Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,928 members • 28,257 posts

All posts for May 2015

Ulcerated eye

On Saturday I was sitting out in the garden with friends when my left eye started to itch as if I had something or a hair in my eye. I immediately put my sun...

On Saturday I was sitting out in the garden with friends when my left eye starte...

Maureenpearl

•9 years ago

6 Replies

A Research Project in Northern Ireland needs volunteers

Researchers at the Ulster University are searching for factors that contribute to the development of a debilitating autoimmune disease that predominantly...

Researchers at the Ulster University are searching for factors that contribute ...

LupusAdmin3

LUPUS UK•9 years ago

1 Reply

Advice needed!

Good morning to you all, I have been absent from work since Oct 2014 due to lack of understanding of my conditions. I have sle & Sjogrens. I react very badly...

Good morning to you all, I have been absent from work since Oct 2014 due to lac...

smudge1980

•9 years ago

6 Replies

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Low Dose Naltrexone - any updates?

I have been looking into trying LDN and found an old post by MaryF from 2 years ago who is/was taking it and am wondering if anyone else has tried it. If so,...

I have been looking into trying LDN and found an old post by MaryF from 2 years ...

terri_b

•9 years ago

11 Replies

Problems with smear results

Hi,despite my user name,I'm a female,I'm really worried,always at colposcopy clinic,as cells never right,I mentioned yesterday I had lupus,she said that...

Hi,despite my user name,I'm a female,I'm really worried,always at colposcopy cli...

Jeffscott69

•9 years ago

10 Replies

Appointment

Today I have my rheumatologist appointment. ....long awaited as they forgot to send my appointment for march....am hoping I get proper meds today..to deal with...

Today I have my rheumatologist appointment. ....long awaited as they forgot to s...

pjsmith0700

•9 years ago

2 Replies

Feeling nervous

Hi all, No advice needed, just needed somewhere to write down my worries! I have several big things going on this week and I'm so nervous it will bring on a...

Hi all, No advice needed, just needed somewhere to write down my worries! I hav...

MelAlice

•9 years ago

8 Replies

HAD ENOUGH!

diag 15yrs ago ,wake up in pain go to bed in pain,heart attack,minor stroke,LSE,broken back ,blind in one eye,always tired,feeling very sorry for myself at the...

diag 15yrs ago ,wake up in pain go to bed in pain,heart attack,minor stroke,LSE,...

jeff61

•9 years ago

12 Replies

Stuck in bed

Feeling rather down today - I've been hit with so much stress in my life over the past 2 weeks and it has triggered a flare up. Everything hurts and I feel...

Feeling rather down today - I've been hit with so much stress in my life over th...

Maya23

•9 years ago

8 Replies

If I was a horse......

I would be shot!! I have managed to get an emergency apt at the hospital in about 10 days time. I have decided to make a list of everything ( and I mean...

I would be shot!! I have managed to get an emergency apt at the hospital in abou...

tjperfick

•9 years ago

12 Replies

Deloxitene

Hi Everyone I am going to be taking Deloxitene for nerve pain and would like to know from your experiences how effective it is and what side effects I should...

Hi Everyone I am going to be taking Deloxitene for nerve pain and would like to ...

misty14

•9 years ago

5 Replies

Meloxicam and Gabapentin

Dear all, Currently I am suffering with numerous joints being painful and stiff with weakness in my tendons of the wrists and hips, amongst many other symptoms...

Dear all, Currently I am suffering with numerous joints being painful and stiff ...

bestbuddy

•9 years ago

13 Replies

Malar rash????

I would appreciate any comments or opinions on the photos I've posted. I have been suffering from lupus type symptoms for a number of years now but am...

I would appreciate any comments or opinions on the photos I've posted. I have ...

heather1983

•9 years ago

16 Replies

PIP CLAIM TURNED DOWN :-(

PLEASE CAN ANYONE HELP? Proved by MRI I have osteo arthritis both hips knees other possible complications due to arthritis tennis elbow plantar faschiatis. I...

PLEASE CAN ANYONE HELP? Proved by MRI I have osteo arthritis both hips knees ot...

Hidden

•9 years ago

9 Replies

lupus rash?

can anyone tell me if they also experienced these types of rashes sometimes with swelling that would appear on and off daily, and if this is quite common in...

can anyone tell me if they also experienced these types of rashes sometimes with...

Queencara78

•9 years ago

6 Replies

Thank you

I just want to say thank you to everyone that's commented on my posts recently. being on this site has really helped me and given me the strength, courage, and...

