Skin problems with Sle? : Hey, any of u getting... - LUPUS UK

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Skin problems with Sle?

Putloo profile image
24 Replies

Hey, any of u getting sudden strong itching sensation on ur skin that is too hard to tolerate? If yes, how do you cope or control it? I am managing it somehow with telcum powder,though. Have been on Lupus medication for past 11 months now.

24 Replies
Danielle2419 profile image
Danielle2419

Hi Putloo

I have had times when parts of my skin is severely itchy like I have microscopic insects crawling on it. I paw at my skin so much that it goes red, I always put this down to my body heat that makes it become so itchy its hard to bare. I now moisturise a lot, ensure that baths are not severely hot to the point it will make me itchy as well as airing myself if I get too hot in bed. I do sometimes spontaneously itch but this never seemed to bother me so much that it become a big issue. I hope this helps in some way, maybe talk with your rheumy.

Danielle xx

Putloo profile image
Putloo in reply to Danielle2419

Thanks for the reply Denielle. This is something I really needed. I am definitely trying this... Thank you again

svfarmer profile image
svfarmer

Hi yes I get this a lot - I take piriton- not the 1 a day tablet it’s the 1 where you can take every 4 hours, takes 20 mins to kick in and really takes the itch away xx

Putloo profile image
Putloo in reply to svfarmer

Thanks for the reply. Since I am already on some very strict medications I don't know if I can actually take help of any drugs further... Though I would disuss this remedy with my doc.. Thank you for your response..

svfarmer profile image
svfarmer in reply to Putloo

Also have you tried Eurax cream - might be worth a try - I do sympathise with you , there’s nothing worse than really itch skin xx

Sekka profile image
Sekka in reply to Putloo

Hi Putloo.. I also don't want to take drugs for itchy skin but I use moisturizer after a shower every morning and use more during the day if needed. Drink water regularly, avoid synthetic clothes when possible and be careful with soap and bodywashes. Use baby products if possible.

Your questions re sun protection have been answered and I agree with the suggestions, particularly with staying out of the sun as much as possible. Stay in touch and good luck! I live in Australia so understand your climate. 😎👒

I get that same thing. It’s awful. Sometimes I want to scratch right down to the bone! The dermatologist gave me some corticosteroid cream that works great, and works on rashes too. You just have to be careful not to overly use it as it thins your skin. You need to keep it from eyes, nose and mouth, and make sure you wash it off your hands super well.

Good luck with your itch, so annoying, isn’t it? 🙏

LalSD profile image
LalSD

Hello, yes as an SLE patient, I get this in one part of my body, it was first at the top of my left foot, now. Moved to the side of my right foot. It drives me mad. It feels like an internal itch, not external. I had it for years. I use castor oil to ease the temptation. It helps.

Hope you get better. Love, L

Putloo profile image
Putloo in reply to LalSD

Thanks a lot for your suggestions... Shall definitely give it a try...

Putloo profile image
Putloo in reply to LalSD

Hey, could you please tell me how am I supposed to use castor oil and at what frequency? What time is best to apply this?

I already tried this method and I feel it's helping me. So, wanted more of the details.. Thank you

LalSD profile image
LalSD in reply to Putloo

Hello Putloo, I use castor oil externally. I prefer black castor oil. I just put as much as I can on the areas that are painful and ithcy. I made myself and my daughter better with applying castor oil to painful joints and also drink Kefir everyday. Itchy skin, just put it on the skin. Painful bones, apply externally and put hot water bottle to ease the pain. Please don’t drink it. Hope this helps. With best, L

LalSD profile image
LalSD in reply to Putloo

I drink ‘kefir’ which I buy from Sainsbury’s and kefir repairs the guts. Not a whole bottle, even half a small bottle of kefir helps to manage gut health.

Putloo profile image
Putloo in reply to LalSD

Thanks a ton for your suggestions... This means alot to me.

Cas70 profile image
Cas70

Are you on Hydroxychloroquine? Mine was dulled down after I started this drug. I use DermaCool the strongest version you can buy. Their website will send you free samples. I have improved so much since I cut sugar right down. Lots of water/drinks help. Good luck

Putloo profile image
Putloo in reply to Cas70

Yes, I m already on HCQS(300mg).I would definitely try ur suggestion. Cutting down sugar is something I m already on. Maybe some more be required. Thanks for the help

katidid profile image
katidid

First I apply topical OTC anti itch cream, like that used for rashes, bug bites, etc. Then I follow up with a dose of Benydryl.

Putloo profile image
Putloo in reply to katidid

Thanks for the reply katidid. Taking benydryl syrup orally helped your itching... That's a unique one. I shall definitely discuss this option with my doc. Was this your own idea or from ur doc. Could you please let me know?

katidid profile image
katidid in reply to Putloo

My own, but I have been dealing with itching most of my life and a fast-acting, tried-and-true antihistamine always seems to help. The cream depends on how fast the itching comes on and spreads.

Putloo profile image
Putloo in reply to katidid

Thanks for your response

catblue1865 profile image
catblue1865

I get extremely sore and itchy skin at times, I am not on any lupus drugs as not diagnosed, did think it might be my vit d tablets as said they could cause itching (common side effect) but left them off for week and no better

NeuronerdDoaty profile image
NeuronerdDoaty

I use a lidocaine (sometimes it says burn) cream. For myself it’s yeast as well as lupus stuff. Either way a cream with 4% lidocaine in it helps the most.

katidid profile image
katidid

Actually, yes! And I’ve never figured it out. It gets so bad I’ll scratch myself until I’m bruised. Sometimes it’s over a large area or many areas. My doctor has no idea, so I take a fast acting antihistamine and apply cortisone cream. Before those start to work, I sometimes apply ice using a compress bag or just sit on my hands!!!

Putloo profile image
Putloo in reply to katidid

Hey, applying castor oil on the affected area has done wonders for me. Infact, I regularly use equal ratio of coconut oil and castor oil evenly all over my body after bath. This practice has largely reduced this trouble for me. Plz give it a try as this is very effective natural remedy. 👍

katidid profile image
katidid

Will do. My skin is particularly dry right now due to a medication side effect, so the coconut oil after a bath sounds awesome! Thx for the advice

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