lupus rash?

[Queencara78]

can anyone tell me if they also experienced these types of rashes sometimes with swelling that would appear on and off daily, and if this is quite common in early disease.

[Hidden]

Looks like it Lisa. ..It lies under skin,sometimes it comes on neck as well...I get swelling of eyes and nose sometimes...its the oddest condition as it goes for so many different parts of your body...that's why it takes so long to get diagnosed...like drawing teeth 😑

[Queencara78 in reply to Hidden]

have you received a diagnosis?

[Lesley61 in reply to Hidden]

Iv got APS not lupus but iv got a rash on my neck all time it's like the shape of a butterfly only been test once I think for it x

[Hidden]

Eventually ...when I got taken to hospital very poorlyin November. ..was in 10 days

[Queencara78]

Do you know what the swelling is related to? I am waiting for biopsy result to find out if my Dermatologist is right about his differential diagnosis of mixed connective tissue disease, SLE and Angioedema. But having researched this swelling, I came across Dermatomyositis that sounds relevant to the symptoms too.

[Lizlauren]

I would say angioedema, look into it. I saw your pic.

I have HAD for years, for now before you can get into the Drs try taking 1 or 2 Benadryl and see if their is an improvement .

Good luck