Posts - LUPUS UK | HealthUnlocked

LUPUS UK

32,002 members • 28,325 posts

All posts for January 2019

Any suggestions pls.....I need a chair with wheels for kitchen.

Hi guys, I'm having a bad few days where I'm stuck to the sofa as I'm stiff and drained and the washing up is piling up and I have no inclination at all to...

Hi guys, I'm having a bad few days where I'm stuck to the sofa as I'm stiff and ...

Sara_A

•6 years ago

8 Replies

Nonfluent speech

I have lupus. Along with all the other symptoms i am increasingly worried about my cognitive ability or lack of. My speech is sometimes nonfluent with me...

I have lupus. Along with all the other symptoms i am increasingly worried about ...

wilma1006

•6 years ago

21 Replies

Deformed

Has anyone’s hand gone like this and now stuck like that, it’s been stuck like that for about a year now and it will not statighten

Has anyone’s hand gone like this and now stuck like that, it’s been stuck like t...

Louiser18

•6 years ago

13 Replies

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Turmeric?

Was wondering if anyone had experience with taking turmeric supplements.... been reading a lot about it’s effects on reducing pain and inflammation so have...

Was wondering if anyone had experience with taking turmeric supplements.... been...

Jmcb123

•6 years ago

18 Replies

can my GP show me my x-ray?

I have just had a very dismissive letter from my rheumy after having an x-ray, she told me to take some codeine. If she had bothered to read my notes she would...

I have just had a very dismissive letter from my rheumy after having an x-ray, s...

suzannah16

•6 years ago

74 Replies

My sister of 52 is in induced coma doctors are telling us she not responding as she should it's only been two days r they giving up 2 easy

My sister 52 had heart attack was brought bk by cpr , she is in induced coma , they stopping meds but tell us she not responding An to exspect the worse , but...

My sister 52 had heart attack was brought bk by cpr , she is in induced coma , t...

Lisabones

•6 years ago

9 Replies

Medication dedication...

Morning all, I have just taken my meds and it's just occurred to me how does everyone take theirs? I take all my tablets in one go (6/7) and swig them down...

Morning all, I have just taken my meds and it's just occurred to me how does ev...

MarkJT

•6 years ago

14 Replies

IT WILL NEVER STOP ...

IT WILL NEVER STOP

Naz2005

•6 years ago

1 Reply

MOON FACE

😥😥😥

Naz2005

•6 years ago

4 Replies

KEEP WARM 🧤🧣🧦

😘😘😘

Naz2005

•6 years ago

Be the first to reply

Phantom electric shock

I am 57 and recently cured of Hep c. I have many Lupus like symptoms and I had a borderline positive ANA test but hoping the Hep caused it. My question is if...

I am 57 and recently cured of Hep c. I have many Lupus like symptoms and I had a...

Shishin

•6 years ago

6 Replies

Meds & Work update

Hello everyone, Hope you've had a good start to the new year. I have only been back to work for 2 weeks. 2 weeks right I cannot believe it, feels as if i...

Hello everyone, Hope you've had a good start to the new year. I have only been...

LouLamb

•6 years ago

21 Replies

Hair loss....?

Hi all I’m new on here, Diagnosed 2012, suffered with hair loss, bald patches, however my lupus is well Managed I have very thin hair around the front of my...

Hi all I’m new on here, Diagnosed 2012, suffered with hair loss, bald patches, ...

Hslamal

•6 years ago

3 Replies

Please help people living in Pembrokeshire, Wales access Lupus Centres of Excellence in England

Lupus patients living in Pembrokeshire are being denied access to Lupus Centres of Excellence in England. There are no Centres of Excellence in Wales. We...

Lupus patients living in Pembrokeshire are being denied access to Lupus Centres ...

Wendy39

•6 years ago

5 Replies

Raynauds Disease, Lupus

Hi Everyone, how are we all doing? Happy New Year! Winter, winter wish I could skip this season - am sure not the only one who feels this way. I write this...

Hi Everyone, how are we all doing? Happy New Year! Winter, winter wish I could ...

denden

•6 years ago

16 Replies

First post

l have been a member for a few years, but never had the courage to post until now. I do not have a lupus diagnoses, but cant help feeling this is what l......

l have been a member for a few years, but never had the courage to post until no...

sobeit

•6 years ago

7 Replies

Reynaud's

Hi just a question to anyone that has reynauds. This happens to my hands when in the house. Also the skin starts to crack on my fingers and they get sore. It's...

Hi just a question to anyone that has reynauds. This happens to my hands when in...

Hidden

•6 years ago

15 Replies

Managing Work

Hi, I am currently under a lot of pressure from workload and I was wondering if there are good ways to cope with it as I often don't feel up to it. btw- This...

