Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,928 members • 28,257 posts

All posts for November 2016

Best shot at returning to work following diagnosis

Diagnosed with SLE in August 2016 I have since been on sick leave and now feel the need to at least try and return to work. Hydrox has kicked in to relieve...

Diagnosed with SLE in August 2016 I have since been on sick leave and now feel t...

Tripitaka

•8 years ago

15 Replies

Joined for my daughter

I don't have lupus myself but my learning-disabled daughter does. It's difficult sometimes for me to judge what is important or just a fleeting pain, and to...

I don't have lupus myself but my learning-disabled daughter does. It's difficul...

Lambassador

•8 years ago

3 Replies

Rash

I've had a few painful and exhausting days and now my rash is spreading. It's all over my lower legs and my right wrist. It's painful and insanely itchy

I've had a few painful and exhausting days and now my rash is spreading. It's al...

Suecon

•8 years ago

2 Replies

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Hello I'm Jade I'm 16 years old and I've been diagnosed with lupus 😭

This lupus diagnosed into my body is frightening me...making my head go wild... I keep asking myself " am I dieing?" And " am I gunna be able to live a normal...

This lupus diagnosed into my body is frightening me...making my head go wild... ...

Jade-anne_coulson17

•8 years ago

11 Replies

Fire ant skin.

I get the fire ant skin after showering and generally every time I get an itch. I try not to scratch because when I do, it spreads very quickly. I get it on my...

I get the fire ant skin after showering and generally every time I get an itch. ...

CarlinLadonna

•8 years ago

3 Replies

Introducing myself

I have just joined after reading Colette Barrere's article in Lupus UK News and Views winter 2016. I have had Hughes Syndrome (APS) for over 30 years and am...

I have just joined after reading Colette Barrere's article in Lupus UK News and ...

LInnieOAP

•8 years ago

4 Replies

Introducing Myself to other Lupus Members

Hi, I thought it a good idea to say hello to other Members of Lupus U.K. Lupus has been with me since 1973 but diagonosed only in 1983. I was diagnosed as...

Hi, I thought it a good idea to say hello to other Members of Lupus U.K. Lupus...

Dessi72

•8 years ago

8 Replies

Has anyone been fired for being spacey at your job, for lupus and sued for discrimination? Did you win?

I had a great job, and was number two in sales and the newest. I broke a company record for sales my second day. The Computor system was old and hard to...

I had a great job, and was number two in sales and the newest. I broke a comp...

beccaboom

•8 years ago

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SLE flair & Antinflamatories

Hi Since breaking my wrist back in Feb my hair started to fall & I have lost loads, it so fine & I don't want to get it cut short as it has taken me years to...

Hi Since breaking my wrist back in Feb my hair started to fall & I have lost lo...

Cal66

•8 years ago

5 Replies

Buldging Blood Vessel on right side of scalp

I recently started having headaches and extremely tender scalp. I found this large blood vessel on the right side of my scalp in my hair. It hurts bad....

I recently started having headaches and extremely tender scalp. I found this la...

MCarol68

•8 years ago

5 Replies

Start of a bad week

Sorry for widging but a bit of cold weather and my hands just do not want to work joints sore lack of movement and my legs are giving way on me and loads of...

Sorry for widging but a bit of cold weather and my hands just do not want to wor...

Ianrussell69

•8 years ago

6 Replies

Not having a good few days. Not yet diagnosed so any help would be grateful

Hi all hope everyone is ok. Aches and pains have got worse over past few days waking up every morning very stiff and feel like I've had work out at the gym but...

Hi all hope everyone is ok. Aches and pains have got worse over past few days wa...

Ems666

•8 years ago

11 Replies

Hair thinning

Does anyone have any recommendations for hair thinning. Mine has gone terrible

christinehargreaves

•8 years ago

14 Replies

Dermatology Update

Hello everyone Just thought I would give an update on my leg lesion removal because I have had the best news. It is a benign one so no further treatment...

Hello everyone Just thought I would give an update on my leg lesion removal beca...

misty14

•8 years ago

17 Replies

Drugs for lupus

How fast do the meds work love how ate on them,,,,?

beccaboom

•8 years ago

10 Replies

Just diagnosed and super scared

I am 60 years old. I have always looked young and beautiful for my age. I attracted 29 and up men, and it was a boost to be beautiful and told so. I...

I am 60 years old. I have always looked young and beautiful for my age. I att...

beccaboom

•8 years ago

29 Replies

My health

Lupus

christinehargreaves

•8 years ago

1 Reply

Lower back pain

I hurt my back a few years ago due to pushing partners wheelchair,and it goes about once a year.I was reaching in the car for my handbag and felt it go that...

I hurt my back a few years ago due to pushing partners wheelchair,and it goes ab...

mousey1

•8 years ago

21 Replies

Update. Gastro wants to decrease Azathioprine?

