Hello I’ve been taking hydroxcloroquine at 400mg a day for nearly 3 years. The crippling fatigue, fevers and rash are largely under control. I still have pain in my muscles and joints most days and still suffer with inflammation of soft tissue.
I’ve tried reducing dose 18 months ago and was a disaster, ended up on steroid in hospital.
But now I’m finding that if I get a cold or virus my body just can’t fight it and I’m ill for at least a month at a time. So I’m wondering if reducing hydroxy would help with that?
Has anyone successfully reduced dose once symptoms were mostly under control?
I have SLE, Sjogrens and coeliac disease.
Hi Beau I'm sorry that I can't answer your question but if it's any help I'm only on 200mg of Hydroxychloroquine but I have the same problem. Whenever I get an infection it takes weeks and weeks to recover. It was never like this before autoimmune condition.
Hope get an answer. X
Me either, it’s really rubbish!
Thanks for your reply 🙂