Hello

[CecilyParsley]

Hello, I am new here. I was diagnosed with SLE nine years ago. Since then I seem to be gathering diagnoses, Bechets, APS, Raynauds, Spleenamegaly, Neuralgia, Underactive Thyroid, Hypertension,Pernicious Anaemia, Vitamin D deficiency, Depression, Osteoarthritis.It is so hard to live with sometimes, like it sucks the joy out of life.

[Vicky_t]

I know what you mean but

It could be worse

We are still alive. Maybe if we start feeling grateful every morning we are still here, things will get better

I am not always so positive but I had been listening to my favourite music and feel i can fight everything. lol

All of us have incredible power in us. If only we could trust ourselves!

Big hugs xxx

[CecilyParsley in reply to Vicky_t]

Thank you. Not feeling the positivity today but I am a fighter so tomorrow who knows. Hugs back to you Vicky

[Lupiknits in reply to CecilyParsley]

I’m sending a big hug too x

[alice_sportyauthor]

Once our immune system goes wrong, we are more likely to collect more auto immune disorders.

Everyone has ups and downs, but with your list of disorders, you are entitled to a few extra days feeling a bit miserable.

Possibly use it as a chance to review your priorities, what must be done, what can wait. And, possibly more importantly, what do I do that helps me feel better physically & mentally, and how do I fit in a bit more of those things. I used to think of a trip to the Spa as an expensive luxury, but I feel good after a session away from the chores, warm and relaxed, so I try to make sure I fit in a trip every now and then and I don’t see it as an expensive luxury anymore but an investment in my health and well being! I even direct family towards buying me vouchers for birthday presents. A trip to the Spa might be your idea of hell, but what could you do more of that makes you feel better?

I hope you are feeling more positive again now.

[CecilyParsley in reply to alice_sportyauthor]

Thank you so much Alice. I wish I could say that I am more positive but now I have TMJ Disorder. My damned mouth will not open more than a little and I am on liquid and soft diet, steroids and rest. At least my hubby will have some peace now 😂😂

[alice_sportyauthor in reply to CecilyParsley]

Oh that’s rubbish, I’ve had times when I’ve struggled with my jaw, really struggling to open it wide enough to brush my teeth, but fortunately mine has never lasted long, oh but it never really affected me talking!

[CecilyParsley in reply to alice_sportyauthor]

Ha ha don’t make me laugh, it hurts. I can talk better today but still cannot chew or yawn or open my mouth fully. I have tinnitus anyway but it is so loud and sharp stabbing pain up the side of my face. Miserable thing to have.