Can anyone tell me what RO52 will mean to pregnancy? My Rheumy says I need weekly scans from week 16-28, my not very knowledgeable Obstetrician said he doesn’t even think I have Lupus (Oh great, non specialist to a difficult Illness- let’s just not take all the steroids anymore as in your under-qualified opinion I‘m fine without them) and scheduled ONE heartscan for Baby in week 22.
Im now 16 weeks, have been pushing my Rheumy to get a referral to St Thomas/London on Monday next week to see Specialist who knows about pregnancy and Lupus.
I would like to be a bit prepared as I know I’ll walk out of there with more questions than I had before.
Anyone knows anything about this? My RO/LA test is both negative but RO 52 was detected, ANA 1:2560, speckled Pattern, Diagnosed June 17, unplanned pregnancy as I came off Steroids and was supposed to have my next flare up in the very distant future, that future turned out to be one week away and I fell pregnant in that time. I blame the Steroids as they are the same as Woman take during IVF and obviously blaming my husband. Because I can.
Now back on Steroids and Hydroxychloroquine + Aspirin.
Any info is appreciated.
I’ve had to terminate my last pregnancy in 2016 at nearly 17 weeks due to Patau syndrome (Chromosome defect), the Baby wouldn’t have survived.
This Baby is very much wanted but I can’t be happy yet because i don’t know what is going to happen and if Baby is in danger.