Anyone have red eyelids like yr wearing makeup? - LUPUS UK

LUPUS UK

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Anyone have red eyelids like yr wearing makeup?

dawsden profile image
6 Replies
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dawsden
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6 Replies
joannebond360 profile image
joannebond360

Yes red and puffy.

anbuma profile image
anbuma

yes whites of eyes are red too mostly in mornings.

Chapter profile image
Chapter

My eyes always look like I have been up all night when I get up in morning. My eyes and eye lids are also usually the first to go when I overdue it or get to much light, my sign to get some rest.

wotshernameagain profile image
wotshernameagain

Mine are dark brown and I have permanent dark circles under my eyes

thank god for make up!

Barnclown profile image
Barnclown

Me too: symptoms before perimenopause were recurring especially if tried to wear eye makeup. During perimenopause symptoms became persistent. At actual menopause symptoms got much worse:

red eye lids

Periorbital skin roughness, swelling & edema

yellowness & bleeds in whites of eyes

Dry scratchy gritty feelings when open/close lids

Tearing out of corners of eyes

skin crusting at outer corners of eyes

Predisposition to pooling puss in lower eyelids especially during colds/flu (lupus flares)

Etc etc

My former gp had always said: that's normal. For the rash & swelling, he gave me daktacort cause he claimed i had atheletes foot of the eyelid. The puss was treated with chloramphenicol drops (i think that's the name). The daktacort didn't help. The chloramphenicol treatment worked each time. I resigned myself to toughing out my eye symptoms. Even my optician wouldn't do more than shrug. Any eye makeup becme impossible. And this was all before my SLE re-diagnosis in 2010.

Last year, having worked news of my 2010 SLE re-diagnosis into regular monitoring by the typical collection of NHS clinics that had been looking after me for decades, my rheumy had given me lacrilube to use nightly, which was horridly gummy but helped the gritty feeling, and nothing else. She said I had sicca symptoms. For SLE, I was put on plaquenil 400mg daily which helped some symptoms, but not my eyes

FINALLY last year i said to my gp: why have my eyes been so sore and poorly all these years, cause lacrilube isn't helping all my eye symptoms. Even my husband had been concerned about the redness. She referred me to the local NHS eye clinic, where I was lucky enough to see a consultant specialising in immune system patients. He immediately diagnosed meibomian gland dysfunction & blepharitis etc and told me to google dry eye. He said: your eyes need a lot of help. You may be only 59, but your eyes are prematurely ageing and will soon look & feel as poorly as a much much more elderly & poorly person...please chuck the lacrilube (his least fav treatment)

That eye consultant got my gp to prescribe:

Artelac nighttime gel (MUCH NICER THAN LACRILUB

hylotear drops for during the day

An MGDRx Eye Bag to use daily for the rest of my life

(If your gp won't prescribe the above, they are all available from amazon uk, but of course: best to discuss eye treatment with your drs before using these meds)

This eye consultant is now my HERO. his treatment plan has helped ENORMOUSLY. Ok, yes, my eye symptoms remain, but at a much lower level. I am vvvv conscientious about maintaining my eye treatment regime. My life has been improved significantly. meanwhile, I have annual eye clinic appts to monitor the effects of plaquenil & prednisolone

Now I've done enough research to understand how sicca & sjogrens & SLE result in my sort of eye problems....especially as my infant & teen SLE diagnosis was never made known to me until 2010 when the progression of my condition had finally become significantly debilitating.

All this history has of course been somewhat traumatising. And means I end up posting LOOOONG replies like this one!

Sorry for going on & on.

Hope my story can help some one on forum

Colette

dawsden profile image
dawsden in reply to Barnclown

Hi colette......yes it certainly has i also was told by rheumy that i have sicca symptoms so will have a look at the meds u suggest....thank you

Dee

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