I have been looking into trying LDN and found an old post by MaryF from 2 years ago who is/was taking it and am wondering if anyone else has tried it.
If so, I would be very interested to hear your experiences.
I have had SLE for nearly 40 years and apart from steroids and azathioprine in the early years I have managed without any medication (do take a daily aspirin and levo for underactive thyroid). That is, until last year when consultant wanted me to try hydroxychloroquine sulphate.
After taking it for a few days last year I had unbearable itching across my stomach so I stopped. At my appointment earlier this year the consultant said to try taking one a week, which I have been doing but found the eczema on my hands is becoming more and more aggravated.
So now I would like to try LDN but don't think my consultant will be agreeable as when I mentioned it to him before he didn't know anything about it and not sure he would be interested in prescribing it.