lupus and lymph gland involvement???

[brave]

Does anyone suffer from sore lymph glands ??mine seems to have been up since febuary this year ,especially after exercise,stress,drinking wine,or just simply overdoing things ,does anyone have this symptom?thankyou ,brave')

[lupie-Cathy]

Yes I have swollen lymph glands I have one that's permanently swollen on my right side but apparently I should only be worried about it if it feels rubbery, it doesn't it's hard so the Dr tells me. The others go up and down depending on how I am ( all up at the moment as I have a nasty cold!) I have Sjogrens syndrome too so never know whether it's down to Lupus or that or just my immune system anyway! Stress can trigger a flare so it could be that's whats happening. I'm not sure that drinking or exercise could do it but I suppose they could be triggering flares too, I know mine get sore sometimes when I'm very tired.

Hope you find out whats causing yours soon xx

[brave]

Thankyou lupie-cathy,i too have sjogrens and fibromyalgia as well as lupus,and consultant is sure my sore lymph glands are all to do with this ?its nothing out of the ordinary for me its been happening for a decade,i was just interested to see if anyone else sufferd this symptom???it seems that this is just another one of the multitude of symptoms we get?thanks for responding ,brave

[gummy]

yer i have swallon glanes as well and can be sore wen i touch them dr told me its all 2 do with being on steroids for a long time and yer another 1 of the many symtoms that we all get xxx

[LupusKaren]

I was with my GP only this week for this. I have a very painful swollen lymph gland in my armpit, which is now the size of a walnut, hard. It is impinging my movement of left arm. I am currently in the longest flare I have had since diagnosis in 2009 14 weeks, but prior to diagnosis, had this problem, which had me referred to breast clinic for checks twice.

GP asked me wait another 2 weeks to see if it goes now, I am not comfortable with this, and as I am on a heavy dose of Cellcept and the lymphoma risk, I want this checked out sooner.

[Marji5229 in reply to LupusKaren]

I have swollen lymph nodes too.  The one under my arm burns and others throughout my body, groin, stomach are painful.  I've had this for four years. Is this a risk for lymphoma? I'm on Rituxan infusions which seem to help. Please shar any information you might have. Thanks

[brave]

Hi lupus karen,if your not comfortable with waiting two weeks you have a right to go back to gp!my lymph glands have been up since feb this year!thats a long time for me.Ten years ago when i was obviously suffering from a severe lupus flare ,but at that time my then g.p told me i was suffering from M.E ,although i had positive A.N.A and high CRP levels ,hairloss,endless other symptoms with a persitent flu like feeling ,and lymph glands up all over my body ,golf balls under my armpits ,groin etc ,was really poorly;(thats continued on and off for a good ten years ,over the last decade my lymph glands have come up and gone down intermitently ,however stayed up since feb ,some days they feel like there easing and other times they flare up,ive noticed after overexertion,stress,alcohol,and during the summer after any amount of sun/heat exposure,as i beleive its part of an immune response as us lupus sufferers are in a constant state of red alert ,go and get a second opinion and dont suffer in silence ,take care ,brave

[SoupHero]

Stress, alcohol and heat induce intestinal hyperpermeability that can result in lupus. Have you tried going gluten and alcohol free?

leakygutresearch.com/lupus-...

leakygutresearch.com/leaky-...

[brave]

super hero........thankyou......ive just spent weeks reserching leaky gut syndrome ,and i have had issues with gluten my whole life ,however because i tested negative for celiacs,have often failed to stick to gluten free,i beleive years of eating a gluten containing diet has triggerd an immune response which has now gone so far i wander if i can ever reverse ????i know i cant cure lupus ,but i get an array of other overlap autoimmune syndromes that perhaps would benefit??i am intolerant to heat ,we lived in australia untill may this year for a few years and lupus came to show itself while we were out there,we have moved back to channel isles now and although its a releif to be out of the intense heat my body is going through a very rough patch and i cant seem to get in top of it,,but then im still trying to live the way i always have ,i need to apply a complete dif life style to see if this works but havent the energy to at the moment ,thing is i live very well ,eat well .take supplements ,try to exercise if my body allows ,and often feel so dissapointed as you would assume that i wouldnt be so unwell???my god there are people who live like demons and live to 100yrs with no probs ,so im struggling to find light at the end of the tunnel with this one ,however i have nothing to loose by trying ,thankyou for your info ,keep well brave

[SoupHero]

Read this study

ncbi.nlm.nih.gov/pmc/articl...

