Posts - LUPUS UK | HealthUnlocked

LUPUS UK

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All posts for October 2012

FLU JAB???

I know people with low immunity are advised to get the flu-jab. Do many of you with Lupus (who are on meds) have the jab every year or are you thinking of...

I know people with low immunity are advised to get the flu-jab. Do many of you w...

polar-bear

•12 years ago

13 Replies

Pain and swelling of Achilles tendon

Hello Everyone, First of all I hope you are all keeping well I would like to ask if anyone else out there suffers with swelling and pain around the...

Hello Everyone, First of all I hope you are all keeping well I would like to...

Tich

•12 years ago

6 Replies

Please think about helping with this

Some have signed already, thank you if you have, however to be effective it needs sharing for publicity to gain more signatures, please if you can spare the...

Some have signed already, thank you if you have, however to be effective it need...

MaryF

•12 years ago

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morning all !!!

Well been on the mycophenolate for over 4 months now. introduced them slowly and so far no side effects thank goodness!! I have noticed an improvement in my...

Well been on the mycophenolate for over 4 months now. introduced them slowly and...

tiredmum

•12 years ago

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diarreah, cramps, shakes, sweats, exhaustion, rash....lupus flare or something else? When to seek help?

emtsilly

•12 years ago

2 Replies

Blood

Due for bloods tomorrow & really hoping my levels are low enough that I get to have a transfusion, feel I need it. I have no energy, am constantly...

Due for bloods tomorrow & really hoping my levels are low enough that I get to h...

alyj

•12 years ago

3 Replies

Discoid Flare & Recent Freeze Type Fits. Anyone else have similar pribkems ?

fiona734

•12 years ago

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Rash on neck

I haven't had a diagnosis of lupus. I have neved had the butterfly rash on my face, although I do often get flushed cheeks and chest but this comes and goes....

I haven't had a diagnosis of lupus. I have neved had the butterfly rash on my fa...

megs_tom

•12 years ago

9 Replies

Hi, I just wanted to know if there are any lupus groups in Stockton-on-tees and middlesbrough area. Plse get in touch. X

Pipido36

•12 years ago

4 Replies

living hand to mouth

worry is consuming me, i can only work 4hrs a week due to the exhaustion and pain (main two things) that lupus gives me.i went to CAB whom took my and my...

worry is consuming me, i can only work 4hrs a week due to the exhaustion and pa...

caninecrazy

•12 years ago

7 Replies

i dont know what to do

i dont know what to do i have notice'd that evertime i wash my hair it's fallen out i've to see my gp on the 29th oct to see her but i feel a bit silly about...

i dont know what to do i have notice'd that evertime i wash my hair it's fallen ...

mitchel

•12 years ago

10 Replies

Depression

Please can anyone help as I feel like iam going down hill I was at the docs on Monday he said keep trying come back. In 4weeks I stay in my bed all the time...

Please can anyone help as I feel like iam going down hill I was at the docs on M...

scottty

•12 years ago

10 Replies

low white blood count

dr rang this morning to say wbc 1.8 :-( always been low but not that low,in past 3 weeks its gone from 1.98 to 2.84 to 1.8 they now say stop mmf till weds then...

dr rang this morning to say wbc 1.8 :-( always been low but not that low,in past...

poodlegal

•12 years ago

10 Replies

he please can any body help me is thay a proper dr who specilases in lupus ,,,

or is thay just the rumotolagey who only deals with ppl with lupus as am not happy with my specialist ...

or is thay just the rumotolagey who only deals with ppl with lupus as am not hap...

gummy

•12 years ago

4 Replies

I've just started Methotrexate and felt like i had flu for 2 days after,r these normal side efffects?

Lisa78

•12 years ago

6 Replies

hear we go again!!!!!!!!!!!!!!!!

hi all sorry to report that once again im in a flear up lucky me lol i have felt rubbish for as long as i can remember i hurt so much taken all the meds in...

hi all sorry to report that once again im in a flear up lucky me lol i have fel...

traceyd

•12 years ago

6 Replies

lupus and lymph gland involvement???

Does anyone suffer from sore lymph glands ??mine seems to have been up since febuary this year ,especially after exercise,stress,drinking wine,or just simply...

Does anyone suffer from sore lymph glands ??mine seems to have been up since feb...

brave

•12 years ago

12 Replies

Poor veins

Is having terrible veins (for taking bloods/intravenous cannula etc) a common feature in lupus? Today I've had a right drama having a blood test! Well actually...

Is having terrible veins (for taking bloods/intravenous cannula etc) a common fe...

Angelcake

•12 years ago

9 Replies

recent azathioprine blood test

Hi I have recently started on azathioprine, I have been taking it for about 6 weeks now and yesterday had the blood test taken which you need to do when...

