I was made redundant back in February of this year, two weeks before my 50th birthday. Having had a boss who was very understanding and ensured that ALL reasonable adjustments were made in order to accommodate my Lupus for several years, I am now unemployed! However, the last six months have meant that I have had my life back - or at least some of it. I really hadn't realised how much I adjusted my lifestyle in order to get through my working week. Now I have a social life again, even a little spare time to read a book or take the dog for an extra little walk. I've had time to nurture the great friendships I have, which, as a single person living alone with her dog, has been wonderful. It was a great friend of mine who pointed out to me that the reason I probably won't get any financial help in the form of PIP ( ex-DLA) etc. is because I have become an expert in 'managing' myself. As long as I get plenty of sleep - including 3 hours every afternoon - and feed myself properly, ensure I take ALL my tablets and don't deviate from my routine, I stay 'quite' well.
Now I can look forward to all the stress of seeking a new job - for I can't survive for too long without - interviews, journeys in and out of work, parking, holding on to my job, worrying that I'll 'be ill' too often, convincing my employer that I am worth investing in. Oh joy, at least the summer has been nice! Will I even get a job now?
Anyone who knows me well knows that I have to have regular duvet days and that, unfortunately, means time off sick from work. I can't be self employed as it might mean having several months off with no income - I also can't pretend that I don't have Lupus to a prospective employer. What am I supposed to do when I wouldn't even employ me?