Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,815 members • 28,151 posts

All posts for March 2015

Lupus... Who knows what...

OK.so had a load of crap pain going on since 22.. Back.legs.feet..I've always had this purpule skin thing when cold stresst.lost 2 babies.low white blood...

OK.so had a load of crap pain going on since 22.. Back.legs.feet..I've always ha...

louiseamos

•9 years ago

5 Replies

advise needed plz. can i request a rheumatologist by name ??

Hi all , does anybody know if you can request to see a rheumatologist by name , basically i would like to see the rheumy (whom ive googled) my gp has done a...

Hi all , does anybody know if you can request to see a rheumatologist by name , ...

kittykat68

•9 years ago

10 Replies

men and lupus?

How often do men get lupus? My Dad supposedly had fibro... He died with a horrible lung thing and couldn't breath, and they thought asbestos lungs...It was his...

How often do men get lupus? My Dad supposedly had fibro... He died with a horrib...

dgleds

•9 years ago

15 Replies

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Vasculitis and lupus

I've just got back from seeing a neurologist because of headache I've had for 2 months and loss of use of my tongue at one side which has affected my speech...

I've just got back from seeing a neurologist because of headache I've had for 2 ...

Sallyk21

•9 years ago

18 Replies

Waiting times...

So a little rant and a little advice needed... I am still waiting for a letter with my results on from my first appointment with a Rheumatologist. My...

So a little rant and a little advice needed... I am still waiting for a letter w...

Laura229

•9 years ago

7 Replies

POTs

I have recently found out about this issue and all the symptoms are very similar to problems I have had for many years, even pre diagnosis with Fibromyalgia...

I have recently found out about this issue and all the symptoms are very similar...

jamg3916

•9 years ago

2 Replies

I found a community

After being alone with sle for the past 10years, I now find there is a whole lupus community. I no longer feel alone and like a leper, that there is help and...

After being alone with sle for the past 10years, I now find there is a whole lup...

sleek

•9 years ago

4 Replies

A bit confused

I have lupus symptons with very high ANA but rummy has labled it as uctd. I also have under active thyroid diebetic.My Q i have no hairs on my arms has this...

I have lupus symptons with very high ANA but rummy has labled it as uctd. I also...

lucieb1

•9 years ago

2 Replies

Worried about vasculitis. Link to other connective tissue comditions?

Hi, I've recently joined this board as I'm waiting to see Prof D'Cruz at London Bridge. I've seen 4 specialists already this year and now him. I have Ehlers...

Hi, I've recently joined this board as I'm waiting to see Prof D'Cruz at London ...

Romina44

•9 years ago

2 Replies

Low Potassium

Hi everyone Is it possible to improve low potassium by diet or are supplements always needed?. Would love to read members experiences of this. Many thanks...

Hi everyone Is it possible to improve low potassium by diet or are supplements ...

misty14

•9 years ago

9 Replies

reducing steroids

Hi, I am currently trying to resuce steroids by 1 mg per week with the aim of reaching a maint. dose of 5mg. I was also prescribed azathioprine again ( had...

Hi, I am currently trying to resuce steroids by 1 mg per week with the aim of re...

tjperfick

•9 years ago

26 Replies

Flair up or Flu???!!!!

I just don't know anymore. I've started a new treatment 2 weeks ago, and have also been trying to cut my prednisone. So I have been very tired, and my symptoms...

I just don't know anymore. I've started a new treatment 2 weeks ago, and have al...

Terrier_Lady

•9 years ago

11 Replies

Small fiber neuropathy

Has anyone suffered from this? I posted a few weeks ago about the cramp like feelings from my elbows to the fingertips and the same from my knees to toes. I...

Has anyone suffered from this? I posted a few weeks ago about the cramp like fee...

kate47

•9 years ago

5 Replies

Neck pains

Hello everyone, I have been GREAT (minored aches) up until this week. I am experiencing pain in my neck kinda like a muscle spasm. Is this normal or should I...

Hello everyone, I have been GREAT (minored aches) up until this week. I am expe...

randa_lupie

•9 years ago

5 Replies

If you are a male with lupus, please share your experiences for our blog

For March and April we would like a a few men with lupus to share their experiences. With 90% of cases being diagnosed in females, unfortunately at times men...

For March and April we would like a a few men with lupus to share their experien...

Paul_Howard

Partner•9 years ago

5 Replies

lupus

I got lupus when I was just 20 when its bad its really bad I get a rash what feels like fags are being put out on me im tired all the time and have three...

I got lupus when I was just 20 when its bad its really bad I get a rash what fee...

melmumofthree

•9 years ago

3 Replies

Headache and speech problems

Just wondered if anyone has had similar symptoms to the ones I'm currently experiencing? I started with a headache about 7 weeks ago which I woke up with one...

