LUPUS UK
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Intro

Hello my name is Duana. I am 32 years old. At the age of 5 I was having symptoms and problem, but at that time no one heard of lupus. At 18 I was watching Discovery health (the monster inside me). I went and asked to be tested for lupus(I was told there was no test for that) after going to a few more doctors I was diagnosed with lupus, fibromyalgia, RA, and a few other things. I been taking so many meds it crazy. Now I'm having dental issues. I'm so sad and upset about it. I really need a support team that knows what I'm going through

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Welcome Duana,

It can be scary and overwhelming when you get a diagnosis at first. If you are based in the UK, in addition to your primary care team, you may find that there is a specialist nurse attached to your rheumatology team ho you can contact for advice in between reviews?

Since my own diagnosis, I've also found this forum to be a life-saver in terms of helping me when I have been feeling especially low, as well as giving me ideas for how to cope with the complexities of our illnesses. I hope you find it helpful too x

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I care...and I am sorry ...age 5, how difficult it must have been and be for You...... The teeth issues I have been reading about scare me also...I have always had such strong teeth...will that be taken from me too??? Sighhhhhh

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Hi Duana,

Welcome to the LUPUS UK HealthUnlocked Community!

We offer a free information pack which contains factsheets, guides and a list of helplines. To download or request this pack, please click here: lupusuk.org.uk/request-info...

According to The Lupus Encyclopedia, certain medication such as Nystatin can cause recurrent dental problems like dental cavities and gingivitis (inflammation of the gums). If you are experiencing such symptoms, it is important to discuss this with both your doctor, in terms of reviewing medication and your dentist, for advice and possible treatment.

Sometimes, certain situations can be overwhelming which is why talking to someone can help relieve worries and anxiety that you may have. If you would like someone to speak to, we can provide you with LUPUS UK contacts who you can chat with over the telephone. These contacts are volunteers who mostly have lupus themselves; they are not medically trained but are there to offer support and understanding. If you would like a contact to speak to, you can email me at chanpreet@lupusuk.org.uk .

Please let us know how you get on, wishing you all the best.

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