Hi all: Hi I recently had an EMG test because of my... - LUPUS UK

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Angellealea1 profile image
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Hi I recently had an EMG test because of my blood work & symptoms & inflammatory, I have Sjogren's Syndrome too.

I have a positive Anti-Ro antibody & my EMG test showed abnormalities in my muscles, but nerve test was Okish, I do have other abnormal blood work, but my consultant was investigating these.

I'm wondering has anyone else had this abnormal blood work? What Autoimmune diseases have you got, because I hear from my consultant that Myositis can be linked. Starting new meds soon, which are Azathiprine, I'm hoping these will work as a whole to be honest, but if it does come back I have Myositis, as well, then I will possibly need Steroids too.

Thanks for listening x

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whisperit profile image
whisperit

Hello Angellealea1

I developed myositis earlier this year - in fact the first indication was a raised CK level about a year ago. By March, I had noticed leg weakness and urged my GP to repeat the CKs, which were elevated to 2100 or so (that's obviously way over normal levels, but isn't especially high for polymyositis). The symptoms of leg weakness, pins and needles in my thighs made the diagnosis pretty easy, so the muscle biopsy result was no surprise - PM "with unusual features". Treatment was with methyl prednisolone, and CK levels returned to normal after about 6 weeks. Muscle weakness hasn't improved yet, ...watch this space :)

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