Just feeling pretty fed up.Have s.l.e and sjogrens.Have had for almost 20 yrs and have worked full time for 30 yrs since 18yrs old.My condition deteriorating over past few years on lots of meds like all you guys out there (prednisolone,mycophenolate, hydroxy,naproxen and so on...) meaning most of the year either off sick/reduced hrs or using holiday entitlement to rest.Fatigue,painful skin rashes etc etc so bad that my daughter and husband now doing all household chores. Applied for PIP just need a little help to be able to reduce hrs and manage fatigue better. Been refused so asked for the decision to be reconsidered.Told today still no. My next option to appeal through a tribunal process. Seems this PIP claiming such a hard stressful battle for what sems like a lottery draw as to whether you get it or not for us lupies. Rant over thanks for taking the time to read x
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