Posts - LUPUS UK | HealthUnlocked

LUPUS UK

32,146 members • 28,486 posts

All posts for July 2017

Radio 5live....now !

Discussion on Sjogrens with Dr Elizabeth Price.

bones-bones

•7 years ago

9 Replies

Flare coming on

How do you know when your lupus is going to flare? How do you feel?

jennyall12

•7 years ago

5 Replies

Leg brace

I new to lupus and I have arthritis in my ankle that I broke 35 years ago,I had all the blood tests done,I have a mild case of lupus,I had a cortisone shot in...

I new to lupus and I have arthritis in my ankle that I broke 35 years ago,I had ...

Lm1gulso

•7 years ago

1 Reply

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Urine sample times

Hi guys Just wondering when is a good time to get a urine sample for protein loss Ov first thing in a morning my protein loss is higher on the dipstick...

Hi guys Just wondering when is a good time to get a urine sample for protein lo...

poodlegal

•7 years ago

2 Replies

How is it possible.

Hi.......There is an article about Venus Williams and her problems in the Telegraph today. It beats me how she can be in the finals at Wimbledon and I can just...

Hi.......There is an article about Venus Williams and her problems in the Telegr...

bones-bones

•7 years ago

28 Replies

Hair loss

Eek, I'm having a slight flare with tremor, sores around nails, joint swellings, muscle aches and the dreaded fatigue. I have also started moulting ! 🙁

Eek, I'm having a slight flare with tremor, sores around nails, joint swellings,...

Rubylu

•7 years ago

5 Replies

What to do? Wait for GP appt or visit A&E?

I still feel like I have a lot to learn re living with lupus and this is the sort of situation where I am still unsure what I should do. I tried to get a GP...

I still feel like I have a lot to learn re living with lupus and this is the sor...

Wendy39

•7 years ago

31 Replies

Positive Post!

I usually come on here and moan or seek advice. But this time i thought id share something positive. I managed to take my partner and kids to an Olly Murs...

I usually come on here and moan or seek advice. But this time i thought id share...

Dan30cr

•7 years ago

6 Replies

A question of balance

Ugh, so after a GORGEOUS trip to the beach last week (that's my 6'1" teenager below) and about a week's worth of recovery, I noticed my already somewhat...

Ugh, so after a GORGEOUS trip to the beach last week (that's my 6'1" teenager be...

Silvergilt

•7 years ago

8 Replies

I'm on the long road of diagnosis

I have many symptoms most of which are going unheard by doctors. Including joint pain pericarditis Costochondritis rashes brain fog difficulty swallowing noise...

I have many symptoms most of which are going unheard by doctors. Including joint...

Nikkilama

•7 years ago

14 Replies

Very red face!!! That feels like it's on fire!!

Does anyone else's face feel like it's on fire? Cheeks and across bridge of nose especially when it's hot outside? I'm having to put cold compresses on my...

Does anyone else's face feel like it's on fire? Cheeks and across bridge of nose...

Loopydroopy

•7 years ago

5 Replies

Tonsillitis

Is tonsillitis tonsil stones?

jensen_lynne

•7 years ago

3 Replies

Signs of flares

Hello everyone:) I'm still in the beginning stages of being treated with plaquenil and starting to slowly notice improvements in my symptoms. I've read a lot...

Hello everyone:) I'm still in the beginning stages of being treated with plaquen...

Jodirae

•7 years ago

10 Replies

Myclphenate anxiety and paranoia!

Hi, not posted for a while but having dreadful time... Lost lot of sight thro lupus and after every infusion and biologic plus chemo drugs now on mmf.... Eye...

Hi, not posted for a while but having dreadful time... Lost lot of sight thro lu...

Luppykate

•7 years ago

8 Replies

Waiting for New Referral (New rash)

Hi - So I posted many months ago after my first consultation which was very disappointing. My diagnosis of hypermobility was confirmed but everything else...

Hi - So I posted many months ago after my first consultation which was very disa...

scscsc

•7 years ago

15 Replies

Do flares ever completely go away?

Hi. I am still here in autoimmune/Lupus limbo and awaiting a follow up consultation with the rheumatologist. 🙆🏼 For the past 11 months I have had many awful,...

Hi. I am still here in autoimmune/Lupus limbo and awaiting a follow up consultat...