Only one of the three had positive biopsy (true celiac), the other two were only gluten sensitive. After sticking to the GF diet they were symptom free. What did you say about lupus noncurability?

[brave]

Hi super hero!where did you find this link????????thankyou for the info ,i have read up on celiac disease and its many symptoms, and for me... my probs started as a child,with terrible stomache problems ,and my parents were told of I.B.S and gave me fibre supplements,i was a chubby well built child and certainly didnt look unwell ,i went on to develop an array of ailments through my teens ,and by 20yrs a whole heap of symptoms began ,chronic fatigue ,raised iron saturation levels, neurological symptoms ,lymph gland issues digetstive issues still ever evident,this continued in peaks and troughs(spelt wrong??)untill 29yrs old then a huge flare of these symptoms arrived and didnt settle for 12months,had raised CRP,and positive ANA .was told to go home and rest and labelled with M,E!i then put up with my symptoms untill two years ago when in australia things started to get worse than ever ,along with these symptoms came adrenal issues ,hormonal imbalances and more ,theses have never been treated ,just brushed off ,as.....not addisons disease so no treatment required,and hormones left at a low level,after reacting badly to heat and sunshine and my symptoms got worse than ever i had bloods done which still showed positive ANA,raised CRP,but negative everything else ,was told i had mixed connective tissue disease /sjogrens ,then a few months ago was told i had lupus and possible overlap diseases ,my body is in turmoil ,and i battle daily ,there seems to be no brakes between flares anymore just permenant symptoms with extra bad days,my adrenals are really struggling and i react to most things ,be it diet ,stress,sunlight ,medicines and more ,my glands worry me as they really are tender and i have mouth ulcers ,i eat a very good diet with heaps of veggies etc ,but its as if i dont absorb the goodness ???im exhausted from trying to be well and after a negative celiac screen and after my g.p has said if i were gluten sensitive it would show im loosing faith in well being ,ive read up on gut health and totaly get it ,however i feel i need to be well to apply theses changes as they would be huge ones ,and i would suffer initial side effects ,but then i imagine the good would set in?????I could go on and on (which i have )sorry!!!!!!!!!!!thankyou for taking the time for the link ,this blog is a real support ,keep happy and well brave

[LupusKaren]

I posted about my concerns on my swollen lymph nodes, particularly under armpits. Went back to my GP yesterday, and yes they are still enlarged. Requested that this be investigated now given I am on Cellcept, and the risks associated with it for Lymphoma.

He has requested an ultrasound to see if any abnormality shows up as to why they could be enlarged, blood work was clear for infection, and CRP normal, but I do have an elevated ESR of 40, though it has been higher than this. If nothing conclusive, referring me for fine needle aspiration of the lumps for biopsy.

Understandbly very nervous about the whole thing, I have not felt particularly well for over a year, all subtle, to include some usual Lupus manifestations, but something else that I cannot really describe.

Anyone else had FNA on their lymph nodes that could give me the heads up on what to expect please?

[brave in reply to LupusKaren]

Im on no medication other than painkillers at the moment,my glands are worse than ever ,i feel very different than the usual lupus flare ,its like im being poisioned.Feel extremly unwell and getting worse each day,i had a ultra sound of my neck in march ,it was normal however a nodule was found in my thyroid,i see consultant friday so i will stress to him that this area needs to be further investgated,good luck with your tests,hope you feel better soon,brave