My name is Kerryn.
I'm from Australia and have been participating at this site on and off for about two years now.
I've noticed many posts describing the phenomena of being diagnosed with Fibromyalgia only to find out later on that individuals were really suffering from an un -diagnosed illness.
My ex Rheumatologist is a pioneer and leading world wide researcher of Fibromyalgia.
I was referred to this man with an obvious and active SLE Lupus diagnosis and have since sustained serious internal organ damage due to his strong fixation on his Fibromyalgia career focus and my accompanying 'Anxiety'.
I will be confronting this man either personally, or through AHPRA aphra.gov.au who's role it is to investigate complaints about medical practitioners here. This is NOT a financial compensation claim.
I'm writing this post as this Doctor is in part responsible for the construction of Fibromyalgia and as such I believe he needs to be confronted - and take responsibility for the horrific flip side endured by patients world wide. The flip side being either wrongly diagnosed with it or Doctors using Fibromyalgia to dismiss patients with serious medical concerns.
'As I have observed at this site - This can lead to permanent bodily and emotional damage'.
I'm not writing this post out of self interest. This Senior Specialist is currently held in high esteem world wide and is a major educator of Doctors here in Australia & internationally.
If he can be convinced ? - he might just have some power to stop Fibromyalgia being misused by is fellow medico's.
Please see this as a fellow sufferers attempt at a survey. Any response to this post will be shown to him - face to face with me present.
Any responses would be great.