Hi, I am currently under a lot of pressure from workload and I was wondering if ...

redredblue

•6 years ago

8 Replies

Any experience or ideas please adapting pushchair when hand/wtists bad??

It's a real long shot and really random question but thought its worth a try as cannot find any info anywhere. I'm having trouble with my hands and wrists...

It's a real long shot and really random question but thought its worth a try as ...

Sara_A

•6 years ago

5 Replies

Anti ds dna

Hi all. My anti ds dna was 8 in may last year. That is classed as negative. I am planning on arranging a private ana ana anti ds dna test through medichecks....

Hi all. My anti ds dna was 8 in may last year. That is classed as negative. I am...

Hidden

•6 years ago

53 Replies

Hydroxchloroquine and flare ups

Hi everyone, I've posted a few times here the last few weeks about this horrendous lupus flare I'm stuck in. I have a few questions about hydroxycloroquine...

Hi everyone, I've posted a few times here the last few weeks about this horrendo...

SarahLuna

•6 years ago

24 Replies

Hydroxychloroquine side effects

I am newly diagnosed and now on hydroxychloroquine however it is giving me insomnia, nightmares and low mood. Will these side effects wear off in time? Would...

I am newly diagnosed and now on hydroxychloroquine however it is giving me insom...

bleeny

•6 years ago

11 Replies

Relationship breakdown

This might not be the place for this but I HATE what this disease has done to my life and I know many of you will understand. I’ve never felt so alone. I’ve...

This might not be the place for this but I HATE what this disease has done to m...

Polly2Cats

•6 years ago

21 Replies

GOT MY PIP 🤗

Hello all ... After a 6 month wait I was awarded my pip for my lupus and fibromaligia. I qualified for the enhanced rate of care at home and higher rate...

Hello all ... After a 6 month wait I was awarded my pip for my lupus and fibrom...

LupieLady45

•6 years ago

23 Replies

What pain killers do people use

Hi everyone, at the moment I only take plaquenil and 3 mg steroids for my SLE. I take others for angina. I have been on a lot more medication in the past but...

Hi everyone, at the moment I only take plaquenil and 3 mg steroids for my SLE. I...

Gillyg

•6 years ago

14 Replies

Hello!

I'm new here and looking forward to learning more about how I can live with lupus. I have support from my family but it'd be nice to share experiences with...

I'm new here and looking forward to learning more about how I can live with lupu...

MarkJT

•6 years ago

6 Replies

Treating thrush

Hi everyone, I've recently had several courses of antibiotics for chest Infections and uti's. I have very mild symptoms of thrush at the moment, and have been...

Hi everyone, I've recently had several courses of antibiotics for chest Infectio...

Biddy47

•6 years ago

6 Replies

Anyone an expert on wee and visible white things in it/ or had similar please! 😬

Hello, I’ve just been in hospital for a lupus flare followed by a few days out then back in for a week with a kidney infection. I’ve been so filled with drugs...

Hello, I’ve just been in hospital for a lupus flare followed by a few days out t...

Melba1

•6 years ago

32 Replies

Andy Murray's pain relief

I can sympathise with Andy's painful hips and being unable to get his socks on but what I would like to know is what pain relief did he get that enabled him to...

I can sympathise with Andy's painful hips and being unable to get his socks on b...

suzannah16

•6 years ago

48 Replies

Lupus PIP result

Some advice please. Feeling very sad. I received my PIP result today and lost my higher rate mobility. I’m mortified at the fact that they’ll take my car away...

Some advice please. Feeling very sad. I received my PIP result today and lost my...

LilyMistri2

•6 years ago

12 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for January 2019

Any suggestions pls.....I need a chair with wheels for kitchen.

Nonfluent speech

Deformed

Turmeric?

can my GP show me my x-ray?

My sister of 52 is in induced coma doctors are telling us she not responding as she should it's only been two days r they giving up 2 easy

Medication dedication...

IT WILL NEVER STOP ...

MOON FACE

KEEP WARM 🧤🧣🧦

Phantom electric shock

Meds & Work update

Hair loss....?

Please help people living in Pembrokeshire, Wales access Lupus Centres of Excellence in England

Raynauds Disease, Lupus

First post

Reynaud's

Managing Work

Any experience or ideas please adapting pushchair when hand/wtists bad??

Anti ds dna

Hydroxchloroquine and flare ups

Hydroxychloroquine side effects

Relationship breakdown

GOT MY PIP 🤗

What pain killers do people use

Hello!

Treating thrush

Anyone an expert on wee and visible white things in it/ or had similar please! 😬

Andy Murray's pain relief

Lupus PIP result

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