Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for July 2019

Genital sores

I’m new to this! I have developed ulcers down below. It’s so painful. My GP prescribed a steroid cream. How long do they last? I’m on day 3. Thanks in advance...

I’m new to this! I have developed ulcers down below. It’s so painful. My GP pres...

Sally80

•5 years ago

6 Replies

Hip Hip Hurrah!!!

Hi Everyone, Hope you are all ok and not suffering to much in this hot and sticky weather.Well as the title suggests I am booked in for a hip replacement on...

Hi Everyone, Hope you are all ok and not suffering to much in this hot and sti...

Mrsdoozer

•5 years ago

2 Replies

Systemic scleroderma??

OK so today I received a follow up letter from my last 6 month review where I mentioned I'd had a bad chest for some months now and a cough I just cannot...

OK so today I received a follow up letter from my last 6 month review where I me...

Sami1982

•5 years ago

3 Replies

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Dentist again 🙄. Gum disease in 3 areas with receding gums 😖. Should I mention this to rheumatologist?

I honestly have a mouth dryer than the place where you find camels 🐪, can’t think of the word My gums are receding, and to be honest I really fear ending up...

I honestly have a mouth dryer than the place where you find camels 🐪, can’t thi...

Lisalou19

•5 years ago

29 Replies

Plantar Fasciitis

Does anyone here have plantar fasciitis? Any advice on how to get better? Thanks in advance. Teresa

Does anyone here have plantar fasciitis? Any advice on how to get better? Thanks...

Loopydroopy

•5 years ago

22 Replies

Letter from Guys hospital

I received my letter about my appt I attended on the 18th June. Just wondered if someone could explain to me what the whole aspirin thing is about. Also what...

I received my letter about my appt I attended on the 18th June. Just wondered i...

LouLamb

•5 years ago

17 Replies

What is Flare Up ?

Just to get this clear in my head as my learning young......what is classed as flare up ???! .....and what is supposed to happen on a flare up please ????...

Just to get this clear in my head as my learning young......what is classed as f...

Mozart12

•5 years ago

9 Replies

PIP Help Required

Hello ! I was diagnosed with Lupus early this....right after I applied for PIP with fatigue and didn't get it. It seems it you don't tick their box's your...

Hello ! I was diagnosed with Lupus early this....right after I applied for PIP w...

Mozart12

•5 years ago

18 Replies

it is tooooo hot!!!!!

Just me needing the wisdom of all those who cannot deal with extreme heat. My on going symptoms of swelling, nausea, pain fog brain, IBS, tingling, Headache,...

Just me needing the wisdom of all those who cannot deal with extreme heat. My on...

thestorm

•5 years ago

44 Replies

Update from the doctors yesterday

Although it didn’t start well when the doctor was half an hour late and it wasn’t my usual doctor (this completely freaked me out as I requested my usual...

Although it didn’t start well when the doctor was half an hour late and it wasn’...

Leenie0811

•5 years ago

32 Replies

Hydroxychloroquin and fatigue

Hi folks I was prescribed 2 tablets a day of hydroxychloroquin, morning and night for 4 weeks then to drop to 1 a day. I felt taking 2 helped my fatige hugely...

Hi folks I was prescribed 2 tablets a day of hydroxychloroquin, morning and nig...

Sallmell

•5 years ago

30 Replies

Plaquenil - long term effects on children born to mothers taking it during pregnqncy

Hi! While i read everywhere that Plaquenil is safe during pregnancy, i wonder if anyone knows if there has been any long term follow up of children born to...

Hi! While i read everywhere that Plaquenil is safe during pregnancy, i wonder if...

jemozne

•5 years ago

5 Replies

Burning skin

Good morning everyone, I'm sure this may have already been covered as a topic. I recently had a few weeks of pompholyx eczema.I first got it almost 40 yrs ago...

Good morning everyone, I'm sure this may have already been covered as a topic. I...

Ladylupus

•5 years ago

6 Replies

Loss of awareness

Has anyone experienced complete loss of awareness of what's happening around them? I've recently had 2 such events where I had no idea of who I was, where I...

Has anyone experienced complete loss of awareness of what's happening around the...

Lizziequink

•5 years ago

35 Replies

Low Dose Doxycycline And Positive

I had to go on Low dose Doxycycline for what they thought was Rosacea or Discoid Lupus, so only 50mg a day after Lunch and I felt better with my pain reducing...

I had to go on Low dose Doxycycline for what they thought was Rosacea or Discoid...

riannabri

•5 years ago

1 Reply

Autoimmune? Lupus?

I’ve joined to see other peoples experiences of getting a diagnosis of lupus or other autoimmune disease is currently under testing some of comeback my ana...

I’ve joined to see other peoples experiences of getting a diagnosis of lupus or ...

Lmr83

•5 years ago

5 Replies

Doctors Appointment Today

Morning everyone, Hope you are well, I finally get to see my own doctor today at 5pm (waiting list for him was 3 weeks!) and I’m so overwhelmed! After the last...

