a group shredsmoothie where people support each other with the diet. Lots of success stories there with real people. I don’t have an appointment with my rheumatologist for another month and annoyingly he isn’t ordering tests until after the appointment.
I did have a small bald patch prior with o starting which my doctor and a specialist said was scarring alopecia and would not grow back. Much to my doctors surprise after the 6 weeks, it has started to grow back! Maybe it’s the hyper nourishment Dr Brooke talks about.
Hi I’ve tried vegan and made no difference to me xx
Hi.
Went vegan about 2 and half yes ago, also have dipped in and out of Dr Gs diet.
When I have been 100% just raw and smoothies, there has been unbelievable positive results. Bloods loads better and all rashes and joint pain gone. Unfortunately I have found it hard to stick to. It's not a case of doing it for a week, we're talking 6wks +, so maybe this time of year might not be the best time to go for it. But by adding a massive green smoothie with loads of chia seeds every day is going to help you feel better! And get you use to it before you go for it 100%.
Also I hear fasting is very positive for lupus, I'm going to try that as well in the new yr. Look up fasting Dr Valter longo.
The vegan diet definitely helps!! But theres a lot of vegan processed food out there now. I think the secret is no processed food and any shop brought food made up from the fewest amount of ingredients.
Its stuff we all know, but if someone discovers the magic of using willpower and not giving into vegan Galaxy chocolate please share!!
Best of luck, please share how you get on.
Sarah x
I read her book a while back. Hers wasn't the first account of this type I had come across. I felt it had a degree of validity but was unsure as to whether all the claims could be true.
One in particular was that she had previously had APS diagnosed and had been treated with anti coagulation.
It is stated by the experts in the APS field that if you have APS you need lifelong anti coagulation.
I was in this category myself. Earlier in my lupus history I had been flagged as having APS during blood testing. I finally accepted being put on warfarin in 2010 after several potentially life threatening events.
In more recent years on reading about different dietary approaches, I have made changes that have reduced my need for various drugs. Warfarin was always a hated drug, but one I always adhered to. I often wondered if I could ever come off warfarin but that was as far as it got.
Last year I was taken off warfarin following a massive gastric bleed with my team sending alerts to everyone medical I deal with to never restart my warfarin.
Let me state, I have not followed Dr Goldners diet. I am not vegan. I am a meat and dairy eater. I have however cut a vast amount of processed food from my diet and eat huge portions of vegetables daily.
The positive changes have been twofold in my opinion. Caused by lack of processed food and increased nutrition from increased quantities of vegetables.
I can't state whether I would have had better results by going full vegan. I don't feel I would have been better to have gone vegan whilst relying on vegan processed foods. If you go vegan you have to do it properly and ensure all of your nutritional requirements are covered.
I have seen improvements by cutting processed foods and increasing vegetable intake.
My quality of life and my antibody counts have improved greatly since I started walking, meditating and eating over 25 grams of fiber daily, so I do believe life style changes are powerful. I was already a whole food eater. Three ingredients or less is my shopping rule. Luckily potato chips( crisps) can fit in this rule for I do still occassionally want treats!
I believe less in strict diets that make failure rates predictably high and more that clean lifestyle changes with some wiggle room are life changing. I am still on both plavix and warfarin a year after my stroke so I, after talking to my team of doctors, do not call myself cured but I feel happier and healthier than I would have ever expected after having two massive strokes last year.
Metabolic syndrome is now believed by many rheumatic experts to be a precursor not a symptom of autoimmune diseases so diet, stress reduction and exercise make perfect sense in helping lessen if not cure autoimmune symptoms and damage.
I am not on a vegan diet. However, about 5 months ago I started the AIP (Auto-immune protocol) diet. This is basically a no grain diet. I can still eat meat but have replaced grains with more fruit and veg so I am now eating large quantities of fruit & veg. There is also an emphasis on eating only natural, unprocessed food - I eat nothing which contains additives/preservatives/artificial colouring or artificial sweeteners. As the diet states - if something has a "shelf life" - don't eat it. I really think that any diet which means you eat healthily with lots of fruit and veg, even if its not vegan, will help. I have experienced significant improvements on my diet and will stay on it. In the future I may consider going vegan but at the moment I feel that I would find it difficult as it would be even more restrictive than my current diet. I wish you well on your diet. Please keep us posted as to your progress. Many of us will be interested as this is a healthy and natural way to improve our health problems. Good luck!
Salmon is suppose to be a great anti inflammatory. I eat only fish and poultry, and use plant based protein powders in smoothies. I’ve read a lot of vegans who go back to meat. Even doctors. I think some people may do fine, but I don’t think it’s really meant to be natural for humans. Just my personal belief, so vegans, please don’t be offended or bash me😁.
I’m glad to hear the AIP diet has helped you. I have a neighbor/friend who it helped a lot. You can visually see the improvement. But idk if it helped me. But I have restricted my diet overall, trying to avoid triggers. So best of luck. I’m glad it’s done you well.🙏
I’ve been on AIP since August, prior to that I had been juicing and eating healthily for a while, no sugar etc. My ESR was actually in the normal ranges on my last rhuem visit last month. Prior to that it was the highest it had been. I totally agree with you just eating clean fresh healthy food and much more fruit and veg will def make a difference. I think I would struggle vegan, I cut my meat consumption down for over a year and when I then increased it on AIP I actually felt more energy. All about finding what works for you, as good as being vegan can be for some it’s not the right path for others and I do wish it wasn’t promoted as a cure all.
Interesting the way you talk of shelf life. I agree with you. Unless you are producing your own fermented veggies. These have life of their own in the probiotics they contain.
Other things I have read suggest we are electrical beings and in order to maintain our charge we need to eat things as soon as possible to maintain 'charge' levels. That's why many suggest raw vegan.
All food starts out with a life force until it is processed out of it. The fresher it is, the more life force it contains.
I think there may be something to it. Others may disagree.
Im a pescatarian, as in I don'teat red meat. I eat fish for the omega 3 content. But to be short yes, a less inflammatory diet will drive Lupus into remission. I had been there and then I became a professional cook and I have slipped up here and there and have eaten wheat and sugar two things I am *very* intolerant to. Both cause massive flares. I don't think one needs tp be vegan, in fact veganisim isnt really very healthy.
I personally do not eat fermented foods. Not good for Lupus.
Glad to hear that all helped and I realised this is an old thread...but I wonder what made you say that fermented foods are not good for lupus? Or did you mean not good for you specifically? 
Successful Lupus Diet? 
Dr Connie Jeon ( and Celery Juice) 
Diet and nutrition
Anti inflammatory diet for lupus?
