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LUPUS UK

32,145 members • 28,486 posts

All posts for July 2017

Turned down

Got my letter from pip today only 1 week after assessment . Got turned down . Only got 6 points . Apparently I can just use aids to prepare a meal , wash and...

Got my letter from pip today only 1 week after assessment . Got turned down . On...

LouLamb

•7 years ago

16 Replies

Having Lupus and being a carer.

Hi everyone. My gorgeous cherub is 22 and has Autism.He receives high rate both of PIP. I claim carers allowance for him. We have carers coming him to take him...

Hi everyone. My gorgeous cherub is 22 and has Autism.He receives high rate both ...

pinkandfluffy

•7 years ago

3 Replies

London Bridge Hospital

Hello, I have decided to see a Lupus Specialist as I have not been very happy with my Rheumatologist at my local hospital. Unfortunately I only get to see a...

Hello, I have decided to see a Lupus Specialist as I have not been very happy wi...

fifi6

•7 years ago

2 Replies

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GASP! I got a follow on appt when they said I would!

After much fuss earlier this year when my new GP was exasperated on finding I hadn't been seen by a rheumy for about 15 months, I did get an expedited appt. I...

After much fuss earlier this year when my new GP was exasperated on finding I ha...

Lupiknits

•7 years ago

1 Reply

GI problems with Sjögren's - how to cope?

Hi All. I know Barnclown has posted several excellent and informative posts about this so this will be brief. I seem to have reached a dead end with my liquid...

Hi All. I know Barnclown has posted several excellent and informative posts abou...

Hidden

•7 years ago

70 Replies

Anaemia

Hi lovelies, do any of you get anaemia? I've never had it before but was told this morning that my Hb has dropped to 10.4. Ooooeeeer!

Hi lovelies, do any of you get anaemia? I've never had it before but was told t...

Rubylu

•7 years ago

1 Reply

Most likely Lupus and Sjogrens..

Saw a rheumy for the first time today. Seemed very competent and thorough. Says very likely Lupus and Sjogrens, with Reynaud's (and looking into EM, had not...

Saw a rheumy for the first time today. Seemed very competent and thorough. Says ...

bengali

•7 years ago

1 Reply

Lupus diagnosed 5yrs ago!

I was diagnosed with lupus by my primary care doctor and a rheumatologist 5yrs ago , I had the rheumatologist check my blood work three times! Besides a lot...

I was diagnosed with lupus by my primary care doctor and a rheumatologist 5yrs ...

Ally2010

•7 years ago

3 Replies

Red dots

Every now and then i get a red, flat, pin prick sized dot on my skin, any where on my body. It doesn't hurt or itch and after a few days it fades to brown,...

Every now and then i get a red, flat, pin prick sized dot on my skin, any where ...

salbee55

•7 years ago

8 Replies

Hydroxychloroquine. Time to see any benefits? Side effects?

Hi all, After a long journey of many years and worsening systemic symptoms (same as most people here I believe) I was during June diagnosed with UCTD and...

Hi all, After a long journey of many years and worsening systemic symptoms (sa...

Poppyfields65

•7 years ago

11 Replies

No word ...

So I went to the hematologist a week ago and they did follow up white blood count test as I was referred there by my rheumatologist. I havent heard anything...

So I went to the hematologist a week ago and they did follow up white blood coun...

jennyall12

•7 years ago

Be the first to reply

Please will someone help me

I've been putting all my trust in seeing a rheumatologist as I have pericarditis , effusion,Costochondritis ,mouth ulcers, facial rash, painful weak hands and...

I've been putting all my trust in seeing a rheumatologist as I have pericarditis...

Nikkilama

•7 years ago

23 Replies

Finally some GOOD NEWS!

Saw the rheumy yesterday and for the first time is four years got some good news! C3 & C4 are trending up - despite the sun and heat - my liver is back to...

Saw the rheumy yesterday and for the first time is four years got some good news...

katidid

•7 years ago

3 Replies

Myocardial perfusion scans

In case anyone else has had this suggested to them, here's my experience this week. Basically, it's a radionuclid scan of the heart to see if there are any...

In case anyone else has had this suggested to them, here's my experience this we...

whisperit

•7 years ago

12 Replies

New To Page

Hi everyone new to this life of Lupus as well and all I can say it sucks but I'm working on keeping it at a controllable stage as I know it can become a...

Hi everyone new to this life of Lupus as well and all I can say it sucks but I'...

Lozano53

•7 years ago

2 Replies

Lupus

So I have been diagnosed with lupus and no kind of treatment as of yet. I have nasal sores That are so painful. I have tried neosporin and different things...

So I have been diagnosed with lupus and no kind of treatment as of yet. I have n...

