Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for July 2019

Headaches

Headaches in the front of your fade eyes nose teeth I Along with head pain normal sorry for short posts in pain looking at screen x

Headaches in the front of your fade eyes nose teeth I Along with head pain norma...

Buckley123

•5 years ago

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Why all these blistery spots at my age?

Hi, anyone have any idea why this has happened in the last few weeks? I have incredibly dry skin so have to moisturise and I use a cream cleanser, none of...

Hi, anyone have any idea why this has happened in the last few weeks? I have inc...

Krawlins

•5 years ago

18 Replies

A second opinion and Wales again

Hello lovelies, I've been absent from the group for a while, owing to stuff. At my last rheumy review, I was advised that although my condition is...

Hello lovelies, I've been absent from the group for a while, owing to stuff. At ...

whisperit

•5 years ago

44 Replies

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Done and frustrated

I’m just whining. I was sent home on temporary disability until I get this flare under control. I don’t do stay at home well even when I feel bad. I never...

I’m just whining. I was sent home on temporary disability until I get this fla...

NeuronerdDoaty

•5 years ago

14 Replies

Fun in the ☀️

Anyone else get this ? Went on holiday never again 😭❤️

Buckley123

•5 years ago

15 Replies

Another enigma

Need a little help deciding who to press on this blood work, Hematologist says labs are good. Not sure this looks good to me. I think she was just looking to...

Need a little help deciding who to press on this blood work, Hematologist says l...

Litha

•5 years ago

5 Replies

My IRITIS is back while on MTX. How?

And I have pain in my fingers, knees, and ankles...I seem to be evolving backward healthwise even on injections--do I need to get back on the steroids...?

And I have pain in my fingers, knees, and ankles...I seem to be evolving backwar...

OneLove2019

•5 years ago

3 Replies

Microbladeing

Hello everyone I have discord lupus, and thinking of getting microbladeing. Has anyone ever got it done? and did it work our did you get a flare up? thanks

Hello everyone I have discord lupus, and thinking of getting microbladeing. Has ...

bagshot

•5 years ago

1 Reply

Has anyone had their diagnosis taken away?

I have just made another post about my reduced mobility so apologies for that. I was diagnosed with SLE in January 2018. In the time from diagnosis until now I...

I have just made another post about my reduced mobility so apologies for that. I...

eescvc

•5 years ago

39 Replies

Reduced mobility

On Thursday 4th I had a physio session. She took muscle strength and endurance tests and was worried about the results. On the Friday I had a phonecall asking...

On Thursday 4th I had a physio session. She took muscle strength and endurance t...

eescvc

•5 years ago

2 Replies

Heat and flare ups- still learning!

This is all very new to me and still working out the triggers for flare ups. Stress and tiredness being the main ones for me. I have recently been reacting to...

This is all very new to me and still working out the triggers for flare ups. Str...

Sallmell

•5 years ago

10 Replies

Missed my appointment

Due to traffic I’ve missed my appointment at guys so gutted refused to see me and I have to wait another 6 weeks gutted 😭😭😭

Due to traffic I’ve missed my appointment at guys so gutted refused to see me an...

Buckley123

•5 years ago

12 Replies

High white cell count

Has anyone had a random elevated white cell count? Mine is 13,000 no, colds or other infections.

Has anyone had a random elevated white cell count? Mine is 13,000 no, colds or o...

Litha

•5 years ago

4 Replies

Scalp sensitivity/left side head pain

Hi everybody, I suffered with chronic fatigue and joint pains for many years before finally getting a Lupus diagnosis 4yrs ago. I think I'm lucky as I have...

Hi everybody, I suffered with chronic fatigue and joint pains for many years bef...

jbkinv

•5 years ago

17 Replies

anyone with Low IG M

Doc says stay away from crowds with automimmune problems, no spleen and low IG M. Shipment of immunoglobulin is back in USA. Will be getting it soon. Have no...

Doc says stay away from crowds with automimmune problems, no spleen and low IG M...

nanno

•5 years ago

3 Replies

Sore wound

I had an abdominal hysterectomy in January and post op I endured an awful flare that lasted for quite some time. Cutting to the chase..since the op I have been...

I had an abdominal hysterectomy in January and post op I endured an awful flare ...

Hidden

•5 years ago

6 Replies

Hydroxychloroquine with Lupus

Hydroxychlorquine is the first drug your given when diagnosed with Lupus it's safe, it can be taken during pregnancy and has no affects on the developing...

Hydroxychlorquine is the first drug your given when diagnosed with Lupus it's sa...

Robin1974

•5 years ago

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Hydroxychloroquine Survey Results

We have now published an analysis of the results from our recently online survey about hydroxychloroquine as well as recommendations from LUPUS UK. Learn...