Hi I have recently started on azathioprine, I have been taking it for about 6 we...

LULU85

•12 years ago

2 Replies

UTI Non-treatment ?

Hi, Has anyone else come across non-treatment for microscopic UTI? I have urine tests every time I attend for my Lupus out-patient appointment and every...

Hi, Has anyone else come across non-treatment for microscopic UTI? I have ...

Riverbird

•12 years ago

8 Replies

GAPS. Anyone tried this?

Hi all I've been trialling a new eating plan for about three months and have been holding off posting my results to you all because I know diets can be a...

Hi all I've been trialling a new eating plan for about three months and have be...

Acorn1

•12 years ago

28 Replies

Plaquenil and Pregabalin with Activated Charcoal?

Hi all, Anyone know if it is OK to take charcoal capsules whilst on plaquenil and pregabalin? I've found they're fantastic for reducing the flatulence...

Hi all, Anyone know if it is OK to take charcoal capsules whilst on plaquenil a...

Jennie_103

•12 years ago

5 Replies

New potential Lupus UK support group for Sussex :)))

I'd love to hear from anyone East or West! Message me with your number or call head office for mine.

I'd love to hear from anyone East or West! Message me with your number or call h...

Tigerlily4

•12 years ago

8 Replies

Bristol/Bath group??

Hello! I live in Bristol and wondered if anyone knew of any Bristol Lupie's get togethers? If not I would love to set up a monthly one. Let me know if you are...

Hello! I live in Bristol and wondered if anyone knew of any Bristol Lupie's get ...

Cobbers

•12 years ago

2 Replies

new to lupus

Hi all ,after being newly diagnosed with lupus after 16 yrs of non specific ailments and various consultants (even questioning my own sanity at times)finally...

Hi all ,after being newly diagnosed with lupus after 16 yrs of non specific ailm...

brave

•12 years ago

9 Replies

could i have some posters etc please?

My hubby is having a wee colection and awareness day for Lupus at his work next week. Could I have a couple of posters etc sent out to me and a form to join...

My hubby is having a wee colection and awareness day for Lupus at his work next ...

LynnRobertson

•12 years ago

2 Replies

Interaction of steroids and Warfarin

I have had previous CVA and TIA's and am on warfarin. Additionally I have recurrent Transverse Myelitis so need wheelchair. Currently in flare but question...

I have had previous CVA and TIA's and am on warfarin. Additionally I have recur...

Davros

•12 years ago

2 Replies

brighton group

I would really like to meet other people in my area but still havent ! Someone told me before of a meetup but i work part time ( only just ) and couldnt make...

I would really like to meet other people in my area but still havent ! Someone t...

larissa

•12 years ago

7 Replies

How long on steroids?

I've been on steroids for 8 weeks now. Started with 15mg for 2 weeks, then down to 10 mg for 2 weeks, tried going down to 5 mg but couldn't do it, so agreed...

I've been on steroids for 8 weeks now. Started with 15mg for 2 weeks, then down...

Purpletop

•12 years ago

19 Replies

Refused DLA, now do I just get let it go or do I fight? Do I have the energy for it?

Yep, again I was refused DLA after first trying 6 years ago. So what to do,...........appeal seems too hard to do, I found the the application form a trial and...

Yep, again I was refused DLA after first trying 6 years ago. So what to do,........

schnauzersmudge

•12 years ago

16 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for October 2012

FLU JAB???

Pain and swelling of Achilles tendon

Please think about helping with this

morning all !!!

diarreah, cramps, shakes, sweats, exhaustion, rash....lupus flare or something else? When to seek help?

Blood

Discoid Flare & Recent Freeze Type Fits. Anyone else have similar pribkems ?

Rash on neck

Hi, I just wanted to know if there are any lupus groups in Stockton-on-tees and middlesbrough area. Plse get in touch. X

living hand to mouth

i dont know what to do

Depression

low white blood count

he please can any body help me is thay a proper dr who specilases in lupus ,,,

I've just started Methotrexate and felt like i had flu for 2 days after,r these normal side efffects?

hear we go again!!!!!!!!!!!!!!!!

lupus and lymph gland involvement???

Poor veins

recent azathioprine blood test

UTI Non-treatment ?

GAPS. Anyone tried this?

Plaquenil and Pregabalin with Activated Charcoal?

New potential Lupus UK support group for Sussex :)))

Bristol/Bath group??

new to lupus

could i have some posters etc please?

Interaction of steroids and Warfarin

brighton group

How long on steroids?

Refused DLA, now do I just get let it go or do I fight? Do I have the energy for it?

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