Misery123

•7 years ago

2 Replies

Hello - New Here

Hello. I saw a rheumatologist yesterday who said he felt my symptoms fitted lupus more than anything thing else, although I am still undiagnosed as I don't...

Hello. I saw a rheumatologist yesterday who said he felt my symptoms fitted lup...

newbs36

•7 years ago

5 Replies

Dental Implants

I have systemic lupus, Rheumatoid Arthritis and an under active thyroid. Over the past 6 years my teeth have been crumbling away. I've had lots of fillings...

I have systemic lupus, Rheumatoid Arthritis and an under active thyroid. Over t...

SLEepyhead123

•7 years ago

2 Replies

PIP...

So I go for my appeal this Friday....Only given seven days notice an have to travel over an hour to got there. Has anyone got any advice or tips as I know I'm...

So I go for my appeal this Friday....Only given seven days notice an have to tra...

Beverley_F

•7 years ago

9 Replies

Lupus

My hands are drawing painfully and my feet have started

Wtellis

•7 years ago

5 Replies

Trying to stay positive

Rough week....hematologist told me to get ultrasound of breast after examinine. Breast could be hormonal. Not necessarily early on breast cancer. But, my...

Rough week....hematologist told me to get ultrasound of breast after examinine. ...

Natura

•7 years ago

7 Replies

New here, hi.. I'm Heather

I am new to discussing my journey with lupus.. I was diagnosed at 29, after having a REAL stroke I thought was bell's palsy.. I have since been on a whirlwind...

I am new to discussing my journey with lupus.. I was diagnosed at 29, after havi...

Heather77619

•7 years ago

8 Replies

Sick after going to dentist.

I've been sick for 1 1/2 months now. I had 5 teeth drilled and refilled and now I have flu like symptoms. Is it the toxins from old metal released into my...

I've been sick for 1 1/2 months now. I had 5 teeth drilled and refilled and now ...

Rahmon

•7 years ago

5 Replies

So low

Hi everyone I just had to come on here I'm feeling so low and depressed I feel like I'm drowning in life in a deep tank of water when everyone else is......

Hi everyone I just had to come on here I'm feeling so low and depressed I feel l...

Hidden

•7 years ago

14 Replies

What can I put on a butterfly rash to ease the itching & reduce the inflammation?

I only had an hour in the sun yesterday and the rash has come up on my face across my nose and cheeks with quite a lot of raised lumps. Any suggestions what I...

I only had an hour in the sun yesterday and the rash has come up on my face acro...

MissFG

•7 years ago

6 Replies

In relation to flare ups....

Hey all, So far since diagnosis (7/7/17) and medication plan I have: -woken to a bad Botox job on one side of my upper lip -had random restrained...

Hey all, So far since diagnosis (7/7/17) and medication plan I have: -...

Clover85

•7 years ago

5 Replies

Heat bumps

This is my first time in the Spanish sun since my diagnosis UCTD (?SCLE) and we've managed to get 2 weeks of 33+degrees with full on sun!! Whilst I've not...

This is my first time in the Spanish sun since my diagnosis UCTD (?SCLE) and we'...

Thereisalight

•7 years ago

5 Replies

Starting Rituximab in the morning

Hello Folks I am following on from my 'mycophenolate begone" post after being informed about biologics. Tomorrow I commence with rituximab. I have written a...

Hello Folks I am following on from my 'mycophenolate begone" post after being in...

Dragonfly4

•7 years ago

3 Replies

Biopsy appointment update

Hi My biopsy was 2day but unfortunately they couldn't take any sample. Apparently i have very wobble breast so the lump tends to move so the nurses struggled...

Hi My biopsy was 2day but unfortunately they couldn't take any sample. Apparentl...

ijeasike

•7 years ago

2 Replies

ICT Test

As apart of my apprenticeship i have to do level 2 functional skills English and level functional skills ICT. I have found out that i passed my ICT and passed...

As apart of my apprenticeship i have to do level 2 functional skills English and...

LouLamb

•7 years ago

8 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for July 2017

Turned down

Having Lupus and being a carer.

London Bridge Hospital

GASP! I got a follow on appt when they said I would!

GI problems with Sjögren's - how to cope?

Anaemia

Most likely Lupus and Sjogrens..

Lupus diagnosed 5yrs ago!

Red dots

Hydroxychloroquine. Time to see any benefits? Side effects?

No word ...

Please will someone help me

Finally some GOOD NEWS!

Myocardial perfusion scans

New To Page

Lupus

Hello - New Here

Dental Implants

PIP...

Lupus

Trying to stay positive

New here, hi.. I'm Heather

Sick after going to dentist.

So low

What can I put on a butterfly rash to ease the itching & reduce the inflammation?

In relation to flare ups....

Heat bumps

Starting Rituximab in the morning

Biopsy appointment update

ICT Test

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