I just want to say thank you to everyone that's commented on my posts recently. ...

heather1983

•9 years ago

1 Reply

Headaches

I have SLE,Discoid lupus, fibro,liver problems, leukopenia. Apart from all the obvious symptoms the above cause, I also get severe intractable headaches. They...

I have SLE,Discoid lupus, fibro,liver problems, leukopenia. Apart from all the o...

Hidden

•9 years ago

11 Replies

negative bloods and medication

blood tests allways come back negative for everything, and there is never any sign of inflamation.......... so why is it the only thing that gives me any...

blood tests allways come back negative for everything, and there is never any si...

heather1983

•9 years ago

12 Replies

Has Plaquinel been discontinued?

My pharmacist just phoned to say it has been and I'm worried as I believe the brand is better than the generic. I was just starting to feel well too.

My pharmacist just phoned to say it has been and I'm worried as I believe the br...

Bonnie39

•9 years ago

21 Replies

How can I help my daughter understand lupus?

Hello Everyone, I am a caregiver of my 29 year old daughter Tiffany with SLE Lupus and she has been living with this horrible disease for over 10 years. She...

Hello Everyone, I am a caregiver of my 29 year old daughter Tiffany with SLE L...

Stripes1967

•9 years ago

9 Replies

We want to hear your stories about your first rheumatology appointment

For May and June we would like to invite you to share your story of the first rheumatology appointment you had. Receiving an initial referral from your GP to...

For May and June we would like to invite you to share your story of the first rh...

Paul_Howard

Partner•9 years ago

14 Replies

Occupational Health.....warning

After reading several posts referring to the involvement of occupational Health (OCHY) on here and other sites. Their involvement, support, actual and...

After reading several posts referring to the involvement of occupational Health ...

adrian_holland

•9 years ago

7 Replies

Arranging new train tickets for Guys Hospital

Hello all, There has been a few posts about Professor Khamasta leaving for Dubai. Our appts have been changed and we are in the process of changing train...

Hello all, There has been a few posts about Professor Khamasta leaving for Dubai...

Hidden

•9 years ago

1 Reply

Problems with work

I was sent to occupational health through my work,they said I was covered under the dissability equality act.I have showed letter from reumatologist to my line...

I was sent to occupational health through my work,they said I was covered under ...

Jeffscott69

•9 years ago

10 Replies

does anyone know anyone willing to treat seronegative lupus?

All my blood tests came back negative, but I still have all the symptoms. Does anyone know of a rheumatologist that will treat without possitive bloods? I have...

All my blood tests came back negative, but I still have all the symptoms. Does a...

heather1983

•9 years ago

4 Replies

How can diagnosis be so hard...

I can't understand that I am being told I am ok after many appointments with many rheumo's, internal specialists, gp's and everybody is telling me to see a...

I can't understand that I am being told I am ok after many appointments with man...

missymystique

•9 years ago

5 Replies

blood tests negative- what now???

I'm feeling upset and very despondent. after 2 1/2 years of on going illness, I honestly thought an autoimmune condition was the answer. 6 months of fighting...

I'm feeling upset and very despondent. after 2 1/2 years of on going illness, I ...

heather1983

•9 years ago

18 Replies

Why/what

Not convinced this is lupus butterfly everyone talks about

amandajane76

•9 years ago

4 Replies

PIP

Just feeling pretty fed up.Have s.l.e and sjogrens.Have had for almost 20 yrs and have worked full time for 30 yrs since 18yrs old.My condition deteriorating...

Just feeling pretty fed up.Have s.l.e and sjogrens.Have had for almost 20 yrs an...

pixie66

•9 years ago

19 Replies

A bit lost

Hi, Im sorry in advance if this becomes long winded but thank you for reading it if you do. I haven't been diagnosed yet as the doctors are stumped as to what...

Hi, Im sorry in advance if this becomes long winded but thank you for reading i...

louyoung92

•9 years ago

12 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for May 2015

Ulcerated eye

A Research Project in Northern Ireland needs volunteers

Advice needed!

Low Dose Naltrexone - any updates?

Problems with smear results

Appointment

Feeling nervous

HAD ENOUGH!

Stuck in bed

If I was a horse......

Deloxitene

Meloxicam and Gabapentin

Malar rash????

PIP CLAIM TURNED DOWN :-(

lupus rash?

Thank you

Headaches

negative bloods and medication

Has Plaquinel been discontinued?

How can I help my daughter understand lupus?

We want to hear your stories about your first rheumatology appointment

Occupational Health.....warning

Arranging new train tickets for Guys Hospital

Problems with work

does anyone know anyone willing to treat seronegative lupus?

How can diagnosis be so hard...

blood tests negative- what now???

Why/what

PIP

A bit lost

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