Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,742 members • 28,102 posts

All posts for April 2019

Breast Implants possibly the cause of my Connective Tissue Disease!

Hi all, I need to first thank Eekt (thank you! thank you!), who brought this to my attention by posting an article on this site about 4 months ago regarding...

Hi all, I need to first thank Eekt (thank you! thank you!), who brought this to ...

panda2

•5 years ago

25 Replies

Lupus rash or allergic reaction to hydroxychloroquine?

Good morning everyone, Yesterday morning I started to develop a rash. By the afternoon my body was covered in bright red spots. I ended up spending the night...

Good morning everyone, Yesterday morning I started to develop a rash. By the aft...

Jasmine22

•5 years ago

13 Replies

Headache

Hi Everyone, I was diagnosed with Lupus at the end of February. I am currently taking hydroxychloroquine (400mg a day) and I am due to see my Consultant in 2...

Hi Everyone, I was diagnosed with Lupus at the end of February. I am currently t...

Law1104

•5 years ago

10 Replies

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Mums birthday tomorrow feeling lost

Wish I had more direction my mums first heavenly birthday tomorrow 48years old forever young 😣🙏❤️ wish I had more direction with my own health my swallow and...

Wish I had more direction my mums first heavenly birthday tomorrow 48years old f...

Buckley123

•5 years ago

15 Replies

Anybody else feel like a vampire 🧛‍♀️

4 glorious days of sunshine covered in factor 50 and long sleeved shirt and a hat and fatigue and sore muscle and joints fantastic looking forward to the...

4 glorious days of sunshine covered in factor 50 and long sleeved shirt and a ha...

Ianrussell69

•5 years ago

16 Replies

Extreme low energy

Hi any tips , new to lupus

Willow1414

•5 years ago

13 Replies

Shoulder lump that's hard

Hi can someone please tell what this is on my shoulder it is very painful when I go to sleep it wakes me up at night went to my local gp he booked me for X-ray...

Hi can someone please tell what this is on my shoulder it is very painful when I...

Jakki27

•5 years ago

8 Replies

Sjögrens Dry Cough

As a newly-diagnosed ‘90% sure its SS’ sufferer, I’ve been left somewhat in the dark by my Rheumatologist. Quite literally, I’ve been left for 6 months to see...

As a newly-diagnosed ‘90% sure its SS’ sufferer, I’ve been left somewhat in the ...

L154C0

•5 years ago

14 Replies

Desperate times call for desperate measures. First up - B12 injections

Although I have made a nearly complete recovery from last year's myositis flare, my overall condition has worsened. Most especially, the "chronic...

Although I have made a nearly complete recovery from last year's myositis flare,...

whisperit

•5 years ago

53 Replies

Quick question on children and genetics.

Do any of you with an autoimmune disorder have a child who has one too? If so, is it the same one or a different one? Do you ever have similar symptoms or...

Do any of you with an autoimmune disorder have a child who has one too? If so, i...

Georgie-girl

•5 years ago

12 Replies

Great Videos from Dr Donald Thomas- Author of The Lupus Encyclopedia

Dr Donald Thomas author of "The Lupus Encyclopedia" has been a great help to me. He has 3 videos below that are great source of Lupus information and...

Dr Donald Thomas author of "The Lupus Encyclopedia" has been a great help to me....

Djlr

•5 years ago

5 Replies

I need some employment advice please. My SSP will finish in July and I don’t feel I’m well enough to go back, do I need to tell my employer

I wouldn’t say this time out from work has made me feel any better, but it has allowed me to be more proactive for my children and I’m no longer finishing work...

I wouldn’t say this time out from work has made me feel any better, but it has a...

Lisalou19

•5 years ago

15 Replies

Ibuprofen and Lupus

Hi. Just wondering, if possible from a medical professional, if it's possible to use ibuprofen patches for constant knee pain. I'm on the road to...

Hi. Just wondering, if possible from a medical professional, if it's possible t...

awareness75

•5 years ago

6 Replies

Mycophenolate and alcohol.

Just started on Mycophenolate 5 weeks ago. Went out to celebrate my birthday last night and had 2 and a half glasses of champagne. Got home, took my nighttime...

Just started on Mycophenolate 5 weeks ago. Went out to celebrate my birthday las...

LilyMistri2

•5 years ago

4 Replies

CBD oil - hints, tips and general advice?

So after thinking about it for a while I have plunged in and ordered some CBD oil to try to see if it helps with pain relief especially at night so I can come...

So after thinking about it for a while I have plunged in and ordered some CBD oi...

Mifford

•5 years ago

11 Replies

Scared. Help and advice please

I am so scared and hoping that you wonderful bunch here with so much knowledge can help me. After years of being treated for sjogrens syndrome, and PMR, it is...

I am so scared and hoping that you wonderful bunch here with so much knowledge c...

Georgie-girl

•5 years ago

28 Replies

Tinnitus and SLE, Plaquenil?

Hi - i have been on Plaquenil for 28 yrs with mild SLE. Recently dropped my dosage in half, and ended up with tinitus in one ear...anyone got any...

Hi - i have been on Plaquenil for 28 yrs with mild SLE. Recently dropped my dosa...

lawrencepark

•5 years ago

7 Replies

Prescription SPF50 sunscreen

Am I still able to get SPF50 sunscreen on prescription? I am particularly photosensitive and not only do I develop rash/sores on my skin from the most minor...

