I have just made another post about my reduced mobility so apologies for that.
I was diagnosed with SLE in January 2018. In the time from diagnosis until now I have had the following antibodies: ANA, dsDNA, Mi2b, Ro52, Rheumatoid Factor and anti-cardiolipin.
For some reason UCTD was the diagnosis put on my consultants letters. In March when I saw my consultant she put in the letter to my GP "I have no doubt she has SLE and not sure why UCTD was on her letters."
Last week I was admitted to hospital for steroid infusions following severe muscle weakness. In this time I saw maybe 6 different consultants. Not once have I seen my own.
Today I saw they had written to my GP after my discharge. They said this:
"Please note ANA now negative. Considering possibility of Fibromyalgia diagnosis. Will explore when we see patient in September."
What is going on? I'm scared and confused. I have no doubt I have lupus. My consultant said the same thing only in March.