Sorry to bother you all but can Lupus affect the brain? Been feeling rather unlike myself this past week and think it stems from the brain. Any advice would be great.
Have been acting out of character and very stressed out. Is this the sign of something bad?
If you have Lupus S.L.E. it can any system in the body. I for example have white spots in my brain stem. Maybe Lupus, maybe meds, maybe not healthy enough life. After nine years my Lupus is somewhat contained by meds. However I still suffer Brain Fog & a lot of pain, joint & memory problems. No straight answer I believe, you will have to discuss further with your medical team. My very best wishes to you.
Thank you xx
Its called brain fog - honestly don’t worry. There are so many symptoms with Lupus. It is a constant battle and there are some worrying sensations - I have awful anxiety as do lots of Lupus sufferers. When you are concerned just put a key word into the search slot at the top right hand of this page and you will find and answer or 10 ! Also the Administrators will help you - best of luck.
webmd.com/lupus/qa/how-can-...
vector.childrenshospital.or...
Yes – Lupus affects every organ in the body, everyone is different. Most lupus patients do you have Lupus p yes – Lupus affects every organ in the body, everyone is different. Most lupus patients do you have Lupus fog. Causing confusion when we are not so well, words won't come as quickly, remembering things like we normally do when we are feeling better, and other mental issues can be affected.
The articles above help and there are many articles that talk about Lupus in the brain depending upon the symptoms you were having.
Just remember you're not alone, most of us do have the Lupus fog & other CNS lupus issues. It's just learning how to deal with them, I am telling your doctor all things that you find he may be experiencing and they could be new symptoms they need to know about. If you need to see a specialist your rheumatologist will send you where you need to go.
Hope you had a happy Easter, I'm glad that we have a place for us to reach out and help each other.
Curious, I looked up side effects of Hydroxychloroquine on line and maybe you should - apologies as I hadn’t seen anything like this before. Drugs.com - have a very comprehensive list of noted side effects, especially on the second page.
That sounds quite scary. Similar to Cas my first thought was side effects from meds. Anxiety and what might be a bit of mania can be caused by most of the pain meds, amytriptyline, tramadol, pregabalin... the list goes on... the GP started me on a different make of Fentanyl patch a year ago and I went totally balmy... they changed it as it was cheaper than the Durogesic ... i think you should book time with your pharmacist and see if they can research it for you if you are on multiple meds or had recent changes to your prescriptions. Then take that to your GP or rheumatologist.
Coping with long term pain and paraesthesias etc can cause brain fog but more significant cognitive / psychological effects from Lupus tend to have a slower onset from my experience...
Good luck and hope you get some answers soon.
Thank you I feel differently now. Sure it is medication related. Am going to mention it to my rheumatologist when I next see her as I am very sensitive to most medications. I am a nightmare to treat!
Get Rheum to check cytochrome P450 function if you have tendency to be sensitive to meds. Enzymes in liver break down meds. I have abnormalities and break down amitriptyline at double speed (they won’t prescribe it now) while my liver cannot break down others like the cox2 inhibitor anti inflammatories or trimethoprim antibiotic. Always good for them to know... and they no longer treat you like ur balmy...
Headaches, again. Steroids?
A second opinion and Wales again
Hello all - Just a wee update
Hello all!
hello all
