Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,918 members • 28,239 posts

All posts for November 2017

Visitor that doesn't understand my ill.

My mum's friend visited from Africa, on the week i feel washed out. I have had a tough few weeks and i have tried to rest but i have been having hospital...

My mum's friend visited from Africa, on the week i feel washed out. I have had a...

ijeasike

•7 years ago

14 Replies

In patient at St Thomas

Just thought I’d let you know.. I saw Prof Cruz for first time on Thur 9th Nov. I was with him for over an hour. He was very good, he was also very concerned...

Just thought I’d let you know.. I saw Prof Cruz for first time on Thur 9th Nov. ...

Wolf1

•7 years ago

9 Replies

Brittle and discoloured toenails

I have had brittle and discoloured toenails for a long time, I run regularly which probably doesn't help nail health. However from what I have read my lupus...

I have had brittle and discoloured toenails for a long time, I run regularly whi...

Johnnyb10

•7 years ago

6 Replies

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Hive like things under skin

I get hive like bumps under my skin on my hands that hurt swell and are very itchy. The creams they give me don't work does anyone else get these.

I get hive like bumps under my skin on my hands that hurt swell and are very itc...

shelleykostner

•7 years ago

1 Reply

Hello, new here

Hi all, a quick introduction. I’m a 52 yr old woman who lives in the Midlands. I have B12d and Hashimotos. Self medicating. I am being investigated- on my...

Hi all, a quick introduction. I’m a 52 yr old woman who lives in the Midlands. I...

Bluedragon

•7 years ago

9 Replies

Weird bruising on fingers and toes....

I suffer from Lupus and APS and for the past few months I have been getting bruising on my fingers and toes. It starts with a painful swelling either under my...

I suffer from Lupus and APS and for the past few months I have been getting brui...

tiredmum

•7 years ago

7 Replies

Can anyone settle this for me?

I'm a member of a nothing-to-do-with-lupus forum and the question of medical marijuana came up. Most the the members live in states in the US where marijuana...

I'm a member of a nothing-to-do-with-lupus forum and the question of medical mar...

Lupiknits

•7 years ago

25 Replies

Diagnosis

Hello everyone, I just turned 18 and for roughly 6 months I have had lower right abdominal pain, upon an appointment with my GP and a blood test she realised...

Hello everyone, I just turned 18 and for roughly 6 months I have had lower right...

ethan1999

•7 years ago

10 Replies

Employment law

Hello everyone I need a bit of advice. I have 3 hospital appointment next week and I have asked my husband to take me and he said he can only take me to one...

Hello everyone I need a bit of advice. I have 3 hospital appointment next week...

Tulipano

•7 years ago

13 Replies

Plaquenil allergy - anyone had a similar experience?

Have reacted badly to Plaquenil X 3 this year. Diagnosed with MCTD in 2002 and took prednisolone and azathioprine for a few years before ceasing all meds in...

Have reacted badly to Plaquenil X 3 this year. Diagnosed with MCTD in 2002 and t...

LucyDJ

•7 years ago

23 Replies

PIP and Lupus

Hi All, looking for some advice, I recently received my PIP decision, stating that my mobility is normal and not entitled to it. My normal is not being able to...

Hi All, looking for some advice, I recently received my PIP decision, stating th...

CJ85

•7 years ago

12 Replies

RO52 in pregnancy

Can anyone tell me what RO52 will mean to pregnancy? My Rheumy says I need weekly scans from week 16-28, my not very knowledgeable Obstetrician said he doesn’t...

Can anyone tell me what RO52 will mean to pregnancy? My Rheumy says I need weekl...

Stef82

•7 years ago

4 Replies

Help needed with diagnosis

Hi there I’ve been fighting with my health now on and off for about 13 yrs, I always get sent to a neurologist but after having some blood test done and...

Hi there I’ve been fighting with my health now on and off for about 13 yrs, I al...

Tinks19790

•7 years ago

29 Replies

An idea

If we could give Louis C.K. SLE and got him to log on to this site, he could be Louis C.K. on Lupus U.K.

If we could give Louis C.K. SLE and got him to log on to this site, he could be ...

Hidden

•7 years ago

2 Replies

Menses

Dears I have noticed my symptoms get realy bad the week before my cycle and getting better with begining of the period is this common?? Iam nearly menapausal...

Dears I have noticed my symptoms get realy bad the week before my cycle and gett...

Southall

•7 years ago

6 Replies

Intro

Hello my name is Duana. I am 32 years old. At the age of 5 I was having symptoms and problem, but at that time no one heard of lupus. At 18 I was watching...