Morning everyone, Hope you are well, I finally get to see my own doctor today at...

Leenie0811

•5 years ago

3 Replies

Tap or bottled water?

Morning everyone, just watched a very interesting programme about the food and drink we consume (BBC1 Horizon, The Honest Supermarket). It mentions that there...

Morning everyone, just watched a very interesting programme about the food and d...

Happy43

•5 years ago

49 Replies

Unhappy with regular monitoring by consultant who does not like patients having any input

I have stable lupus which nevertheless interferes with my quality of life as i know many of you will understand. My anti ds/dna levels are often in normal...

I have stable lupus which nevertheless interferes with my quality of life as i k...

driven

•5 years ago

22 Replies

Cramp

As mentioned before waiting patiently for my treatment to kick in and start making me feel better but whilst this is on going I've noticed in the last few...

As mentioned before waiting patiently for my treatment to kick in and start maki...

Hidden

•5 years ago

12 Replies

On the rollercoaster of diagnoses again.

Hi Folks. I need some advise. I am very anxious and feeling bummed. About 1.5 years ago I fell ill (about 1 year after the delivery of my first born). The...

Hi Folks. I need some advise. I am very anxious and feeling bummed. About 1.5 ye...

Stm252

•5 years ago

5 Replies

Food

My family keep asking what I have eaten today. The contast nagging in regards to what foods I have eaten is getting me down. The judgement is contast and I am...

My family keep asking what I have eaten today. The contast nagging in regards to...

SLE-Warrior

•5 years ago

3 Replies

Medication side effects

Depressed and Worried Because of Hydroxichloroquin had an eye field test at Eye Infirmary on Friday it didn't go well. Back home an hour, when Rheumatologist...

Depressed and Worried Because of Hydroxichloroquin had an eye field test at Eye ...

Cal66

•5 years ago

4 Replies

New local hospital consultant

Hey, So today I saw my new local hospital consultant. ( the last one was rubbish). She was a nice lady. She looked at my joints and said I was in a small...

Hey, So today I saw my new local hospital consultant. ( the last one was rubbis...

LouLamb

•5 years ago

3 Replies

Tea colored Urine???

Anyone ever get like brown coffee or tea colored urine that just went away suddenly? That happened after I took amoxicillin for an ear infection ( I am on...

Anyone ever get like brown coffee or tea colored urine that just went away sudde...

OneLove2019

•5 years ago

29 Replies

Just want to say thank you!

I wanted to say thank you to eveyone on here. You are all fab! The support and no judgement has made me feel that I can ask anything without fear of it being...

I wanted to say thank you to eveyone on here. You are all fab! The support and n...

Sallmell

•5 years ago

3 Replies

Headaches, is this normal?

Hi all, Need some reinsurance and advice please. I have had the normal lupus headaches for past few weeks. They were helped by the normal painkillers. On...

Hi all, Need some reinsurance and advice please. I have had the normal lupus hea...

sarahalice

•5 years ago

15 Replies

2 year symptom question, help

Hi all, I wanted to know and would like your advice on PMR. I know what it is, But NO Dr I have ever seen has mentioned it to me when I talk about my symptoms...

Hi all, I wanted to know and would like your advice on PMR. I know what it is, B...

thestorm

•5 years ago

13 Replies

Needle, singular

I’m going to post this but then leave bc I keep forgetting and I have an appointment. I look forward to responses. I don’t have numbness and tingling. I have...

I’m going to post this but then leave bc I keep forgetting and I have an appoint...

NeuronerdDoaty

•5 years ago

6 Replies

A Hydroxychloroquine question

Hoping I’m okay to ask another question as this forum is so helpful. I’ve been taking Hydroxychloroquine (Quinoic) for several years successfully controlling...

Hoping I’m okay to ask another question as this forum is so helpful. I’ve been...

Mabel1234

•5 years ago

3 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for July 2019

Genital sores

Hip Hip Hurrah!!!

Systemic scleroderma??

Dentist again 🙄. Gum disease in 3 areas with receding gums 😖. Should I mention this to rheumatologist?

Plantar Fasciitis

Letter from Guys hospital

What is Flare Up ?

PIP Help Required

it is tooooo hot!!!!!

Update from the doctors yesterday

Hydroxychloroquin and fatigue

Plaquenil - long term effects on children born to mothers taking it during pregnqncy

Burning skin

Loss of awareness

Low Dose Doxycycline And Positive

Autoimmune? Lupus?

Doctors Appointment Today

Tap or bottled water?

Unhappy with regular monitoring by consultant who does not like patients having any input

Cramp

On the rollercoaster of diagnoses again.

Food

Medication side effects

New local hospital consultant

Tea colored Urine???

Just want to say thank you!

Headaches, is this normal?

2 year symptom question, help

Needle, singular

A Hydroxychloroquine question

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