We have now published an analysis of the results from our recently online survey...

Paul_Howard

Partner•5 years ago

2 Replies

Pain in knees, elbow and joints w/o arthritis?

I know I am sarcoid but arthritis has been ruled out--so why do I have increasing pain in my wrist, knees, finger joints and ankles. I am also currently on...

I know I am sarcoid but arthritis has been ruled out--so why do I have increasin...

OneLove2019

•5 years ago

10 Replies

Alendronic acid (sodium alendronate): a dilemma...

Hello lupus sufferers, When I was first diagnosed with SLE, DLE and lupus nephritis some 4 years ago I was initially prescribed high doses of corticosteroid,...

Hello lupus sufferers, When I was first diagnosed with SLE, DLE and lupus nephri...

Hidden

•5 years ago

5 Replies

Lupus and Functional Medicine/ Paleo / Leaky Gut

Hi there, I wanted to ask if anyone has any (ideally success) stories of using a Paleo diet / supplements / Leaky gut protocol to decrease their Lupus symptoms...

Hi there, I wanted to ask if anyone has any (ideally success) stories of using a...

kopey

•5 years ago

5 Replies

Capsaicin cream- a cautionary tale

I have lupus, Raynaud's and erythromelalgia. The pain and burning in my feet from the EM has been waking me every night for years. The pain has been getting...

I have lupus, Raynaud's and erythromelalgia. The pain and burning in my feet fro...

skylark15

•5 years ago

22 Replies

Adverse effects of hydroxy or bad flare?

I have been recently diagnosed with borderline connective tissue disease and have been prescribed 200 mg of hydroxy per day (Bristol Laboratories pack). I took...

I have been recently diagnosed with borderline connective tissue disease and hav...

Genealogy66

•5 years ago

25 Replies

ds-Dna results

Hi, I am new to this site and thank you for letting me join 😊 I am in the process of trying to get a diagnosis to my ongoing health issues 😢 I have been...

Hi, I am new to this site and thank you for letting me join 😊 I am in the proce...

Cyprusgal

•5 years ago

10 Replies

I wish I was an ant 😂😂😂

Anti bodies 🙄

Lisalou19

•5 years ago

17 Replies

Antidepressants

I was taking Prozac 20 mg until few months ago then I stopped bc I thought they were causing my tiredness and weakness but now I know was nothing to do with it...

I was taking Prozac 20 mg until few months ago then I stopped bc I thought they ...

Melaxx

•5 years ago

7 Replies

Painful Second Toe

Hello everyone Knowing how our illnesses can come up with quirky symptoms I was just wondering has anyone had or is getting a very painful second toe?. I broke...

Hello everyone Knowing how our illnesses can come up with quirky symptoms I was ...

misty14

•5 years ago

37 Replies

Measuring UV

Hi everyone, Does anyone know of an app you can use to see what level of UV it will be (kinda like a weather forecast) Not sure if anything like that exists...

Hi everyone, Does anyone know of an app you can use to see what level of UV it ...

Leenie0811

•5 years ago

21 Replies

Research project seeking individuals with SLE (aged 18+)

Ella Constantinides a student at University of Central Lancashire is researching 'the patient-practitioner relationship, and how trust in physician has an...

Ella Constantinides a student at University of Central Lancashire is researching...

Paul_Howard

Partner•5 years ago

16 Replies

Plant based diet recipes/sites for new Vegan?

I have noticed since being on MTX that I always feel best when I avoid meats, breads and eat light, so I am looking at plant-based cooking, the thing is I have...

I have noticed since being on MTX that I always feel best when I avoid meats, br...

OneLove2019

•5 years ago

19 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for July 2019

Headaches

Why all these blistery spots at my age?

A second opinion and Wales again

Done and frustrated

Fun in the ☀️

Another enigma

My IRITIS is back while on MTX. How?

Microbladeing

Has anyone had their diagnosis taken away?

Reduced mobility

Heat and flare ups- still learning!

Missed my appointment

High white cell count

Scalp sensitivity/left side head pain

anyone with Low IG M

Sore wound

Hydroxychloroquine with Lupus

Hydroxychloroquine Survey Results

Pain in knees, elbow and joints w/o arthritis?

Alendronic acid (sodium alendronate): a dilemma...

Lupus and Functional Medicine/ Paleo / Leaky Gut

Capsaicin cream- a cautionary tale

Adverse effects of hydroxy or bad flare?

ds-Dna results

I wish I was an ant 😂😂😂

Antidepressants

Painful Second Toe

Measuring UV

Research project seeking individuals with SLE (aged 18+)

Plant based diet recipes/sites for new Vegan?

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Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

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