Hello my name is Duana. I am 32 years old. At the age of 5 I was having symptoms...

BrownSugar01

•7 years ago

3 Replies

New Medication- not working?

I know it's not directly related to lupus but I have bad sleep problems due to lupus and I know that lupus can cause this and depression to occur more...

I know it's not directly related to lupus but I have bad sleep problems due to l...

Essie13

•7 years ago

4 Replies

Extreme Hair Loss

Hello everyone, I hope your all ok & doing somewhat as well as you can be. As you can see from the picture I've attached, I have excessive hair loss. That...

Hello everyone, I hope your all ok & doing somewhat as well as you can be. As ...

LauraMk30

•7 years ago

10 Replies

Following on from my genetics post, an interesting point from my geneticist.

What do you think ? Make sense?

Georgie-girl

•7 years ago

23 Replies

Flare from chemical sensitivity?

Hi all. Hope today is a good day for you. I am wondering if anyone seems to suffer lupus flares from chemical reactions? Since my diagnosis I have this...

Hi all. Hope today is a good day for you. I am wondering if anyone seems to suf...

Hidden

•7 years ago

9 Replies

Lupus and itching.

Does anyone have awful itch,iv tried everything,cant stand this,its wakening me up,now on sleeping tablets,its really debilitating.

Does anyone have awful itch,iv tried everything,cant stand this,its wakening me ...

Jeffscott69

•7 years ago

10 Replies

Help I'm Lost

Hello I was looking all over the web to find info about lupus and what it is.....I have had hair loss for a couple of months now I visit my doctor and he run...

Hello I was looking all over the web to find info about lupus and what it is.......

Vickmt

•7 years ago

9 Replies

Work and Pensions Select Committee:PIP

My tiny brain is frozen but I think, after a link from Paul, I contacted my MP about the difficulties we have with PIP across many conditions. I've had an...

My tiny brain is frozen but I think, after a link from Paul, I contacted my MP a...

Lupiknits

•7 years ago

2 Replies

Crappy day

Well today has not been the best. Back at work this week after 4 months off with nephrotic syndrome and grade 4 lupus nephritis. Thought I was ready to go...

Well today has not been the best. Back at work this week after 4 months off with...

Twad

•7 years ago

7 Replies

Fragmin

Hi, I was diagnosed with Lupus at the age of 21 I am now 27. I have been on hydroxychlorine and prednisolone since then too. I just recently found out I am...

Hi, I was diagnosed with Lupus at the age of 21 I am now 27. I have been on hy...

Maygraham27

•7 years ago

3 Replies

Bruised feeling

Today I feel bruised all over it is horrible. Does anyone else get this?

Tinkerjack1912

•7 years ago

13 Replies

bad headache....cant even stand.

from morning I m having serious headache.I cant even move my head.don't know the reason...but I cnt tolerate it

from morning I m having serious headache.I cant even move my head.don't know the...

ava97

•7 years ago

13 Replies

Starting an elimination diet. Making sure it works. Getting professional help.

I have been through the process of an elimination diet. It works but under supervision. I employed a nutritionalist but it was expensive. Going back to work...

I have been through the process of an elimination diet. It works but under supe...

sabine

•7 years ago

1 Reply

Update on wbc

Just a wee update on wbc , its up again for now . The rheumy Nurse spoke to the consultant and she has advised me to stay off the plaquenil for now although it...

Just a wee update on wbc , its up again for now . The rheumy Nurse spoke to the ...

weathervane

•7 years ago

6 Replies

Hydroxy/quinoric

Been on these for about 6 weeks now. Feeling no benefit at all. 3 months seems an age away as I was told it could take up to 3 months to feel any benefit. I...

Been on these for about 6 weeks now. Feeling no benefit at all. 3 months seems a...

Mandypandy1969

•7 years ago

7 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for November 2017

Visitor that doesn't understand my ill.

In patient at St Thomas

Brittle and discoloured toenails

Hive like things under skin

Hello, new here

Weird bruising on fingers and toes....

Can anyone settle this for me?

Diagnosis

Employment law

Plaquenil allergy - anyone had a similar experience?

PIP and Lupus

RO52 in pregnancy

Help needed with diagnosis

An idea

Menses

Intro

New Medication- not working?

Extreme Hair Loss

Following on from my genetics post, an interesting point from my geneticist.

Flare from chemical sensitivity?

Lupus and itching.

Help I'm Lost

Work and Pensions Select Committee:PIP

Crappy day

Fragmin

Bruised feeling

bad headache....cant even stand.

Starting an elimination diet. Making sure it works. Getting professional help.

Update on wbc

Hydroxy/quinoric

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