Am I still able to get SPF50 sunscreen on prescription? I am particularly photos...

Poethlyn008

•5 years ago

12 Replies

Newbie here.

I’m on the GCA/PMR site for two years and on prednisone all that time. Was not getting rid of pain and now possible diagnosed Sjögren’s/Lupus. However all...

I’m on the GCA/PMR site for two years and on prednisone all that time. Was not ...

Aleish

•5 years ago

10 Replies

Feel so useless, bad day today now too!

Just feel so useless and generally frustrated as I just cant do the things I really want to do cos of chronic pain and fatigue. Nothing major just everyday...

Just feel so useless and generally frustrated as I just cant do the things I rea...

Sara_A

•5 years ago

15 Replies

Newly diagnosed.

Hello everyone. New to the group and in fact the whole lupus “thing” so please bare with me, as I’m playing catch up on most of you as to what I’m dealing...

Hello everyone. New to the group and in fact the whole lupus “thing” so please b...

Bluetone

•5 years ago

12 Replies

Hello again

Sorry to bother you all but can Lupus affect the brain? Been feeling rather unlike myself this past week and think it stems from the brain. Any advice would be...

Sorry to bother you all but can Lupus affect the brain? Been feeling rather unli...

Wrexlu

•5 years ago

9 Replies

Hello

Hello, I am new here. I was diagnosed with SLE nine years ago. Since then I seem to be gathering diagnoses, Bechets, APS, Raynauds, Spleenamegaly, Neuralgia,...

Hello, I am new here. I was diagnosed with SLE nine years ago. Since then I seem...

CecilyParsley

•5 years ago

7 Replies

Hydroxychloroquine ~ sun sensitivity?

Hi everyone, I have Ra and was diagnosed with discoid Lupus last summer. My rheumy juggled my meds and added hydroxychloroquine 200mg. Approx a month after...

Hi everyone, I have Ra and was diagnosed with discoid Lupus last summer. My rheu...

RachelD1972

•5 years ago

9 Replies

Confused

Hello everyone Bit confused by something that happened today and I wondered if anyone had experienced anything like this before. I have tried to stay out the...

Hello everyone Bit confused by something that happened today and I wondered if ...

Sarahjj87

•5 years ago

8 Replies

Hydroxychloroquine

Hi, does anyone take 600 mg daily of Hydroxychloroquine? I have been on 400mg for nine years but my Rheumatologist has upped my dose to the 600 mg. I am...

Hi, does anyone take 600 mg daily of Hydroxychloroquine? I have been on 400mg fo...

CecilyParsley

•5 years ago

47 Replies

Rash after I stopped Prednisoen to MTX

Okay, so my rheumy doc was no help. I told her that since phasing off my steroids (I was taking 40 mg for vasculitis/pulmonary sarcoidosis) while taking MTX I...

Okay, so my rheumy doc was no help. I told her that since phasing off my steroid...

OneLove2019

•5 years ago

6 Replies

Update again

Have stopped methotrexate completely couldn't cope with the pain and severe infections. Spoke to my Lupus nurse and she agreed. Feel much better in that...

Have stopped methotrexate completely couldn't cope with the pain and severe infe...

Wrexlu

•5 years ago

Be the first to reply

In my desperate attempts over the years to find out what is wrong with me, I tried both of these strange diagnostic approaches 🙄

Ok, so I’m kind of having a little chuckle to myself over this, because it’s going around and around in my mind the lengths I have gone to, to try and get...

Ok, so I’m kind of having a little chuckle to myself over this, because it’s goi...

Lisalou19

•5 years ago

33 Replies

No medication for Easter Weekend- need emergency supply

Been trying to change Chemist from my last post to the group. However, this is proving to be a nightmare. The Chemist is behaving totally unprofessional and...

Been trying to change Chemist from my last post to the group. However, this is p...

denden

•5 years ago

5 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for April 2019

Breast Implants possibly the cause of my Connective Tissue Disease!

Lupus rash or allergic reaction to hydroxychloroquine?

Headache

Mums birthday tomorrow feeling lost

Anybody else feel like a vampire 🧛‍♀️

Extreme low energy

Shoulder lump that's hard

Sjögrens Dry Cough

Desperate times call for desperate measures. First up - B12 injections

Quick question on children and genetics.

Great Videos from Dr Donald Thomas- Author of The Lupus Encyclopedia

I need some employment advice please. My SSP will finish in July and I don’t feel I’m well enough to go back, do I need to tell my employer

Ibuprofen and Lupus

Mycophenolate and alcohol.

CBD oil - hints, tips and general advice?

Scared. Help and advice please

Tinnitus and SLE, Plaquenil?

Prescription SPF50 sunscreen

Newbie here.

Feel so useless, bad day today now too!

Newly diagnosed.

Hello again

Hello

Hydroxychloroquine ~ sun sensitivity?

Confused

Hydroxychloroquine

Rash after I stopped Prednisoen to MTX

Update again

In my desperate attempts over the years to find out what is wrong with me, I tried both of these strange diagnostic approaches 🙄

No medication for Easter Weekend- need emergency supply

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