Had my rheumy nurse appointment today. Well it went a lot better than i could have expected. My liver result was 120 and has gone down to 90, so it is slowly coming down and she has told me it will sort itself out.
She has advised for me not to be put back on methotrexate at all, as it is not the drug for me. She has given me 2 leaflets for 2 different meds which she thinks the consultant might try next. One being with an L which causes liver problems so will probably be the last one to try. One that begins with an S something Acid i think.
She wants the consultant to see me ASAP, so she's trying to push through an appointment. My one was for January i have currently got a new one for November but the nurse wants me to be seen within 4 weeks really. Otherwise we could be in big trouble without me being medicated to try and help the lupus stuff.
I am hoping to get an appointment sooner and to hopefully discuss new meds. It is funny because when you go to the first appointment the only ones they want to mention is methotrexate or hydroxy. So i never realised there was more drugs out there to help. I thought i was at the end of my meds journey and nothing could be done, but i was clearly wrong !!!
Also I have had lots of hair loss recently, I think it started around the time the liver result went up a month and half ago. So i am hoping when the result goes back to normal the hair loss might stop as well. I have not had hair loss pre diagnosis 3 years ago .