Feeling confused and very down: Hello Everyone... - LUPUS UK

LUPUS UK

31,708 members28,077 posts

Feeling confused and very down

bones-bones profile image
3 Replies

Hello Everyone

Yesterday I got and felt normal for the first time for ages. I could walk with no difficulty

didn't feel sick.......Cured ! Hooray

Today I got up creaking around feeling very nauseous and lightheaded again. Also uncomfortable gut feeling.

This is how I have been feeling for a few weeks so I was so happy to wake up feeling well yesterday.

I have been trying to think what had changed. I had a horrid whooping type cough previously but it had gone by last week. It came back last night so not much sleep A lot of people here have had the cough too. I also started to take 25 instead of 50mg of Amitriptylene.

I really feel like throwing the towel in.

I take Hydroxychloroquine,Mycophenolate and Amitriptylene (neuropathy) I am 73

and have MCTD.

The other question I'd like to ask is how often on average do you 'bother' your GP ?

My Rheumatologist isn't local so my GP is my joint carer.

This is a bit of a a ramble so forgive me if it's muddled. It's my brain

Written by
bones-bones profile image
bones-bones
To view profiles and participate in discussions please or .
3 Replies
Chanpreet_Walia profile image
Chanpreet_WaliaLUPUS UK

Hi Bones-bones,

I am sorry to hear that you have been feeling poorly. Have you thought about ringing your rheumatologist for a telephone consultation?

If you want someone to speak to, we have local LUPUS UK contacts that cannot give medical advice but are there as a listening ear to offer support and advice over the telephone. These contacts mostly have lupus themselves and are volunteers. If you would like more information on having a local contact to speak to, as well as information on support group meetings you can email me at chanpreet@lupusuk.org.uk

Please keep us updated, wishing you all the best.

bones-bones profile image
bones-bones in reply to Chanpreet_Walia

Thank you for your help. I'm drinking more water to see if that helps. I had stopped drinking because it was making me feel sick😝

Shaysuekirk profile image
Shaysuekirk in reply to bones-bones

Unfortunately, water can make you feel more nauseated when you are sick! I have the same issue.

You may also like...

In despair feeling lost and very low 😔

I have had ‘fibromyalgia’ for years, but over the last year things started to change. My fatigue has

Feeling down

!!! I'm assuming I have to go to as everyone had to!!! We shouldn't have to go through the...

Lupus coagulant? Prednisolone? Confused and let down?

Ive just been to hospital as my husband had to call ambulance I was in so much pain I was having...

Feeling very low.

made to feel like a neurotic timewaster, with no reason not to be \\"working\\"......as if I had a...

Feeling so down