I cannot believe the terrible time my husband and I have had today...Second appointment with Prof.C at Salford. Thought I might be getting somewhere seeing him again. Totally wrong! He is the most arrogant ignorant person I have ever had to deal with. Told me all tests negative. Symptoms add up to fibromyalgia. Costs thousands people being off work. Apparently in his view my illness is, oh sorry he does not count this as an illness, symptom, diagnosis does not add up to illness! I have worked for 42 years. I have have carried on with IBS Diverticulitis, Spondylitis, degenerative disc disease and have recently been diagnosed with small nerve peripheral neuropathy. Dr C I cannot even credit him with the credentials he may have gained 30 years ago and as I see it is sitting out his retirement. He tried to convince my husband and I that my brain was telling my body I can't do things infact I didn't need to walk with a walking stick I am telling myself I cannot walk without it. I explained I started using a walking stick because I was embarrassed by the way I was walking and keep loosing my balance. My husband who is not often lost for words was absolutely flabbergasted when he said " if there was a fire in your house you would be out quicker than him" To my mind this beggars belief! This man should be retired as soon as possible. If I had not been the strong person that I am and my god in a morning when I could have so easily have given up and not got up I really feel he could have pushed me over the edge but never mind I would be one less cost on th NHS. My rash he puts down to a nervous rash, although as stressed as I have been today decided not to come on show! Pictures weren't enough for "P.C" He says he will ask for me to be referred to dermatologist. This will cost my GP. and then put a line under it He has told my husband and I to make a list of can't does and try to do an hour each day at each and build it up . I know my husband loves me and has supported me but not this flipping idiot of a consultant has planted the seed in my husbands head that it's all in my mind. My husband is now saying if it is in my mind it is still an illness and we will sort it.! I have asked him to read information on fibromyalgia because like this so called professional I don't want him to think that this is imaginary. I have worked with young people who have severe disabilities and autism if it wasn't for strong people these children and young people would still be institutionalised. My next step is to take my husband to my next GP appointment. I just hope other people don't have to go through what I have been through today. My mouth is burning and blisters on tongue... obviously my brain is telling me to have blisters...I can't work out this logic...hey ho who am I..a mere mortal asking for help . Not a so called Professor heading soon to a large pension plus his private patients. Oh maybe that's the answer. Anyway had my rant blisters in mouth ,pains in legs, purple lips, blisters on ends of fingers, nervous rash? On palms of hands ,eyelids ends of toes, a consultant who expected me to be Sjorgrens but now is telling me it's all in my mind!! Maybe as he advised I should read up on fibromyalgia or maybe he should. and now it's goodnight from him and goodnight from me. Next job tomorrow complaint to PALS x
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