Just wondered if anyone has had similar symptoms to the ones I'm currently exper...

Sallyk21

•9 years ago

4 Replies

I really need help

Everytime I get out the bath I get this really spotty and terribly itchy spots. It's really itchy and it's scares me. When I over heat and walk to much it also...

Everytime I get out the bath I get this really spotty and terribly itchy spots. ...

Spottylady

•9 years ago

3 Replies

Capillaroscopy: hemorrhages on six fingers but "totally normal picture"

Dear all, Yesterday I had the Capillaroscopy, the vascular assistant “scanned” four fingers on each hand (not the thumbs) with 100x enlargement and two...

Dear all, Yesterday I had the Capillaroscopy, the vascular assistant “scanned” ...

Patricia2015

•9 years ago

2 Replies

Positive ANCA with positive ANA

My ANA is 1:1280 - and has been for a while, but i just found out the ANCA test was weakly positive? What does this mean? I am still working on getting a full...

My ANA is 1:1280 - and has been for a while, but i just found out the ANCA test ...

happyp

•9 years ago

2 Replies

News re lupus & infections rates

I thought some of you would like to read this article: Lupus: Hospitalizations for Infections Continue to Rise Click...

I thought some of you would like to read this article: Lupus: Hospitalizations...

Barnclown

•9 years ago

6 Replies

Feel This Pain: Syringomyelia

Brand new "Feel This Pain" video is up! A cape of pain wrapped around your shoulders. With occasional bladder and bowel control issues for good measure....

Brand new "Feel This Pain" video is up! A cape of pain wrapped around your shoul...

Hidden

•9 years ago

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heart failure

Hi.just wondering if anyone could help 6 months ago i was told i have heart failure.enlarge heart mural thrombosis. been put on a load of medication Ramipril...

Hi.just wondering if anyone could help 6 months ago i was told i have heart fail...

hollybear

•9 years ago

3 Replies

Wanting to go back to ESA

I was taken off ESA and put onto jsa a year ago as I was deemed fit to work physically, but mentally I'm not fit for work. I would now like to apply for ESA...

I was taken off ESA and put onto jsa a year ago as I was deemed fit to work phys...

Ladyp76

•9 years ago

5 Replies

ESA SUPPORT GROUP

Hello Everyone,I have recently received a letter from DWP Jobcentre Plus that I have been moved from ESA WRAG to the Support Group due to my long term health...

Hello Everyone,I have recently received a letter from DWP Jobcentre Plus that I ...

monkeynuts

•9 years ago

2 Replies

Positive AMA AND ANA with p80 Coilin???

Hi there! I Was diagnosed in 2010 with PBC via biopsy and positive AMA. At that time my ANA was negative, it is now positive and I actually have normal LFTS...

Hi there! I Was diagnosed in 2010 with PBC via biopsy and positive AMA. At that ...

tdave

•9 years ago

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Question

Hi went to my dermatologist today .a new one as other of sick ...she said she had never seen anybody with as many complex problems as myself .and said ooh...

Hi went to my dermatologist today .a new one as other of sick ...she said she h...

barbdockeray

•9 years ago

8 Replies

DWP

Went to sign on This morning. My advisor looked at my work booklet to see what jobs I had applied for during the past 2 weeks. She noticed that i written down...

Went to sign on This morning. My advisor looked at my work booklet to see what ...

sandwiches

•9 years ago

13 Replies

Advice on bloods

can anyone please tell me what the nurse meant when she said my bloods from last week showed low neutriants and have to have the test redone tomorrow please,...

can anyone please tell me what the nurse meant when she said my bloods from last...

luupysue

•9 years ago

5 Replies

Thyroid starting to play up now!

Hi, I was wondering if anyone can help. My current "official" diagnosis is undifferentiated connective tissue disease, but my rheumatologist strongly believes...

Hi, I was wondering if anyone can help. My current "official" diagnosis is undif...

Kelfreem

•9 years ago

2 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for March 2015

Lupus... Who knows what...

advise needed plz. can i request a rheumatologist by name ??

men and lupus?

Vasculitis and lupus

Waiting times...

POTs

I found a community

A bit confused

Worried about vasculitis. Link to other connective tissue comditions?

Low Potassium

reducing steroids

Flair up or Flu???!!!!

Small fiber neuropathy

Neck pains

If you are a male with lupus, please share your experiences for our blog

lupus

Headache and speech problems

I really need help

Capillaroscopy: hemorrhages on six fingers but "totally normal picture"

Positive ANCA with positive ANA

News re lupus & infections rates

Feel This Pain: Syringomyelia

heart failure

Wanting to go back to ESA

ESA SUPPORT GROUP

Positive AMA AND ANA with p80 Coilin???

Question

DWP

Advice on bloods

Thyroid starting to play up now!

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