Minnskimoo

•7 years ago

6 Replies

Lupus tonsil stones

Can lupus cause tonsil stones?

jensen_lynne

•7 years ago

6 Replies

Pain

I was just put on Pacquinil for a flare up of RA. My feet were killing me, going numb when walking or biking. I found it hard to walk after exercise. Since...

I was just put on Pacquinil for a flare up of RA. My feet were killing me, going...

SusanJ68

•7 years ago

1 Reply

Help MRI referral and scared 😢

Not sure who to ask or even if this is the right group but I know how kind you all are so need your advice! Sorry for the length of this but if I explain it...

Not sure who to ask or even if this is the right group but I know how kind you a...

MissFG

•7 years ago

15 Replies

Rheumatology appointment after 2 years.....

So I finally had my rheumy appt. Nice lady doctor as I've been on hydroxy for 3 yrs now she noticed some pigmentation on my neck which I've had since childhood...

So I finally had my rheumy appt. Nice lady doctor as I've been on hydroxy for 3 ...

Hidden

•7 years ago

23 Replies

Hi all

Hi, all im not sure if i have lupus, they are trying to find out what is going on with me. Im awaiting for results. I been diagnosed with ttp stands for...

Hi, all im not sure if i have lupus, they are trying to find out what is going o...

Sil22

•7 years ago

4 Replies

It's so embarassing. Could this neck rash be lupus?

I'm 31 yr old pretty healthy female. About 5 months ago I developed this itchy raised reddish purple rash on my neck. It gets better and come back. It's...

I'm 31 yr old pretty healthy female. About 5 months ago I developed this itchy ...

Nickelc

•7 years ago

4 Replies

Clover85

Hello all, Just a quick hello and thank you all in one. I joined the other day and since joining have found the community invaluable. I was officially...

Hello all, Just a quick hello and thank you all in one. I joined the other day ...

Clover85

•7 years ago

3 Replies

Update on the breast screening

Hi all Its me again! So today was my appointment for the screening. I went with my mum, because we thought it will be very quick. I got called by the nurse and...

Hi all Its me again! So today was my appointment for the screening. I went with ...

ijeasike

•7 years ago

7 Replies

Blacking out

Hi all, I haven't written anything here for a while, but I do follow what's happening. About three weeks ago I woke up at about 3am to go to the toilet. When I...

Hi all, I haven't written anything here for a while, but I do follow what's happ...

Harold123

•7 years ago

9 Replies

Life continues for some, while other's don't

Ok, so I've been off of here for 2 months or more dealing with my health and then having to step up from a medical standpoint to help my Mom and Dad negotiate...

Ok, so I've been off of here for 2 months or more dealing with my health and the...

LifeAsALupie

•7 years ago

2 Replies

22nd Driving Lesson

Got picked up from work . This lesson went much better for me than last one . Only few mistakes . I mentioned to him about the 3 week no driving lesson then...

Got picked up from work . This lesson went much better for me than last one . On...

LouLamb

•7 years ago

8 Replies

Life goes on...

I posted several weeks ago about my first appointment at the RNHRD centre of excellence for lupus in Bath. That went well and since then I've had various...

I posted several weeks ago about my first appointment at the RNHRD centre of exc...

skylark15

•7 years ago

7 Replies

Never feel like u've slept!

Is this something a lot of u guys can relate to or is it just me!? I literally never feel like I've slept, I do have an 18month old who still wakes at least...

Is this something a lot of u guys can relate to or is it just me!? I literally ...

Sara_A

•7 years ago

12 Replies

Appeal update.

I am really impressed the way the appeal people understand your conditions. They understand them more than the accessors. Finally got the appeal result I...

I am really impressed the way the appeal people understand your conditions. They...

puneet123

•7 years ago

11 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for July 2017

Radio 5live....now !

Flare coming on

Leg brace

Urine sample times

How is it possible.

Hair loss

What to do? Wait for GP appt or visit A&E?

Positive Post!

A question of balance

I'm on the long road of diagnosis

Very red face!!! That feels like it's on fire!!

Tonsillitis

Signs of flares

Myclphenate anxiety and paranoia!

Waiting for New Referral (New rash)

Do flares ever completely go away?

Lupus tonsil stones

Pain

Help MRI referral and scared 😢

Rheumatology appointment after 2 years.....

Hi all

It's so embarassing. Could this neck rash be lupus?

Clover85

Update on the breast screening

Blacking out

Life continues for some, while other's don't

22nd Driving Lesson

Life goes on...

Never feel like u've slept!

Appeal update.

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