I've been putting all my trust in seeing a rheumatologist as I have pericarditis , effusion,Costochondritis ,mouth ulcers, facial rash, painful weak hands and many many other symptoms. Today I received a letter from Rheumatology cancelling my appointment and without ever even speaking to me or seeing me, telling me I have fibromyalgia and no treatment is needed. I have been in chronic pain for 15 weeks and battled to get anyone to hear or believe me. This has crushed the last bit of hope I had out of me and totally disempowered me. Of course I have symptoms of fibromyalgia!
But I also have many more that are not.
The most screamingly obvious thing is that fibromyalgia does not cause inflammation to joints, muscles or other tissues. I am so so upset and angry at the utterly disrespectful and callous handling of my illness.
I just sit here in despair. I don't know how I'm supposed to cope with chronic pain, and no medication to help me with this out of control attack on my body. I would be so grateful to anyone who can reach out to me and offer me even a small crumb of advice. I'm completely lost right now.