Hi Quick question. After 16 years with AIHep gastro wants to decrease from 75 to 50mmg. Thought this was of help with Lupus and my other autoimmune diseases...

Hi Quick question. After 16 years with AIHep gastro wants to decrease from 75 to...

Footygirl

•8 years ago

3 Replies

AAT Deficiency

I got a call from my rheumy yesterday. She says I have AAT deficiency...and I need to see a pulmonary specialist and a hematologist. I have been having loss...

I got a call from my rheumy yesterday. She says I have AAT deficiency...and I n...

Ratana21

•8 years ago

2 Replies

Lupus and the flu

OMG! I feel awful! My co worker decided to come to work with the flu, and give it to everybody. Her claim was she could not stay home because she had rent to...

OMG! I feel awful! My co worker decided to come to work with the flu, and give i...

Natura

•8 years ago

12 Replies

PLEASE HELP?!? Unusual rash :(

hello I wonder if anyone could help me :) I am currently undergoing tests for lupus and are yet to attend my firm rheumatologist appointment next week. Along...

hello I wonder if anyone could help me :) I am currently undergoing tests for ...

Lauralulu

•8 years ago

11 Replies

Strange nails!!

Hi im wondering if anyone can help? I have these strange lines on my nails and was wondering if anyone else has experienced anything similar? thank you :)

Hi im wondering if anyone can help? I have these strange lines on my nails and w...

Lauralulu

•8 years ago

30 Replies

MYSTERY and MISERY

Hello, I'm new to this and just wanted to share my story to see if anyone suffers with any similar symptoms? :) I'm currently waiting to see the...

Hello, I'm new to this and just wanted to share my story to see if anyone suffer...

Lauralulu

•8 years ago

7 Replies

Could be Lupus or DILE - newly diagnosed and feeling devastated.

Hi - I was diagnosed with RA five years ago. I fought using a biologic for three years before I finally gave in and started Humira. It has been amazing for my...

Hi - I was diagnosed with RA five years ago. I fought using a biologic for three...

Kathy1465

•8 years ago

5 Replies

Update. Appointment with GP With Specialist Interest in lieu of Consultant Dermatologist

It’s late and I’m tired but I need to do this before I forget it all and maybe it will help clarify things in my head. It went OK. He was pleasant enough. He...

It’s late and I’m tired but I need to do this before I forget it all and maybe i...

Wendy39

•8 years ago

20 Replies

Plaquenil (hydroxychloroquine) 200 and retina problems !!

Hello , i'm talking plaquenil (hydroxychloroquine) 200 twice daily since august 2015 and now my ophthalmologist saw some changes in my retina (abnormal macular...

Hello , i'm talking plaquenil (hydroxychloroquine) 200 twice daily since august ...

Samaka

•8 years ago

17 Replies

Toe pain

Hi everyone My daughter aged 13 has evolving Lupus and has been having a lot of pain on the top of her foot at the base of her big toe. Any ideas?

Hi everyone My daughter aged 13 has evolving Lupus and has been having a lot of ...

Di-do

•8 years ago

8 Replies

Lupus

Hi. I'm Kim and my husband has just been diagnosed with Lupus. He seems to have lots.of symptoms such as; rash across face, dry eyes, gastric problems, sinus...

Hi. I'm Kim and my husband has just been diagnosed with Lupus. He seems to have ...

Hidden

•8 years ago

8 Replies

? lupus

How do people get diagnosed with lupus? Us there any specific blood test that is done? My gp thinks i have it but hasn't organised any diagnostics. Thanks in...

How do people get diagnosed with lupus? Us there any specific blood test that is...

Hidden

•8 years ago

5 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for November 2016

Best shot at returning to work following diagnosis

Joined for my daughter

Rash

Hello I'm Jade I'm 16 years old and I've been diagnosed with lupus 😭

Fire ant skin.

Introducing myself

Introducing Myself to other Lupus Members

Has anyone been fired for being spacey at your job, for lupus and sued for discrimination? Did you win?

SLE flair & Antinflamatories

Buldging Blood Vessel on right side of scalp

Start of a bad week

Not having a good few days. Not yet diagnosed so any help would be grateful

Hair thinning

Dermatology Update

Drugs for lupus

Just diagnosed and super scared

My health

Lower back pain

Update. Gastro wants to decrease Azathioprine?

AAT Deficiency

Lupus and the flu

PLEASE HELP?!? Unusual rash :(

Strange nails!!

MYSTERY and MISERY

Could be Lupus or DILE - newly diagnosed and feeling devastated.

Update. Appointment with GP With Specialist Interest in lieu of Consultant Dermatologist

Plaquenil (hydroxychloroquine) 200 and retina problems !!

Toe pain

Lupus

? lupus

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