Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,928 members • 28,257 posts

All posts for November 2016

Lung/chest pains

hi I got diagnosed with sle lupus n fibromalagia as well as raynauds (the raynauds bein a recent thing along with brainfog). 2 months ago I had a chest...

hi I got diagnosed with sle lupus n fibromalagia as well as raynauds (the raynau...

Jacqui75

•8 years ago

4 Replies

Coming to terms with my limitations

As of yesterday I was confirmed as suffering from fibromyalgia as well as lupus. I have been off work for over two months and now have to come to terms with...

As of yesterday I was confirmed as suffering from fibromyalgia as well as lupus....

Dan30cr

•8 years ago

9 Replies

rituximab infusion

Hi I am a 21y/o female with SLE. Had my first rituximab infusion on Tuesday, have felt quite ill achey and tired ever since. Is this normal ? Has anyone else...

Hi I am a 21y/o female with SLE. Had my first rituximab infusion on Tuesday, hav...

Charlottelauren

•8 years ago

1 Reply

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Sharp pain and numb face

Just another weird thing I haven't had before and it's happened three times in the last few weeks. I get a sharp pain in my face that feels like a lightning...

Just another weird thing I haven't had before and it's happened three times in t...

1985mum

•8 years ago

5 Replies

Plz Help IT HURTS

i am having a problem when i am sitting in a certain position that it feels like something is tearing thru my shoulder blades to my elbow.......but when i am...

i am having a problem when i am sitting in a certain position that it feels like...

tigarahiro

•8 years ago

4 Replies

hidden and visible MOLD CAUSES AUTOIMMUNE DISORDERS

I feel a need to share this....i am going to a new dr that told me herh story...she all of a sudden got fatigue tired muscle aches hair loss skin issues you...

I feel a need to share this....i am going to a new dr that told me herh story.....

jacrjacr

•8 years ago

7 Replies

Horrendous second appointment at rheumy!!!

I cannot believe the terrible time my husband and I have had today...Second appointment with Prof.C at Salford. Thought I might be getting somewhere seeing him...

I cannot believe the terrible time my husband and I have had today...Second appo...

LottieD

•8 years ago

14 Replies

Lupus vs teaching

Hi every one, I suffer from lupus and I'm struggling to keep up with the demands of a teacher. I'm realising it's not for me and I want to change career paths....

Hi every one, I suffer from lupus and I'm struggling to keep up with the demands...

Celina93

•8 years ago

10 Replies

Diarrhoea and a haemorrhoid. Unpleasant subjects but I really need some tips.

I have suffered from bouts of diarrhoea for years, way before my diagnosis in 2013 with SCLE. I have been on hydroxy for 3 years and MMF 3G a day since July....

I have suffered from bouts of diarrhoea for years, way before my diagnosis in 20...

Wendy39

•8 years ago

21 Replies

CK readings elevated

Anyone here been dx with myosits?

dogtired

•8 years ago

4 Replies

Breaking nails

Hi new to site after recommendation! I've had lupus for 16 years and manage ok - on methotrexate and hydroxychloroquine etc etc. Having massive issue with...

Hi new to site after recommendation! I've had lupus for 16 years and manage ok -...

elaine-pj

•8 years ago

4 Replies

Symptom withdrawals from Prednisone?

Hello everyone, It's been a bit awhile since I've been here. I have been off my Prednisone for nearly a week now and I feel like a train has wrecked me :( I...

Hello everyone, It's been a bit awhile since I've been here. I have been off my...

Lara4228

•8 years ago

11 Replies

Prednisone, Insomnia, and Type 1 Bipolar

Back history: Went into the ER for a migraine, came out with a lupus diagnosis. Turns out the migraine was because my kidneys had failed, and I landed me a...

Back history: Went into the ER for a migraine, came out with a lupus diagnosis. ...

quirkytizzy

•8 years ago

3 Replies

Leukocytes in urine, muscle twitches and night time shakes

I'm struggling with feeling rotten at the moment. I feel really unwell, but different from the usual lupus unwell. Blood tests and ECG all ok. Leukocytes in...

I'm struggling with feeling rotten at the moment. I feel really unwell, but diff...

lupie46

•8 years ago

15 Replies

For those who have sustained bodily damage due to misdiagnosis or misuse of Fibromyalgia

Hi, My name is Kerryn. I'm from Australia and have been participating at this site on and off for about two years now. I've noticed many posts describing the...

Hi, My name is Kerryn. I'm from Australia and have been participating at this si...

Freckle1000

•8 years ago

114 Replies

Flare on immunosuppressant

When u flare but are on immunosuppressants does that mean they are not wrking ?? My dr just said something like that but only just thought of it when I left...

When u flare but are on immunosuppressants does that mean they are not wrking ??...

poodlegal

•8 years ago

4 Replies

Not sure what I have

Well my name is Carl g I'm 48 in last year it's been steady decline. I've not been to doctor about problems I'm not what I have but things have progressed...

Well my name is Carl g I'm 48 in last year it's been steady decline. I've not be...

