Peculiar pain or normal?: This is a pain not... - LUPUS UK

LUPUS UK

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Peculiar pain or normal?

Chris21 profile image
12 Replies

This is a pain not experienced before in my left arm. On the inside of my elbow feels like a needle sticking in, throbbing on and off pins and needles in hand that goes cold, above the elbow it feels tight. It's more an irritation than terribly painful.

I have sle, sjgrens, arthritis, Raynaulds and sticky blood.

The gp diagnosed golfers elbow?! I haven't done anything different in my daily routine and she couldn't tell me why she thinks it's this therefore I'm asking the experts.......any ideas please.

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Chris21 profile image
Chris21
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12 Replies
tremarel profile image
tremarel

Sounds like you have pressure on a nerve in your neck to have pain down your arm .

Chris21 profile image
Chris21 in reply to tremarel

Thanks, I'll try massage and heat on my neck and see if it helps.

MaryF profile image
MaryF

You need to check you do not have a clot developing. MaryF

Chris21 profile image
Chris21 in reply to MaryF

That's why I went to the gp, she said it would be hard if there was a clot. I thought it would be red and hot if a clot developing? If it's still the same tomorrow I think I will ask the consultants secretary to give me his thoughts. Thanks x

MaryF profile image
MaryF in reply to Chris21

Years ago I had clots in both legs, no swelling to start with and no redness, don't settle for being fobbed off. I hope I am wrong, but with your diagnosis of Sticky Blood/Hughes Syndrome/APS you have to keep an eye, are you on anticoagulants or Aspirin? MaryF

Chris21 profile image
Chris21 in reply to MaryF

Yes, on aspirin. That's why I think I will check with consultant. I did wonder if it could be vascularise, not sure if that is another name for sticky blood etc.

Chris21 profile image
Chris21 in reply to Chris21

Stupid predicted text! Vasculitis! 😄

MaryF profile image
MaryF in reply to Chris21

This is the UK charity for sticky blood, known as Hughes Syndrome/APS Antiphospholipid Syndrome. hughes-syndrome.org/

We also have a forum on HU on this platform, but do stay on this one also for your Lupus needs, our charity also holds a list of recommended specialists across the UK, both NHS and private who understand fully Hughes Syndrome/APS

MaryF

Chris21 profile image
Chris21 in reply to MaryF

Thank you, I will have a look

Purpletop profile image
Purpletop

I sometimes have that - it comes and goes though. It stays about a week or two and then just when I get used to it, I notice that it disappeared. How long have you had it? if you don't have any visible inflammation, it's likely that it will pass. I used to put hot water bottle on it but it isn't the easiest place to keep the thing, so now I just leave it be.

Chris21 profile image
Chris21 in reply to Purpletop

It's only 3days, but I've noticed with heat it does feel a bit better today. Thanks for info.

Carcrashgal profile image
Carcrashgal

If it doesn't ease off, see a physiotherapist - it sounds like it might well be referred pain. Most physios are wonderful (and not just because my beloved sister-in-law is one); twice now I have had my life turned around by a caring physio who looked beyond the obvious. And just last month when I was suffering from intense shoulder pain (different from the chronic pain I normally suffer from my broken neck), it was the physiotherapist who sent me to the doctor to get checked for costochondritis and pleurisy - it hadn't occurred to me as it felt so *completely* different to last year's attack. But do make sure the physio takes a *complete* medical history and understands all the problems . . . Good luck!

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