I love my new ring splints! But I need to remember to wear them more often - I tend to take them off then forget to put them back on.
I've not been posting much here of late, though I do have a tendency to lurk around quite a bit. This week/month/year has been difficult ; new medication to adjust to, new potential diagnosis in the works, new symptoms no one seems to be taking seriously, so I'm pulling out all the stops in my alternative medicine experience and boning up on my herbology skills to try and sort it out myself (I wouldn't recommend doing this to anyone, but I don't have any options left at the moment - I can either watch my blood pressure rise to the point I have a stroke or I can do something about it myself, as it's clear my GP won't).
Mostly, I haven't had much to say because thanks to the benepali, I'm finding I have energy again, I can move again, and I'm trying to enjoy life as much as possible, and that means being on the computer less and less. The Dutchman and I are looking for an UsHaus together, and there's talk of another ring on my finger in the near future. So there's adventure and excitement and enjoying as much life as I can manage to cram in between injections that BURN LIKE ALL THE FIRES OF HEL (thank you, emla cream, I sing your praises for dulling the pain) and yoga sessions at home for better flexibility. I'm not concentrating on anything right now other than sucking the marrow out of life.
Not that there aren't still challenges there - my garden was nearly unworked through the entire year when the meds failed, and I have already decided I'm going to really have to change how I garden in future. I'm done lifting anything heavier than 4 kilos...for a former weight lifter that is a major blow to my self-perception! But maybe-vascular-EDS isn't playing around lately, my heart races when I rake wood chip for longer than five minutes so there's no way I can maintain a garden like I used to. My vision changes aren't great either - super-dry eyes and I'm squinting constantly, so tomorrow it's to the optician to get it all looked at and get some solar-tint glasses so I can drive confidently again, knit and do cross-stitch and all the fun stuff I used to do.
I just find while I sometimes need to have a nice, therapeutic rant, I have less and less to say, because I'm trying to _do_. Sometimes, I overdo it, but as I keep feeling an ache in my left shoulder that no one seems all that fussed about, I don't ever want to feel like I wish I had done something on my bucket list.
I thank each and everyone one of you for bearing witness to my struggling forward and trying to figure out our frustrating, infuriating, amazing bodies. Love, love, love!