Raiders1968

•8 years ago

3 Replies

Steroids and Weight

Any advice would be appreciated. I have had Lupus for 17 years now, it took them 3 months of sending me home saying I was faking it for attention to actually...

Any advice would be appreciated. I have had Lupus for 17 years now, it took them...

CJ85

•8 years ago

19 Replies

My wife just been diagnosed with lupus

Hi everyone. I've just had a call from my wife, her rheumatologist has officially diagnosed my wife with lupus, I'm absolutely devastated not for me but for my...

Hi everyone. I've just had a call from my wife, her rheumatologist has officiall...

86darrenbrown

•8 years ago

19 Replies

Generic Blood Test Results to start initial tests for Lupus show raised liver enzymes.

Hi Everyone :) I underwent some generic blood tests to begin the process of being tests for Lupus just over a week ago. The results showed that I have a...

Hi Everyone :) I underwent some generic blood tests to begin the process of bein...

Nat1291

•8 years ago

14 Replies

Constant pain

I've not been on here for while... this trimenial neuralgia has been pain 24/7... and lupus flared...I'm exchausted today and at work... uggg see new and 4th...

I've not been on here for while... this trimenial neuralgia has been pain 24/7.....

Mealfredo78

•8 years ago

1 Reply

Lupus or Fibro?

Hi all, just wondering if anyone else has been in same situation.. I have been very ill now for over a year, but only now I am properly being looked after and...

Hi all, just wondering if anyone else has been in same situation.. I have been ...

Hidden

•8 years ago

10 Replies

What's the difference between lupus fog and fibro fog?

I am having a flare of major fatigue this week, enough to keep me off work. I'm walking around in a daze and very slowly, and am struggling to understand...

I am having a flare of major fatigue this week, enough to keep me off work. I'm ...

LuckyJC

•8 years ago

3 Replies

Panniculitis!

Hi all I haven't posted in a while, still waiting for a proper diagnosis my rheumy says it's not about having a label but being treated, I'm on hydroxy,...

Hi all I haven't posted in a while, still waiting for a proper diagnosis my rhe...

jvspeed

•8 years ago

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Migraines

I'm having a really bad run of migraines at the moment, they have always been a problem but they have been worse lately. I feel like I'm never really free of...

I'm having a really bad run of migraines at the moment, they have always been a ...

creaky

•8 years ago

62 Replies

Unknown at this point. Awaiting appointment next week to discuss symptoms with dr.

Hi there, I have many symptoms that I feel relate to lupus and am awaiting an initial GP appointment following recent symptoms (possible flair up) recurring...

Hi there, I have many symptoms that I feel relate to lupus and am awaiting an in...

Tracylove

•8 years ago

11 Replies

Life is for Living

I love my new ring splints! But I need to remember to wear them more often - I tend to take them off then forget to put them back on. I've not been posting...

I love my new ring splints! But I need to remember to wear them more often - I t...

Silvergilt

•8 years ago

8 Replies

Hopes raised only to be dashed - again. No referral. Won't even try.

I received an email from the Rheumy Nurse yesterday. I should have known this was coming. My Rheumy has refused to back my application to see my Dermy in...

I received an email from the Rheumy Nurse yesterday. I should have known this wa...

Wendy39

•8 years ago

21 Replies

Hair loss and thinning problem

Hi,i am facing a lot of problem with my hair.i am sure its a common problem for sle patient.but it makes me feel awkward to go outside cause by born i have a...

Hi,i am facing a lot of problem with my hair.i am sure its a common problem for ...

ava97

•8 years ago

14 Replies

Funny turn

Had a funny turn this morning whilst trying to urinate. I came over very weak and dizzy struggled to keep my self propped up against the wall and my partner...

Had a funny turn this morning whilst trying to urinate. I came over very weak an...

Dan30cr

•8 years ago

5 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for November 2016

Lung/chest pains

Coming to terms with my limitations

rituximab infusion

Sharp pain and numb face

Plz Help IT HURTS

hidden and visible MOLD CAUSES AUTOIMMUNE DISORDERS

Horrendous second appointment at rheumy!!!

Lupus vs teaching

Diarrhoea and a haemorrhoid. Unpleasant subjects but I really need some tips.

CK readings elevated

Breaking nails

Symptom withdrawals from Prednisone?

Prednisone, Insomnia, and Type 1 Bipolar

Leukocytes in urine, muscle twitches and night time shakes

For those who have sustained bodily damage due to misdiagnosis or misuse of Fibromyalgia

Flare on immunosuppressant

Not sure what I have

Steroids and Weight

My wife just been diagnosed with lupus

Generic Blood Test Results to start initial tests for Lupus show raised liver enzymes.

Constant pain

Lupus or Fibro?

What's the difference between lupus fog and fibro fog?

Panniculitis!

Migraines

Unknown at this point. Awaiting appointment next week to discuss symptoms with dr.

Life is for Living

Hopes raised only to be dashed - again. No referral. Won't even try.

Hair loss and thinning problem

Funny turn

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